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Embodied suffering: Uncovering the illness experiences of patients with severe psoriasis.

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Title: Embodied suffering: Uncovering the illness experiences of patients with severe psoriasis.
Authors: Lee, Lin‐Lin, Huo, An‐Ping, Chen, Shu‐Ling
Source: Scandinavian Journal of Caring Sciences. Dec2024, Vol. 38 Issue 4, p1041-1049. 9p.
Subjects: Psoriasis, Attitudes toward illness, Mental health, Qualitative research, Academic medical centers, Interviewing, Severity of illness index, Emotions, Judgment sampling, Descriptive statistics, Chronic diseases, Thematic analysis, Sound recordings, Research methodology, Patients' attitudes, Suffering, Self-perception
Geographic Terms: Taiwan
Abstract: Background: The visibility of skin lesions significantly burdens people with psoriasis, leading to social hostility and numerous emotional and psychological problems. These issues adversely affect self‐esteem, can result in chronic mental health challenges and cause numerous life problems. This study aimed to explore patients' long‐term experiences with severe psoriasis. Methods: A qualitative study was conducted with 20 patients with psoriasis (PASI ≥12) recruited from general and specialist dermatology practices in a regional teaching hospital in Taiwan. Interviews lasted 60–90 min and data were analysed using content analysis. Findings: A core theme emerged: 'Embodied suffering—life worse than death'. This overarching concept comprised three interrelated themes: (i) Experiencing physical suffering, (ii) Experiencing psychological suffering and (iii) Experiencing the stigma of suffering. Conclusion: This study highlights the holistic nature of suffering among individuals with severe psoriasis. It emphasises the need for healthcare professionals to consider the entirety of a patient's circumstances when addressing their suffering. [ABSTRACT FROM AUTHOR]
Copyright of Scandinavian Journal of Caring Sciences is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Embodied suffering: Uncovering the illness experiences of patients with severe psoriasis.
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  Data: <searchLink fieldCode="AR" term="%22Lee%2C+Lin‐Lin%22">Lee, Lin‐Lin</searchLink><br /><searchLink fieldCode="AR" term="%22Huo%2C+An‐Ping%22">Huo, An‐Ping</searchLink><br /><searchLink fieldCode="AR" term="%22Chen%2C+Shu‐Ling%22">Chen, Shu‐Ling</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22Scandinavian+Journal+of+Caring+Sciences%22">Scandinavian Journal of Caring Sciences</searchLink>. Dec2024, Vol. 38 Issue 4, p1041-1049. 9p.
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  Data: <searchLink fieldCode="DE" term="%22Psoriasis%22">Psoriasis</searchLink><br /><searchLink fieldCode="DE" term="%22Attitudes+toward+illness%22">Attitudes toward illness</searchLink><br /><searchLink fieldCode="DE" term="%22Mental+health%22">Mental health</searchLink><br /><searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Academic+medical+centers%22">Academic medical centers</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Severity+of+illness+index%22">Severity of illness index</searchLink><br /><searchLink fieldCode="DE" term="%22Emotions%22">Emotions</searchLink><br /><searchLink fieldCode="DE" term="%22Judgment+sampling%22">Judgment sampling</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Chronic+diseases%22">Chronic diseases</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Sound+recordings%22">Sound recordings</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Patients'+attitudes%22">Patients' attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Suffering%22">Suffering</searchLink><br /><searchLink fieldCode="DE" term="%22Self-perception%22">Self-perception</searchLink>
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  Label: Geographic Terms
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  Data: <searchLink fieldCode="DE" term="%22Taiwan%22">Taiwan</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Background: The visibility of skin lesions significantly burdens people with psoriasis, leading to social hostility and numerous emotional and psychological problems. These issues adversely affect self‐esteem, can result in chronic mental health challenges and cause numerous life problems. This study aimed to explore patients' long‐term experiences with severe psoriasis. Methods: A qualitative study was conducted with 20 patients with psoriasis (PASI ≥12) recruited from general and specialist dermatology practices in a regional teaching hospital in Taiwan. Interviews lasted 60–90 min and data were analysed using content analysis. Findings: A core theme emerged: 'Embodied suffering—life worse than death'. This overarching concept comprised three interrelated themes: (i) Experiencing physical suffering, (ii) Experiencing psychological suffering and (iii) Experiencing the stigma of suffering. Conclusion: This study highlights the holistic nature of suffering among individuals with severe psoriasis. It emphasises the need for healthcare professionals to consider the entirety of a patient's circumstances when addressing their suffering. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Scandinavian Journal of Caring Sciences is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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    Identifiers:
      – Type: doi
        Value: 10.1111/scs.13305
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 9
        StartPage: 1041
    Subjects:
      – SubjectFull: Psoriasis
        Type: general
      – SubjectFull: Attitudes toward illness
        Type: general
      – SubjectFull: Mental health
        Type: general
      – SubjectFull: Qualitative research
        Type: general
      – SubjectFull: Academic medical centers
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Severity of illness index
        Type: general
      – SubjectFull: Emotions
        Type: general
      – SubjectFull: Judgment sampling
        Type: general
      – SubjectFull: Descriptive statistics
        Type: general
      – SubjectFull: Chronic diseases
        Type: general
      – SubjectFull: Thematic analysis
        Type: general
      – SubjectFull: Sound recordings
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Patients' attitudes
        Type: general
      – SubjectFull: Suffering
        Type: general
      – SubjectFull: Self-perception
        Type: general
      – SubjectFull: Taiwan
        Type: general
    Titles:
      – TitleFull: Embodied suffering: Uncovering the illness experiences of patients with severe psoriasis.
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            NameFull: Lee, Lin‐Lin
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            NameFull: Huo, An‐Ping
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            NameFull: Chen, Shu‐Ling
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            – D: 01
              M: 12
              Text: Dec2024
              Type: published
              Y: 2024
          Identifiers:
            – Type: issn-print
              Value: 02839318
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            – Type: volume
              Value: 38
            – Type: issue
              Value: 4
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            – TitleFull: Scandinavian Journal of Caring Sciences
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