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What supports are people with intellectual disability living in group homes provided to access health care? A case study.

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Title: What supports are people with intellectual disability living in group homes provided to access health care? A case study.
Authors: Skoss, Rachel, Chivers, Paola, Arendts, Glenn, Bulsara, Caroline, Vithiatharan, Rena, Codde, Jim
Source: British Journal of Learning Disabilities. Sep2024, Vol. 52 Issue 3, p549-561. 13p.
Subjects: Health services accessibility, Medical care use, Community health services, Mental health services, Research funding, Descriptive statistics, Intellectual disabilities, Stay-at-home orders, Health planning, Medical needs assessment, Case studies, Comparative studies, Social support, Residential care, Medical care costs, COVID-19 pandemic
Geographic Terms: Australia
Abstract: Background: People with intellectual disabilities living in group homes often have complex health needs, are high health service users and need support from their service provider to access health services. In Australia, little is known about the types and amounts of these supports. Methods: A case study was conducted on a large Western Australian disability provider of group homes to 160 people with intellectual disability. Over an 18‐month period, including during the COVID‐19 pandemic, the study quantified health service use in hospital‐ and community‐based settings, ways by which the person was supported to access health care and the impact on other people supported by the provider. Economic costs of supporting access to health services were estimated. Findings: Overall, the disability provider supported 160 people in accessing health services an average of 23 times each (n = 3617, median = 20, interquartile range = 10–33) over the 18 months. Support included staff attending with the person (96%), following up with guardian/decision‐maker (50%), additional resourcing via overtime or staff backfills (6%) and transport (94%). The average cost of supporting one health visit was estimated at $78.51 AUD (2021). Impact on the person's household included loss of opportunity for housemates (30%), reduced supervision within the home (79%) and longer timeframes to complete care needs (32%). The impact of COVID‐19 restrictions saw a reduction in allied and mental health service use that did not return to prepandemic levels following the cessation of restrictions. Primary care, specialist, outpatient, pathology and emergency service use was also lower in the postrestriction period compared to the prepandemic period. Conclusions: For people living in group homes, the disability provider plays an essential role in supporting health service access, primarily through the provision of support staff and transport. The change in health service utilisation following the COVID‐19 restriction period indicates that altered health system priorities can potentially exacerbate access inequality for people with intellectual disability. Accessible summary: People with intellectual disability frequently need support to go to a health service.Our study looked at how people in group homes receive this support.We found that after COVID‐19 restrictions, people received fewer health services.This is important as we need to make sure that people receive the health services that they need. [ABSTRACT FROM AUTHOR]
Copyright of British Journal of Learning Disabilities is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: What supports are people with intellectual disability living in group homes provided to access health care? A case study.
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  Data: <searchLink fieldCode="JN" term="%22British+Journal+of+Learning+Disabilities%22">British Journal of Learning Disabilities</searchLink>. Sep2024, Vol. 52 Issue 3, p549-561. 13p.
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  Data: Background: People with intellectual disabilities living in group homes often have complex health needs, are high health service users and need support from their service provider to access health services. In Australia, little is known about the types and amounts of these supports. Methods: A case study was conducted on a large Western Australian disability provider of group homes to 160 people with intellectual disability. Over an 18‐month period, including during the COVID‐19 pandemic, the study quantified health service use in hospital‐ and community‐based settings, ways by which the person was supported to access health care and the impact on other people supported by the provider. Economic costs of supporting access to health services were estimated. Findings: Overall, the disability provider supported 160 people in accessing health services an average of 23 times each (n = 3617, median = 20, interquartile range = 10–33) over the 18 months. Support included staff attending with the person (96%), following up with guardian/decision‐maker (50%), additional resourcing via overtime or staff backfills (6%) and transport (94%). The average cost of supporting one health visit was estimated at $78.51 AUD (2021). Impact on the person's household included loss of opportunity for housemates (30%), reduced supervision within the home (79%) and longer timeframes to complete care needs (32%). The impact of COVID‐19 restrictions saw a reduction in allied and mental health service use that did not return to prepandemic levels following the cessation of restrictions. Primary care, specialist, outpatient, pathology and emergency service use was also lower in the postrestriction period compared to the prepandemic period. Conclusions: For people living in group homes, the disability provider plays an essential role in supporting health service access, primarily through the provision of support staff and transport. The change in health service utilisation following the COVID‐19 restriction period indicates that altered health system priorities can potentially exacerbate access inequality for people with intellectual disability. Accessible summary: People with intellectual disability frequently need support to go to a health service.Our study looked at how people in group homes receive this support.We found that after COVID‐19 restrictions, people received fewer health services.This is important as we need to make sure that people receive the health services that they need. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of British Journal of Learning Disabilities is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=178558303
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      – Type: doi
        Value: 10.1111/bld.12601
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      – Code: eng
        Text: English
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      Pagination:
        PageCount: 13
        StartPage: 549
    Subjects:
      – SubjectFull: Health services accessibility
        Type: general
      – SubjectFull: Medical care use
        Type: general
      – SubjectFull: Community health services
        Type: general
      – SubjectFull: Mental health services
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      – SubjectFull: Research funding
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      – SubjectFull: Descriptive statistics
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      – SubjectFull: Intellectual disabilities
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      – SubjectFull: Health planning
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      – SubjectFull: Medical needs assessment
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      – SubjectFull: Case studies
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      – SubjectFull: Australia
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      – TitleFull: What supports are people with intellectual disability living in group homes provided to access health care? A case study.
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              Text: Sep2024
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              Y: 2024
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