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Diversity of Participants in Williams Syndrome Intervention Studies.

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Title: Diversity of Participants in Williams Syndrome Intervention Studies.
Authors: Shin, Eva, Ravichandran, Caitlin, Renzi, Danielle, Pober, Barbara R., McDougle, Christopher J., Thom, Robyn P.
Source: Journal of Autism & Developmental Disorders. Oct2024, Vol. 54 Issue 10, p3888-3898. 11p.
Subjects: Research funding, Williams syndrome, Human research subjects, Descriptive statistics, Experimental design, Systematic reviews, Race, MEDLINE, Data analysis software, Online information services, Demography, Cultural pluralism, Social classes
Abstract: Purpose: This study describes participant diversity in Williams syndrome (WS) intervention studies. Methods: A literature search was conducted to identify prospective treatment studies including participants with WS. Data was extracted on the reporting of and information provided on age, sex, cognitive ability, socioeconomic status, race, and ethnicity. Results: Eleven eligible articles were identified. Reporting rates of demographic factors varied considerably, with the highest rates for age and sex (100%) and the lowest reporting rates for race (18%) and ethnicity (9%). Combining demographic data from the two studies that reported on race and/or ethnicity (n = 33), 88% of participants were White. The combined participant mean age was 20.9 years. Conclusion: There is a low frequency of reporting on several demographic factors including socioeconomic status, race, and ethnicity in WS intervention studies. There is a need for increased representation of racial and ethnic minority groups, older participants, and more cognitively impaired patients in WS research. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Diversity of Participants in Williams Syndrome Intervention Studies.
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  Data: <searchLink fieldCode="AR" term="%22Shin%2C+Eva%22">Shin, Eva</searchLink><br /><searchLink fieldCode="AR" term="%22Ravichandran%2C+Caitlin%22">Ravichandran, Caitlin</searchLink><br /><searchLink fieldCode="AR" term="%22Renzi%2C+Danielle%22">Renzi, Danielle</searchLink><br /><searchLink fieldCode="AR" term="%22Pober%2C+Barbara+R%2E%22">Pober, Barbara R.</searchLink><br /><searchLink fieldCode="AR" term="%22McDougle%2C+Christopher+J%2E%22">McDougle, Christopher J.</searchLink><br /><searchLink fieldCode="AR" term="%22Thom%2C+Robyn+P%2E%22">Thom, Robyn P.</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22Journal+of+Autism+%26+Developmental+Disorders%22">Journal of Autism & Developmental Disorders</searchLink>. Oct2024, Vol. 54 Issue 10, p3888-3898. 11p.
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  Data: <searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Williams+syndrome%22">Williams syndrome</searchLink><br /><searchLink fieldCode="DE" term="%22Human+research+subjects%22">Human research subjects</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Experimental+design%22">Experimental design</searchLink><br /><searchLink fieldCode="DE" term="%22Systematic+reviews%22">Systematic reviews</searchLink><br /><searchLink fieldCode="DE" term="%22Race%22">Race</searchLink><br /><searchLink fieldCode="DE" term="%22MEDLINE%22">MEDLINE</searchLink><br /><searchLink fieldCode="DE" term="%22Data+analysis+software%22">Data analysis software</searchLink><br /><searchLink fieldCode="DE" term="%22Online+information+services%22">Online information services</searchLink><br /><searchLink fieldCode="DE" term="%22Demography%22">Demography</searchLink><br /><searchLink fieldCode="DE" term="%22Cultural+pluralism%22">Cultural pluralism</searchLink><br /><searchLink fieldCode="DE" term="%22Social+classes%22">Social classes</searchLink>
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  Data: Purpose: This study describes participant diversity in Williams syndrome (WS) intervention studies. Methods: A literature search was conducted to identify prospective treatment studies including participants with WS. Data was extracted on the reporting of and information provided on age, sex, cognitive ability, socioeconomic status, race, and ethnicity. Results: Eleven eligible articles were identified. Reporting rates of demographic factors varied considerably, with the highest rates for age and sex (100%) and the lowest reporting rates for race (18%) and ethnicity (9%). Combining demographic data from the two studies that reported on race and/or ethnicity (n = 33), 88% of participants were White. The combined participant mean age was 20.9 years. Conclusion: There is a low frequency of reporting on several demographic factors including socioeconomic status, race, and ethnicity in WS intervention studies. There is a need for increased representation of racial and ethnic minority groups, older participants, and more cognitively impaired patients in WS research. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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        Value: 10.1007/s10803-023-06088-2
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      – SubjectFull: Descriptive statistics
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      – SubjectFull: Social classes
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      – TitleFull: Diversity of Participants in Williams Syndrome Intervention Studies.
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              Text: Oct2024
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