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Feasibility study of a parent‐driven intervention for youth with Down syndrome.

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Title: Feasibility study of a parent‐driven intervention for youth with Down syndrome.
Authors: Stone‐Heaberlin, M., Blackburn, A., Hoffman, E. K., Esbensen, A. J.
Source: Journal of Intellectual Disability Research. Sep2024, Vol. 68 Issue 9, p1077-1086. 10p.
Subjects: Behavior disorders, Down syndrome, Educational outcomes, Pilot projects, Statistical sampling, Blind experiment, Parenting, Randomized controlled trials, Caregivers, Comparative studies, Caregiver attitudes
Abstract: Background: Children with Down syndrome present with behavioural and emotional difficulties, including noncompliance, rule‐breaking, emotion dysregulation and delays in executive functioning. Few behavioural interventions have been designed specifically for children with Down syndrome. The Research Units in Behavioral Intervention (RUBI) Parent Training for Disruptive Behaviors is a structured empirically supported parent training programme developed for caregivers of children with autism. This feasibility trial explored the feasibility and acceptability of an abbreviated RUBI intervention with caregivers of children with Down syndrome and identified promising outcome measures to target in future larger clinical trials. Method: A double‐blind randomised feasibility pilot clinical trial allocated participants to a behavioural intervention (BEH) or educational (EDU) group. BEH and EDU consisted of five individual sessions over the course of 5 to 8 weeks. Measures were administered to 20 caregivers and their youth with Down syndrome at three time points. Results: Both BEH and EDU were rated as feasible with high parental adherence and acceptable with high treatment satisfaction. Both BEH and EDU demonstrated decreased externalising behaviours, irritability and hyperactivity and improved behavioural regulation in executive functioning over time. No impact was noted on caregiver functioning. Conclusion: The feasibility trial has strong findings regarding feasibility and satisfaction and has promising findings regarding the selection of measures for future trials testing an adapted RUBI programme and an education programme to reduce behavioural challenges in children with Down syndrome. Larger scale clinical trials are needed to confirm promising findings of these feasible treatments. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Intellectual Disability Research is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Feasibility study of a parent‐driven intervention for youth with Down syndrome.
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  Data: <searchLink fieldCode="AR" term="%22Stone‐Heaberlin%2C+M%2E%22">Stone‐Heaberlin, M.</searchLink><br /><searchLink fieldCode="AR" term="%22Blackburn%2C+A%2E%22">Blackburn, A.</searchLink><br /><searchLink fieldCode="AR" term="%22Hoffman%2C+E%2E+K%2E%22">Hoffman, E. K.</searchLink><br /><searchLink fieldCode="AR" term="%22Esbensen%2C+A%2E+J%2E%22">Esbensen, A. J.</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22Journal+of+Intellectual+Disability+Research%22">Journal of Intellectual Disability Research</searchLink>. Sep2024, Vol. 68 Issue 9, p1077-1086. 10p.
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  Data: <searchLink fieldCode="DE" term="%22Behavior+disorders%22">Behavior disorders</searchLink><br /><searchLink fieldCode="DE" term="%22Down+syndrome%22">Down syndrome</searchLink><br /><searchLink fieldCode="DE" term="%22Educational+outcomes%22">Educational outcomes</searchLink><br /><searchLink fieldCode="DE" term="%22Pilot+projects%22">Pilot projects</searchLink><br /><searchLink fieldCode="DE" term="%22Statistical+sampling%22">Statistical sampling</searchLink><br /><searchLink fieldCode="DE" term="%22Blind+experiment%22">Blind experiment</searchLink><br /><searchLink fieldCode="DE" term="%22Parenting%22">Parenting</searchLink><br /><searchLink fieldCode="DE" term="%22Randomized+controlled+trials%22">Randomized controlled trials</searchLink><br /><searchLink fieldCode="DE" term="%22Caregivers%22">Caregivers</searchLink><br /><searchLink fieldCode="DE" term="%22Comparative+studies%22">Comparative studies</searchLink><br /><searchLink fieldCode="DE" term="%22Caregiver+attitudes%22">Caregiver attitudes</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Background: Children with Down syndrome present with behavioural and emotional difficulties, including noncompliance, rule‐breaking, emotion dysregulation and delays in executive functioning. Few behavioural interventions have been designed specifically for children with Down syndrome. The Research Units in Behavioral Intervention (RUBI) Parent Training for Disruptive Behaviors is a structured empirically supported parent training programme developed for caregivers of children with autism. This feasibility trial explored the feasibility and acceptability of an abbreviated RUBI intervention with caregivers of children with Down syndrome and identified promising outcome measures to target in future larger clinical trials. Method: A double‐blind randomised feasibility pilot clinical trial allocated participants to a behavioural intervention (BEH) or educational (EDU) group. BEH and EDU consisted of five individual sessions over the course of 5 to 8 weeks. Measures were administered to 20 caregivers and their youth with Down syndrome at three time points. Results: Both BEH and EDU were rated as feasible with high parental adherence and acceptable with high treatment satisfaction. Both BEH and EDU demonstrated decreased externalising behaviours, irritability and hyperactivity and improved behavioural regulation in executive functioning over time. No impact was noted on caregiver functioning. Conclusion: The feasibility trial has strong findings regarding feasibility and satisfaction and has promising findings regarding the selection of measures for future trials testing an adapted RUBI programme and an education programme to reduce behavioural challenges in children with Down syndrome. Larger scale clinical trials are needed to confirm promising findings of these feasible treatments. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Journal of Intellectual Disability Research is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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        Value: 10.1111/jir.13171
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        Text: English
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        PageCount: 10
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    Subjects:
      – SubjectFull: Behavior disorders
        Type: general
      – SubjectFull: Down syndrome
        Type: general
      – SubjectFull: Educational outcomes
        Type: general
      – SubjectFull: Pilot projects
        Type: general
      – SubjectFull: Statistical sampling
        Type: general
      – SubjectFull: Blind experiment
        Type: general
      – SubjectFull: Parenting
        Type: general
      – SubjectFull: Randomized controlled trials
        Type: general
      – SubjectFull: Caregivers
        Type: general
      – SubjectFull: Comparative studies
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      – SubjectFull: Caregiver attitudes
        Type: general
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      – TitleFull: Feasibility study of a parent‐driven intervention for youth with Down syndrome.
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            NameFull: Blackburn, A.
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            NameFull: Hoffman, E. K.
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              M: 09
              Text: Sep2024
              Type: published
              Y: 2024
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