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'Who Listens to the Listener, Who Cares for the Carer?' A Cross‐Sectional Study of Social Connectedness and Sleep Experiences of Young Siblings of Neurodivergent People.

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Title: 'Who Listens to the Listener, Who Cares for the Carer?' A Cross‐Sectional Study of Social Connectedness and Sleep Experiences of Young Siblings of Neurodivergent People.
Authors: Pavlopoulou, G., Sim, E., Peter, S., Gardani, M., Beevers, V., Kassa, C., Sideropoulos, V.
Source: Child: Care, Health & Development. Jan2025, Vol. 51 Issue 1, p1-14. 14p.
Subjects: Siblings, Empathy, Qualitative research, Neurodiversity, Loneliness, Anxiety, Descriptive statistics, Thematic analysis, Sleep, Social support, Data analysis software, Psychosocial factors, Caregiver attitudes
Abstract: Background: A growing body of research postlockdown has established that loneliness and sleep problems are prominent in the life of all people and in particular in neurodivergent people and their parents/carers. The present study explores the experience of loneliness and sleep in siblings of neurodivergent young people. Methods: Thirty‐eight (n = 38) young siblings (Mage = 16.41, 68.4% female) completed an online survey on sleep, loneliness and daytime functioning, answering a set of qualitative questions. Results: Thematic analysis revealed that their sleep was affected by personal anxieties and neurodivergent siblings' parasomnias. Definition of loneliness included perceived lack of understanding and empathy in wider society, assuming a lonesome responsibility, growing up faster than peers and an emptiness within and without. Siblings provided brief contributions on how schools and the wider society can help them. Limitations include small sample size and an uneven representation of gender and disability groups in the sample. Recommendations for school and societal support are also discussed. Conclusion: This preliminary exploration helped define their caring responsibilities, social connectedness and sleep needs. Our findings call for a holistic and personalised approach to healthcare, including social and psychological support, for the whole family including neurodivergent and neurotypical siblings. [ABSTRACT FROM AUTHOR]
Copyright of Child: Care, Health & Development is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Background: A growing body of research postlockdown has established that loneliness and sleep problems are prominent in the life of all people and in particular in neurodivergent people and their parents/carers. The present study explores the experience of loneliness and sleep in siblings of neurodivergent young people. Methods: Thirty‐eight (n = 38) young siblings (Mage = 16.41, 68.4% female) completed an online survey on sleep, loneliness and daytime functioning, answering a set of qualitative questions. Results: Thematic analysis revealed that their sleep was affected by personal anxieties and neurodivergent siblings' parasomnias. Definition of loneliness included perceived lack of understanding and empathy in wider society, assuming a lonesome responsibility, growing up faster than peers and an emptiness within and without. Siblings provided brief contributions on how schools and the wider society can help them. Limitations include small sample size and an uneven representation of gender and disability groups in the sample. Recommendations for school and societal support are also discussed. Conclusion: This preliminary exploration helped define their caring responsibilities, social connectedness and sleep needs. Our findings call for a holistic and personalised approach to healthcare, including social and psychological support, for the whole family including neurodivergent and neurotypical siblings. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Child: Care, Health & Development is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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        Value: 10.1111/cch.70014
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        Text: English
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      – SubjectFull: Siblings
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      – SubjectFull: Empathy
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      – SubjectFull: Qualitative research
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      – SubjectFull: Neurodiversity
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      – SubjectFull: Loneliness
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      – SubjectFull: Anxiety
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      – SubjectFull: Social support
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      – TitleFull: 'Who Listens to the Listener, Who Cares for the Carer?' A Cross‐Sectional Study of Social Connectedness and Sleep Experiences of Young Siblings of Neurodivergent People.
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              Text: Jan2025
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