Bibliographic Details
| Title: |
Human-Centered Design to Create an Emergency Care Action Plan for Children With Medical Complexity. |
| Authors: |
Pulcini, Christian D., Broder-Fingert, Sarabeth, Callas, Peter, Dayan, Peter S., Drath, Brittany, Gravel-Pucillo, Callan, Kuo, Dennis Z., Lamberson, Miles, Mistry, Rakesh D., Palaza, Abigail, Stevens, Martha, Yeager, Jan, Stapleton, Renee D. |
| Source: |
Pediatrics. Mar2025, Vol. 155 Issue 3, p1-12. 1p. |
| Subjects: |
Empathy, Health services accessibility, Research funding, Medical quality control, Universal design, Chronic diseases in children, Medical care, Interviewing, Hospital emergency services, Evaluation of medical care, Continuum of care, Descriptive statistics, Workflow, Pediatrics, Surveys, Research methodology, Interpersonal relations, Medical needs assessment, Data analysis software, Patient participation |
| Abstract: |
Human-centered design (HCD) is rooted in building trust with end users by developing empathetic understanding of key partners' needs, continuous engagement, and iterative solution creation and refinement. One of the core tenets of HCD in health care is that consistent end-user engagement will result in better health outcomes. Children with medical complexity (CMC), a subset of children and youth with special health care needs, are characterized by multiple chronic health care conditions and high health care use, including emergency department visits. To address the known challenges with providing high-quality care for CMC in emergency settings, emergency information forms are currently recommended to provide insights into existing health complexities at the point of care. However, these forms have faced significant implementation challenges that lead to limited stakeholder buy-in and lack of incorporation into current emergency care workflows. We present HCD as a strategy to aid in the creation and optimization of an emergency care action plan (ECAP) for CMC. The objectives of this communication are, therefore, as follows: (1) to demonstrate HCD as an accessible approach to delineate and address pediatric care challenges within a complex health care system and (2) to illustrate a commonly used HCD methodological approach to address implementation challenges of an emergency care planning tool through the creation of an ECAP for CMC. [ABSTRACT FROM AUTHOR] |
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| Database: |
Psychology and Behavioral Sciences Collection |
