Embodied suffering: Uncovering the illness experiences of patients with severe psoriasis.
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| Title: | Embodied suffering: Uncovering the illness experiences of patients with severe psoriasis. |
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| Authors: | Lee, Lin‐Lin, Huo, An‐Ping, Chen, Shu‐Ling |
| Source: | Scandinavian Journal of Caring Sciences. Dec2024, Vol. 38 Issue 4, p1041-1049. 9p. |
| Subjects: | Psoriasis, Attitudes toward illness, Mental health, Qualitative research, Academic medical centers, Interviewing, Severity of illness index, Emotions, Judgment sampling, Descriptive statistics, Chronic diseases, Thematic analysis, Sound recordings, Research methodology, Patients' attitudes, Suffering, Self-perception |
| Geographic Terms: | Taiwan |
| Abstract: | Background: The visibility of skin lesions significantly burdens people with psoriasis, leading to social hostility and numerous emotional and psychological problems. These issues adversely affect self‐esteem, can result in chronic mental health challenges and cause numerous life problems. This study aimed to explore patients' long‐term experiences with severe psoriasis. Methods: A qualitative study was conducted with 20 patients with psoriasis (PASI ≥12) recruited from general and specialist dermatology practices in a regional teaching hospital in Taiwan. Interviews lasted 60–90 min and data were analysed using content analysis. Findings: A core theme emerged: 'Embodied suffering—life worse than death'. This overarching concept comprised three interrelated themes: (i) Experiencing physical suffering, (ii) Experiencing psychological suffering and (iii) Experiencing the stigma of suffering. Conclusion: This study highlights the holistic nature of suffering among individuals with severe psoriasis. It emphasises the need for healthcare professionals to consider the entirety of a patient's circumstances when addressing their suffering. [ABSTRACT FROM AUTHOR] |
| Copyright of Scandinavian Journal of Caring Sciences is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
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| Abstract: | Background: The visibility of skin lesions significantly burdens people with psoriasis, leading to social hostility and numerous emotional and psychological problems. These issues adversely affect self‐esteem, can result in chronic mental health challenges and cause numerous life problems. This study aimed to explore patients' long‐term experiences with severe psoriasis. Methods: A qualitative study was conducted with 20 patients with psoriasis (PASI ≥12) recruited from general and specialist dermatology practices in a regional teaching hospital in Taiwan. Interviews lasted 60–90 min and data were analysed using content analysis. Findings: A core theme emerged: 'Embodied suffering—life worse than death'. This overarching concept comprised three interrelated themes: (i) Experiencing physical suffering, (ii) Experiencing psychological suffering and (iii) Experiencing the stigma of suffering. Conclusion: This study highlights the holistic nature of suffering among individuals with severe psoriasis. It emphasises the need for healthcare professionals to consider the entirety of a patient's circumstances when addressing their suffering. [ABSTRACT FROM AUTHOR] |
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| ISSN: | 02839318 |
| DOI: | 10.1111/scs.13305 |
