What are the perspectives of patients with hand and wrist conditions, chronic pain, and patients recovering from stroke on the use of patient and outcome information in everyday care? A Mixed-Methods study.
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| Title: | What are the perspectives of patients with hand and wrist conditions, chronic pain, and patients recovering from stroke on the use of patient and outcome information in everyday care? A Mixed-Methods study. |
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| Authors: | Arends, Grada R. (AUTHOR), Loos, Nina L. (AUTHOR), van Kooij, Yara E. (AUTHOR), Tabeau, Kasia (AUTHOR), de Ridder, Willemijn A. (AUTHOR), Selles, Ruud W. (AUTHOR), Veltkamp, Joris (AUTHOR), Wouters, Robbert M. (AUTHOR) |
| Source: | Quality of Life Research. Sep2024, Vol. 33 Issue 9, p2573-2587. 15p. |
| Subjects: | Patients' attitudes, Patient reported outcome measures, Value-based healthcare, Chronic pain, Patient-centered care, Wrist |
| Abstract: | Purpose: To evaluate the patients' perspectives on the use of patient- and outcome information tools in everyday care and to investigate which characteristics affect general understanding and perceived value of patient- and outcome information. Methods: This mixed-methods study included surveys and interviews on understanding, experience, decision-support, and perceived value in patients with hand and wrist conditions and chronic pain. We synthesized our quantitative and qualitative findings using a triangulation protocol and identified factors independently associated with general understanding and perceived value of patient- and outcome information using hierarchical logistic regression. Results: We included 3379 patients. The data triangulation indicated that patients understand the outcome information, they find it valuable, it supports decision-making, and it improves patient-clinician interaction. The following variables were independently associated with better general understanding: having more difficulty with questionnaires (standardized odds ratio 0.34 [95%-CI 031–0.38]), having a finger condition (0.72 [0.57–0.92]), longer follow-up (0.75 [0.61–0.91]), and undergoing surgical treatment (ref: non-surgical treatment, 1.33 [1.11–1.59]). For more general value, these were: having more difficulty with questionnaires (0.40 [0.36–0.44]), having a wrist condition (0.71 [0.54–0.92]), better hand function (1.12 [1.02–1.22]), and requiring help with questionnaires (1.65 [1.33–2.05]). Conclusion: Patients value the use of patient- and outcome information tools in daily care and find it easy to understand. The factors associated with understanding and value can be targeted to personalized and value-based healthcare. We recommend using outcome information to improve patient independence, empowerment, and involvement in decision-making. [ABSTRACT FROM AUTHOR] |
| Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 179574258 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: What are the perspectives of patients with hand and wrist conditions, chronic pain, and patients recovering from stroke on the use of patient and outcome information in everyday care? A Mixed-Methods study. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Arends%2C+Grada+R%2E%22">Arends, Grada R.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Loos%2C+Nina+L%2E%22">Loos, Nina L.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22van+Kooij%2C+Yara+E%2E%22">van Kooij, Yara E.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Tabeau%2C+Kasia%22">Tabeau, Kasia</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22de+Ridder%2C+Willemijn+A%2E%22">de Ridder, Willemijn A.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Selles%2C+Ruud+W%2E%22">Selles, Ruud W.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Veltkamp%2C+Joris%22">Veltkamp, Joris</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Wouters%2C+Robbert+M%2E%22">Wouters, Robbert M.</searchLink> (AUTHOR) – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Quality+of+Life+Research%22">Quality of Life Research</searchLink>. Sep2024, Vol. 33 Issue 9, p2573-2587. 15p. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Patients'+attitudes%22">Patients' attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Patient+reported+outcome+measures%22">Patient reported outcome measures</searchLink><br /><searchLink fieldCode="DE" term="%22Value-based+healthcare%22">Value-based healthcare</searchLink><br /><searchLink fieldCode="DE" term="%22Chronic+pain%22">Chronic pain</searchLink><br /><searchLink fieldCode="DE" term="%22Patient-centered+care%22">Patient-centered care</searchLink><br /><searchLink fieldCode="DE" term="%22Wrist%22">Wrist</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Purpose: To evaluate the patients' perspectives on the use of patient- and outcome information tools in everyday care and to investigate which characteristics affect general understanding and perceived value of patient- and outcome information. Methods: This mixed-methods study included surveys and interviews on understanding, experience, decision-support, and perceived value in patients with hand and wrist conditions and chronic pain. We synthesized our quantitative and qualitative findings using a triangulation protocol and identified factors independently associated with general understanding and perceived value of patient- and outcome information using hierarchical logistic regression. Results: We included 3379 patients. The data triangulation indicated that patients understand the outcome information, they find it valuable, it supports decision-making, and it improves patient-clinician interaction. The following variables were independently associated with better general understanding: having more difficulty with questionnaires (standardized odds ratio 0.34 [95%-CI 031–0.38]), having a finger condition (0.72 [0.57–0.92]), longer follow-up (0.75 [0.61–0.91]), and undergoing surgical treatment (ref: non-surgical treatment, 1.33 [1.11–1.59]). For more general value, these were: having more difficulty with questionnaires (0.40 [0.36–0.44]), having a wrist condition (0.71 [0.54–0.92]), better hand function (1.12 [1.02–1.22]), and requiring help with questionnaires (1.65 [1.33–2.05]). Conclusion: Patients value the use of patient- and outcome information tools in daily care and find it easy to understand. The factors associated with understanding and value can be targeted to personalized and value-based healthcare. We recommend using outcome information to improve patient independence, empowerment, and involvement in decision-making. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1007/s11136-024-03685-1 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 15 StartPage: 2573 Subjects: – SubjectFull: Patients' attitudes Type: general – SubjectFull: Patient reported outcome measures Type: general – SubjectFull: Value-based healthcare Type: general – SubjectFull: Chronic pain Type: general – SubjectFull: Patient-centered care Type: general – SubjectFull: Wrist Type: general Titles: – TitleFull: What are the perspectives of patients with hand and wrist conditions, chronic pain, and patients recovering from stroke on the use of patient and outcome information in everyday care? A Mixed-Methods study. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Arends, Grada R. – PersonEntity: Name: NameFull: Loos, Nina L. – PersonEntity: Name: NameFull: van Kooij, Yara E. – PersonEntity: Name: NameFull: Tabeau, Kasia – PersonEntity: Name: NameFull: de Ridder, Willemijn A. – PersonEntity: Name: NameFull: Selles, Ruud W. – PersonEntity: Name: NameFull: Veltkamp, Joris – PersonEntity: Name: NameFull: Wouters, Robbert M. IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 09 Text: Sep2024 Type: published Y: 2024 Identifiers: – Type: issn-print Value: 09629343 Numbering: – Type: volume Value: 33 – Type: issue Value: 9 Titles: – TitleFull: Quality of Life Research Type: main |
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