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Human-Centered Design to Create an Emergency Care Action Plan for Children With Medical Complexity.

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Title: Human-Centered Design to Create an Emergency Care Action Plan for Children With Medical Complexity.
Authors: Pulcini, Christian D., Broder-Fingert, Sarabeth, Callas, Peter, Dayan, Peter S., Drath, Brittany, Gravel-Pucillo, Callan, Kuo, Dennis Z., Lamberson, Miles, Mistry, Rakesh D., Palaza, Abigail, Stevens, Martha, Yeager, Jan, Stapleton, Renee D.
Source: Pediatrics. Mar2025, Vol. 155 Issue 3, p1-12. 1p.
Subjects: Empathy, Health services accessibility, Research funding, Medical quality control, Universal design, Chronic diseases in children, Medical care, Interviewing, Hospital emergency services, Evaluation of medical care, Continuum of care, Descriptive statistics, Workflow, Pediatrics, Surveys, Research methodology, Interpersonal relations, Medical needs assessment, Data analysis software, Patient participation
Abstract: Human-centered design (HCD) is rooted in building trust with end users by developing empathetic understanding of key partners' needs, continuous engagement, and iterative solution creation and refinement. One of the core tenets of HCD in health care is that consistent end-user engagement will result in better health outcomes. Children with medical complexity (CMC), a subset of children and youth with special health care needs, are characterized by multiple chronic health care conditions and high health care use, including emergency department visits. To address the known challenges with providing high-quality care for CMC in emergency settings, emergency information forms are currently recommended to provide insights into existing health complexities at the point of care. However, these forms have faced significant implementation challenges that lead to limited stakeholder buy-in and lack of incorporation into current emergency care workflows. We present HCD as a strategy to aid in the creation and optimization of an emergency care action plan (ECAP) for CMC. The objectives of this communication are, therefore, as follows: (1) to demonstrate HCD as an accessible approach to delineate and address pediatric care challenges within a complex health care system and (2) to illustrate a commonly used HCD methodological approach to address implementation challenges of an emergency care planning tool through the creation of an ECAP for CMC. [ABSTRACT FROM AUTHOR]
Copyright of Pediatrics is the property of American Academy of Pediatrics and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Human-Centered Design to Create an Emergency Care Action Plan for Children With Medical Complexity.
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  Data: <searchLink fieldCode="AR" term="%22Pulcini%2C+Christian+D%2E%22">Pulcini, Christian D.</searchLink><br /><searchLink fieldCode="AR" term="%22Broder-Fingert%2C+Sarabeth%22">Broder-Fingert, Sarabeth</searchLink><br /><searchLink fieldCode="AR" term="%22Callas%2C+Peter%22">Callas, Peter</searchLink><br /><searchLink fieldCode="AR" term="%22Dayan%2C+Peter+S%2E%22">Dayan, Peter S.</searchLink><br /><searchLink fieldCode="AR" term="%22Drath%2C+Brittany%22">Drath, Brittany</searchLink><br /><searchLink fieldCode="AR" term="%22Gravel-Pucillo%2C+Callan%22">Gravel-Pucillo, Callan</searchLink><br /><searchLink fieldCode="AR" term="%22Kuo%2C+Dennis+Z%2E%22">Kuo, Dennis Z.</searchLink><br /><searchLink fieldCode="AR" term="%22Lamberson%2C+Miles%22">Lamberson, Miles</searchLink><br /><searchLink fieldCode="AR" term="%22Mistry%2C+Rakesh+D%2E%22">Mistry, Rakesh D.</searchLink><br /><searchLink fieldCode="AR" term="%22Palaza%2C+Abigail%22">Palaza, Abigail</searchLink><br /><searchLink fieldCode="AR" term="%22Stevens%2C+Martha%22">Stevens, Martha</searchLink><br /><searchLink fieldCode="AR" term="%22Yeager%2C+Jan%22">Yeager, Jan</searchLink><br /><searchLink fieldCode="AR" term="%22Stapleton%2C+Renee+D%2E%22">Stapleton, Renee D.</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22Pediatrics%22">Pediatrics</searchLink>. Mar2025, Vol. 155 Issue 3, p1-12. 1p.
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  Data: Human-centered design (HCD) is rooted in building trust with end users by developing empathetic understanding of key partners' needs, continuous engagement, and iterative solution creation and refinement. One of the core tenets of HCD in health care is that consistent end-user engagement will result in better health outcomes. Children with medical complexity (CMC), a subset of children and youth with special health care needs, are characterized by multiple chronic health care conditions and high health care use, including emergency department visits. To address the known challenges with providing high-quality care for CMC in emergency settings, emergency information forms are currently recommended to provide insights into existing health complexities at the point of care. However, these forms have faced significant implementation challenges that lead to limited stakeholder buy-in and lack of incorporation into current emergency care workflows. We present HCD as a strategy to aid in the creation and optimization of an emergency care action plan (ECAP) for CMC. The objectives of this communication are, therefore, as follows: (1) to demonstrate HCD as an accessible approach to delineate and address pediatric care challenges within a complex health care system and (2) to illustrate a commonly used HCD methodological approach to address implementation challenges of an emergency care planning tool through the creation of an ECAP for CMC. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Pediatrics is the property of American Academy of Pediatrics and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=183368412
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      – Type: doi
        Value: 10.1542/peds.2024-069125
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      – Code: eng
        Text: English
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      – SubjectFull: Empathy
        Type: general
      – SubjectFull: Health services accessibility
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      – SubjectFull: Research funding
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      – SubjectFull: Chronic diseases in children
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      – SubjectFull: Medical care
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      – SubjectFull: Interviewing
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      – SubjectFull: Hospital emergency services
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      – SubjectFull: Evaluation of medical care
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      – SubjectFull: Pediatrics
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      – SubjectFull: Surveys
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      – SubjectFull: Research methodology
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      – SubjectFull: Interpersonal relations
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      – SubjectFull: Medical needs assessment
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      – SubjectFull: Data analysis software
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      – SubjectFull: Patient participation
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              Text: Mar2025
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