Development of an International Standard Set of Outcomes and Measurement Methods for Routine Practice for Adults with Epilepsy: The International Consortium for Health Outcomes Measurement Consensus Recommendations.
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| Title: | Development of an International Standard Set of Outcomes and Measurement Methods for Routine Practice for Adults with Epilepsy: The International Consortium for Health Outcomes Measurement Consensus Recommendations. |
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| Authors: | Mitchell, James W. (AUTHOR), Sossi, Frieda (AUTHOR), Miller, Isabel (AUTHOR), Jaber, Paula Blancarte (AUTHOR), Das‐Gupta, Zofia (AUTHOR), Fialho, Luz Sousa (AUTHOR), Amos, Action (AUTHOR), Austin, Joan K. (AUTHOR), Badzik, Scott (AUTHOR), Baker, Gus (AUTHOR), Zeev, Bruria Ben (AUTHOR), Bolton, Jeffrey (AUTHOR), Chaplin, John E. (AUTHOR), Cross, J. Helen (AUTHOR), Chan, Derrick (AUTHOR), Gericke, Christian A. (AUTHOR), Husain, Aatif M. (AUTHOR), Lally, Lorraine (AUTHOR), Mbugua, Sharon (AUTHOR), Megan, Cassidy (AUTHOR) |
| Source: | Epilepsia (Series 4). Jul2024, Vol. 65 Issue 7, p1916-1937. 22p. |
| Subjects: | Health outcome assessment, Sleep quality, Epilepsy, People with epilepsy, Adults, Social anxiety |
| Abstract: | At present, there is no internationally accepted set of core outcomes or measurement methods for epilepsy clinical practice. Therefore, the International Consortium for Health Outcomes Measurement (ICHOM) convened an international working group of experts in epilepsy, people with epilepsy and their representatives to develop minimum sets of standardized outcomes and outcomes measurement methods for clinical practice that support patient–clinician decision‐making and quality improvement. Consensus methods identified 20 core outcomes. Measurement tools were recommended based on their evidence of strong clinical measurement properties, feasibility, and cross‐cultural applicability. The essential outcomes included many non‐seizure outcomes: anxiety, depression, suicidality, memory and attention, sleep quality, functional status, and the social impact of epilepsy. The proposed set will facilitate the implementation of the use of patient‐centered outcomes in daily practice, ensuring holistic care. They also encourage harmonization of outcome measurement, and if widely implemented should reduce the heterogeneity of outcome measurement, accelerate comparative research, and facilitate quality improvement efforts. [ABSTRACT FROM AUTHOR] |
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| Database: | Psychology and Behavioral Sciences Collection |
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| Abstract: | At present, there is no internationally accepted set of core outcomes or measurement methods for epilepsy clinical practice. Therefore, the International Consortium for Health Outcomes Measurement (ICHOM) convened an international working group of experts in epilepsy, people with epilepsy and their representatives to develop minimum sets of standardized outcomes and outcomes measurement methods for clinical practice that support patient–clinician decision‐making and quality improvement. Consensus methods identified 20 core outcomes. Measurement tools were recommended based on their evidence of strong clinical measurement properties, feasibility, and cross‐cultural applicability. The essential outcomes included many non‐seizure outcomes: anxiety, depression, suicidality, memory and attention, sleep quality, functional status, and the social impact of epilepsy. The proposed set will facilitate the implementation of the use of patient‐centered outcomes in daily practice, ensuring holistic care. They also encourage harmonization of outcome measurement, and if widely implemented should reduce the heterogeneity of outcome measurement, accelerate comparative research, and facilitate quality improvement efforts. [ABSTRACT FROM AUTHOR] |
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| ISSN: | 00139580 |
| DOI: | 10.1111/epi.17971 |
