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Experiences of service and diagnosis among immigrant families of young children with suspected or diagnosed developmental disabilities.

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Title: Experiences of service and diagnosis among immigrant families of young children with suspected or diagnosed developmental disabilities.
Authors: Pearson, Emma, Opoku, Maxwell Peprah
Source: Ethnicity & Health. Nov2024, Vol. 29 Issue 8, p1036-1053. 18p.
Subjects: Immigrants, Health services accessibility, Children with disabilities, Research funding, Qualitative research, Interprofessional relations, Human beings, Interviewing, Parent attitudes, Diagnostic errors, Developmental disabilities, Longitudinal method, Thematic analysis, Trust, Cognition disorders, Communication, Early diagnosis
Geographic Terms: Australia
Abstract: Objectives: While early diagnosis is fundamental to the development of children with developmental disabilities (DD), limited attention has been paid to immigrant parents' experience of early encounters with systems when they begin seeking supports for their children with DD. This study aimed to contribute to better understanding of immigrant parents' experiences of early encounters with services for families and children with suspected or diagnosed DD. Design: A longitudinal, qualitative approach was adopted. Over 12 months, multiple interviews were conducted with four immigrant families with children aged between two and four years who were attending a mobile playgroup offering early learning supports for children with suspected or diagnosed DD in communities with low access to formal supports. During the first three months of the study, families were accompanied by the first author on weekly visits to the playgroup. Participant observations and informal discussions with staff delivering early intervention supports via the playgroup provided further insight into families' initial and on-going encounters with services and supports. During the remaining nine months, multiple interviews were conducted with participating families, to document their on-going experiences and encounters with medical practitioners and therapists. Results: Thematic analysis of data generated four key themes: Initial encounters with medical professionals, Confusion and 'missed' diagnosis, Gaps in understanding, collaboration and communication, and Families' desire to learn and implement strategies. Conclusion: Families made concerted efforts to locate appropriate supports. They also faced barriers including a lack of openness and genuine consultation, particularly in their encounters with health professionals. These barriers resulted in a level of mistrust and detachment from formalised supports. Results highlight the critical importance for health professionals of 'tuning into' family concerns through relationship-based approaches, in order to establish shared understanding and mutual respect between professionals and families, particularly for immigrant families seeking support for their young children. [ABSTRACT FROM AUTHOR]
Copyright of Ethnicity & Health is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Experiences of service and diagnosis among immigrant families of young children with suspected or diagnosed developmental disabilities.
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  Data: <searchLink fieldCode="JN" term="%22Ethnicity+%26+Health%22">Ethnicity & Health</searchLink>. Nov2024, Vol. 29 Issue 8, p1036-1053. 18p.
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  Data: Objectives: While early diagnosis is fundamental to the development of children with developmental disabilities (DD), limited attention has been paid to immigrant parents' experience of early encounters with systems when they begin seeking supports for their children with DD. This study aimed to contribute to better understanding of immigrant parents' experiences of early encounters with services for families and children with suspected or diagnosed DD. Design: A longitudinal, qualitative approach was adopted. Over 12 months, multiple interviews were conducted with four immigrant families with children aged between two and four years who were attending a mobile playgroup offering early learning supports for children with suspected or diagnosed DD in communities with low access to formal supports. During the first three months of the study, families were accompanied by the first author on weekly visits to the playgroup. Participant observations and informal discussions with staff delivering early intervention supports via the playgroup provided further insight into families' initial and on-going encounters with services and supports. During the remaining nine months, multiple interviews were conducted with participating families, to document their on-going experiences and encounters with medical practitioners and therapists. Results: Thematic analysis of data generated four key themes: Initial encounters with medical professionals, Confusion and 'missed' diagnosis, Gaps in understanding, collaboration and communication, and Families' desire to learn and implement strategies. Conclusion: Families made concerted efforts to locate appropriate supports. They also faced barriers including a lack of openness and genuine consultation, particularly in their encounters with health professionals. These barriers resulted in a level of mistrust and detachment from formalised supports. Results highlight the critical importance for health professionals of 'tuning into' family concerns through relationship-based approaches, in order to establish shared understanding and mutual respect between professionals and families, particularly for immigrant families seeking support for their young children. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Ethnicity & Health is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=180765251
RecordInfo BibRecord:
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    Identifiers:
      – Type: doi
        Value: 10.1080/13557858.2024.2402537
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      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 18
        StartPage: 1036
    Subjects:
      – SubjectFull: Immigrants
        Type: general
      – SubjectFull: Health services accessibility
        Type: general
      – SubjectFull: Children with disabilities
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Qualitative research
        Type: general
      – SubjectFull: Interprofessional relations
        Type: general
      – SubjectFull: Human beings
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Parent attitudes
        Type: general
      – SubjectFull: Diagnostic errors
        Type: general
      – SubjectFull: Developmental disabilities
        Type: general
      – SubjectFull: Longitudinal method
        Type: general
      – SubjectFull: Thematic analysis
        Type: general
      – SubjectFull: Trust
        Type: general
      – SubjectFull: Cognition disorders
        Type: general
      – SubjectFull: Communication
        Type: general
      – SubjectFull: Early diagnosis
        Type: general
      – SubjectFull: Australia
        Type: general
    Titles:
      – TitleFull: Experiences of service and diagnosis among immigrant families of young children with suspected or diagnosed developmental disabilities.
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            – D: 01
              M: 11
              Text: Nov2024
              Type: published
              Y: 2024
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