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Psychosocial Needs of People Living With Pleural Mesothelioma and Family Carers: A Mixed Methods Study.

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Title: Psychosocial Needs of People Living With Pleural Mesothelioma and Family Carers: A Mixed Methods Study.
Authors: Breen, Lauren J. (AUTHOR), Same, Anne (AUTHOR), Peddle‐McIntyre, Carolyn J. (AUTHOR), Sidhu, Calvin (AUTHOR), Fitzgerald, Deirdre (AUTHOR), Tan, Ai Ling (AUTHOR), Carey, Renee N. (AUTHOR), Wilson, Chanelle (AUTHOR), Lee, Y. C. Gary (AUTHOR)
Source: Psycho-Oncology. Nov2024, Vol. 33 Issue 11, p1-9. 9p.
Subjects: Health care teams, Medical needs assessment, Older men, Psychological distress, Quality of life, Complicated grief
Abstract: Background: Mesothelioma is a cancer of growing global incidence, especially in developing countries, with unique complex psychosocial impacts on patients and their carers. Aims: To provide a comprehensive understanding of the psychosocial needs of people living with pleural mesothelioma and family carers. Methods: A mixed methods design with 61 semi‐structured interviews and psychometrically validated questionnaires to assess pleural mesothelioma patients' (n = 36) quality of life and frailty and carers' (n = 25) caregiving experiences, quality of life, and pre‐loss prolonged grief symptoms. Results: People with mesothelioma (29 men, 7 women, aged 46–89 years) indicated moderate quality of life; 18 (50%) met criteria for frailty. Current carers (21 women, 4 men; aged 41–79 years) generally reported positive caregiving experiences and high quality of life; 5 (20%) scored in the range indicative of risk for prolonged grief disorder. Four themes were generated: a desire for tailored information with bespoke detail, assistance to coordinate tasks of treatment, improved social and peer support, and effective psychological services. Needs varied, with main concerns being about breaking the news to spouses/children, the impact of the disease and death on family, loss of personal future, managing psychological symptoms, and avoiding burden. Conclusions: These specific and unmet psychosocial needs provide a strong basis for individualised care pathways to address these needs via the integration of psychology into the multidisciplinary care team and the development and evaluation of mental health and wellbeing interventions for mesothelioma patients and carers. Doing so will reduce psychosocial distress and improve residual vitality. [ABSTRACT FROM AUTHOR]
Copyright of Psycho-Oncology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Psychosocial Needs of People Living With Pleural Mesothelioma and Family Carers: A Mixed Methods Study.
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  Data: Background: Mesothelioma is a cancer of growing global incidence, especially in developing countries, with unique complex psychosocial impacts on patients and their carers. Aims: To provide a comprehensive understanding of the psychosocial needs of people living with pleural mesothelioma and family carers. Methods: A mixed methods design with 61 semi‐structured interviews and psychometrically validated questionnaires to assess pleural mesothelioma patients' (n = 36) quality of life and frailty and carers' (n = 25) caregiving experiences, quality of life, and pre‐loss prolonged grief symptoms. Results: People with mesothelioma (29 men, 7 women, aged 46–89 years) indicated moderate quality of life; 18 (50%) met criteria for frailty. Current carers (21 women, 4 men; aged 41–79 years) generally reported positive caregiving experiences and high quality of life; 5 (20%) scored in the range indicative of risk for prolonged grief disorder. Four themes were generated: a desire for tailored information with bespoke detail, assistance to coordinate tasks of treatment, improved social and peer support, and effective psychological services. Needs varied, with main concerns being about breaking the news to spouses/children, the impact of the disease and death on family, loss of personal future, managing psychological symptoms, and avoiding burden. Conclusions: These specific and unmet psychosocial needs provide a strong basis for individualised care pathways to address these needs via the integration of psychology into the multidisciplinary care team and the development and evaluation of mental health and wellbeing interventions for mesothelioma patients and carers. Doing so will reduce psychosocial distress and improve residual vitality. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Psycho-Oncology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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              Text: Nov2024
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