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Identifying Needs of Ethiopian and Eritrean American Parents of Autistic Children.

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Title: Identifying Needs of Ethiopian and Eritrean American Parents of Autistic Children.
Authors: Ataro Adere, Azeb, Dababnah, Sarah, Habayeb, Serene
Source: Journal of Autism & Developmental Disorders. Oct2024, Vol. 54 Issue 10, p3899-3907. 9p.
Subjects: Diagnosis of autism, Health services accessibility, Patients' families, Medical personnel, Medical care, Health, Cultural competence, Information resources, Labor demand, Needs assessment, Psychology of parents, Psychology of caregivers, Asperger's syndrome, Social support, Family support, Customer satisfaction, East Africans, School health services, Labor supply, Children
Geographic Terms: Ethiopia, United States
Abstract: Collectively, Ethiopians and Eritreans represent one of the largest African immigrant groups in the US, yet no research to date exists on families from these communities raising autistic children. The purpose of our study was to examine the experiences of Ethiopian and Eritrean families of autistic children including experiences (1) receiving the autism diagnosis and interacting with healthcare providers, (2) obtaining services and supports for children (including satisfaction with services and barriers to care), and (3) accessing services and supports for caregivers and families (including needs and barriers to care). Ethiopian and Eritrean parents (N = 51) raising autistic children in the US completed an online survey. Parents reported limited prior knowledge of autism within their communities and had varied experiences with healthcare providers through the diagnostic process. They endorsed barriers to accessing care for their child and family supports (such as provider shortages and cost of services), service needs, and dissatisfaction with school-based and behavioral supports. Many parents reported a negative impact on workforce participation in order to meet their child's needs. Parents identified needs that would benefit their autistic children and families, such as accessible support groups to obtain relevant information. To our knowledge, this is the first systematic study exploring the experiences of Ethiopian and Eritrean families raising autistic children in the US. We discuss implications of our findings and recommendations for culturally responsive care. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Identifying Needs of Ethiopian and Eritrean American Parents of Autistic Children.
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  Data: <searchLink fieldCode="AR" term="%22Ataro+Adere%2C+Azeb%22">Ataro Adere, Azeb</searchLink><br /><searchLink fieldCode="AR" term="%22Dababnah%2C+Sarah%22">Dababnah, Sarah</searchLink><br /><searchLink fieldCode="AR" term="%22Habayeb%2C+Serene%22">Habayeb, Serene</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22Journal+of+Autism+%26+Developmental+Disorders%22">Journal of Autism & Developmental Disorders</searchLink>. Oct2024, Vol. 54 Issue 10, p3899-3907. 9p.
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  Data: <searchLink fieldCode="DE" term="%22Diagnosis+of+autism%22">Diagnosis of autism</searchLink><br /><searchLink fieldCode="DE" term="%22Health+services+accessibility%22">Health services accessibility</searchLink><br /><searchLink fieldCode="DE" term="%22Patients'+families%22">Patients' families</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+personnel%22">Medical personnel</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+care%22">Medical care</searchLink><br /><searchLink fieldCode="DE" term="%22Health%22">Health</searchLink><br /><searchLink fieldCode="DE" term="%22Cultural+competence%22">Cultural competence</searchLink><br /><searchLink fieldCode="DE" term="%22Information+resources%22">Information resources</searchLink><br /><searchLink fieldCode="DE" term="%22Labor+demand%22">Labor demand</searchLink><br /><searchLink fieldCode="DE" term="%22Needs+assessment%22">Needs assessment</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+parents%22">Psychology of parents</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+caregivers%22">Psychology of caregivers</searchLink><br /><searchLink fieldCode="DE" term="%22Asperger's+syndrome%22">Asperger's syndrome</searchLink><br /><searchLink fieldCode="DE" term="%22Social+support%22">Social support</searchLink><br /><searchLink fieldCode="DE" term="%22Family+support%22">Family support</searchLink><br /><searchLink fieldCode="DE" term="%22Customer+satisfaction%22">Customer satisfaction</searchLink><br /><searchLink fieldCode="DE" term="%22East+Africans%22">East Africans</searchLink><br /><searchLink fieldCode="DE" term="%22School+health+services%22">School health services</searchLink><br /><searchLink fieldCode="DE" term="%22Labor+supply%22">Labor supply</searchLink><br /><searchLink fieldCode="DE" term="%22Children%22">Children</searchLink>
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  Data: <searchLink fieldCode="DE" term="%22Ethiopia%22">Ethiopia</searchLink><br /><searchLink fieldCode="DE" term="%22United+States%22">United States</searchLink>
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  Label: Abstract
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  Data: Collectively, Ethiopians and Eritreans represent one of the largest African immigrant groups in the US, yet no research to date exists on families from these communities raising autistic children. The purpose of our study was to examine the experiences of Ethiopian and Eritrean families of autistic children including experiences (1) receiving the autism diagnosis and interacting with healthcare providers, (2) obtaining services and supports for children (including satisfaction with services and barriers to care), and (3) accessing services and supports for caregivers and families (including needs and barriers to care). Ethiopian and Eritrean parents (N = 51) raising autistic children in the US completed an online survey. Parents reported limited prior knowledge of autism within their communities and had varied experiences with healthcare providers through the diagnostic process. They endorsed barriers to accessing care for their child and family supports (such as provider shortages and cost of services), service needs, and dissatisfaction with school-based and behavioral supports. Many parents reported a negative impact on workforce participation in order to meet their child's needs. Parents identified needs that would benefit their autistic children and families, such as accessible support groups to obtain relevant information. To our knowledge, this is the first systematic study exploring the experiences of Ethiopian and Eritrean families raising autistic children in the US. We discuss implications of our findings and recommendations for culturally responsive care. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
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  Data: <i>Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=180153694
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      – Type: doi
        Value: 10.1007/s10803-023-06102-7
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      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 9
        StartPage: 3899
    Subjects:
      – SubjectFull: Diagnosis of autism
        Type: general
      – SubjectFull: Health services accessibility
        Type: general
      – SubjectFull: Patients' families
        Type: general
      – SubjectFull: Medical personnel
        Type: general
      – SubjectFull: Medical care
        Type: general
      – SubjectFull: Health
        Type: general
      – SubjectFull: Cultural competence
        Type: general
      – SubjectFull: Information resources
        Type: general
      – SubjectFull: Labor demand
        Type: general
      – SubjectFull: Needs assessment
        Type: general
      – SubjectFull: Psychology of parents
        Type: general
      – SubjectFull: Psychology of caregivers
        Type: general
      – SubjectFull: Asperger's syndrome
        Type: general
      – SubjectFull: Social support
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      – SubjectFull: Family support
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      – SubjectFull: Customer satisfaction
        Type: general
      – SubjectFull: East Africans
        Type: general
      – SubjectFull: School health services
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      – SubjectFull: Labor supply
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      – SubjectFull: Children
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      – SubjectFull: Ethiopia
        Type: general
      – SubjectFull: United States
        Type: general
    Titles:
      – TitleFull: Identifying Needs of Ethiopian and Eritrean American Parents of Autistic Children.
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            NameFull: Ataro Adere, Azeb
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            NameFull: Dababnah, Sarah
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            NameFull: Habayeb, Serene
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            – D: 01
              M: 10
              Text: Oct2024
              Type: published
              Y: 2024
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