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Family involvement in rehabilitation programmes for children and adolescents with acquired brain injury: A scoping literature review.

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Title: Family involvement in rehabilitation programmes for children and adolescents with acquired brain injury: A scoping literature review.
Authors: Jenkin, Taylor (AUTHOR), D'Cruz, Kate (AUTHOR), Botchway, Edith (AUTHOR), Muscara, Frank (AUTHOR), Anderson, Vicki (AUTHOR), Scheinberg, Adam (AUTHOR), Knight, Sarah (AUTHOR)
Source: Neuropsychological Rehabilitation. Jan2025, Vol. 35 Issue 1, p159-212. 54p.
Subjects: Support groups, Brain injuries, Treatment programs, Medical personnel, Teenagers
Abstract: Paediatric acquired brain injury (ABI) can adversely impact families, and it is widely accepted that families should be involved in the rehabilitation of children/adolescents with ABI. However, there is limited guidance about how to best involve families in paediatric ABI rehabilitation. Several programmes involving the families of children/adolescents with ABI have been developed, but there are no published reviews outlining their characteristics. This scoping literature review aimed to synthesize information about these programmes and develop an understanding of how families are involved in them. Four databases were systematically searched to identify sources of evidence that described programmes in paediatric ABI rehabilitation that involve family members. One hundred and eight sources of evidence describing 42 programmes were included. Programmes were categorized as: service coordination (n = 11), psychosocial (n = 17), support groups (n = 4), training/instruction (n = 9), and education (n = 1). Families' involvement in these programmes varied across programme development, delivery, and evaluation stages. The findings of this scoping literature review outline how families can be involved in paediatric ABI rehabilitation. While this review outlines many approaches to supporting families, it also highlights the need for models of family-centred care to better articulate how clinicians and services can involve families in paediatric ABI rehabilitation. [ABSTRACT FROM AUTHOR]
Copyright of Neuropsychological Rehabilitation is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Family involvement in rehabilitation programmes for children and adolescents with acquired brain injury: A scoping literature review.
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  Data: <searchLink fieldCode="JN" term="%22Neuropsychological+Rehabilitation%22">Neuropsychological Rehabilitation</searchLink>. Jan2025, Vol. 35 Issue 1, p159-212. 54p.
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  Data: <searchLink fieldCode="DE" term="%22Support+groups%22">Support groups</searchLink><br /><searchLink fieldCode="DE" term="%22Brain+injuries%22">Brain injuries</searchLink><br /><searchLink fieldCode="DE" term="%22Treatment+programs%22">Treatment programs</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+personnel%22">Medical personnel</searchLink><br /><searchLink fieldCode="DE" term="%22Teenagers%22">Teenagers</searchLink>
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  Data: Paediatric acquired brain injury (ABI) can adversely impact families, and it is widely accepted that families should be involved in the rehabilitation of children/adolescents with ABI. However, there is limited guidance about how to best involve families in paediatric ABI rehabilitation. Several programmes involving the families of children/adolescents with ABI have been developed, but there are no published reviews outlining their characteristics. This scoping literature review aimed to synthesize information about these programmes and develop an understanding of how families are involved in them. Four databases were systematically searched to identify sources of evidence that described programmes in paediatric ABI rehabilitation that involve family members. One hundred and eight sources of evidence describing 42 programmes were included. Programmes were categorized as: service coordination (n = 11), psychosocial (n = 17), support groups (n = 4), training/instruction (n = 9), and education (n = 1). Families' involvement in these programmes varied across programme development, delivery, and evaluation stages. The findings of this scoping literature review outline how families can be involved in paediatric ABI rehabilitation. While this review outlines many approaches to supporting families, it also highlights the need for models of family-centred care to better articulate how clinicians and services can involve families in paediatric ABI rehabilitation. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Neuropsychological Rehabilitation is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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      – Type: doi
        Value: 10.1080/09602011.2024.2330141
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      – Code: eng
        Text: English
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        PageCount: 54
        StartPage: 159
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      – SubjectFull: Support groups
        Type: general
      – SubjectFull: Brain injuries
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      – SubjectFull: Treatment programs
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      – SubjectFull: Medical personnel
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      – SubjectFull: Teenagers
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              Text: Jan2025
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              Y: 2025
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