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"I think her life got so much better": parents' perceptions of children's quality of life following treatment of tracheomalacia with aortopexy.

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Title: "I think her life got so much better": parents' perceptions of children's quality of life following treatment of tracheomalacia with aortopexy.
Authors: Brockbank, Bethany L. (AUTHOR), Dewar, Greg S. J. (AUTHOR), Hewitt, Richard J. D. (AUTHOR), Butler, Colin C. R. (AUTHOR), Wray, Jo (AUTHOR)
Source: Quality of Life Research. Apr2025, Vol. 34 Issue 4, p1045-1058. 14p.
Subjects: Quality of life, Children's health, Treatment effectiveness, Tracheotomy, Holistic nursing, Parent attitudes, Operative surgery
Abstract: Background: Aortopexy is a procedure to reduce pressure on the trachea in children with severe tracheomalacia. Health-related quality of life (HRQoL) has not been studied in children who have undergone aortopexy; we aimed to explore parents' perceptions of their child's HRQoL before and after aortopexy. Methods: Parents of children < 18 years who underwent aortopexy at a quaternary specialist centre were purposively sampled and invited to participate in a semi-structured interview. Data were analysed using reflective thematic and content analysis. Results: Eight interviews (23–56 min) were completed with parents whose children were aged 1.9–12.1 years. HRQoL is explored through themes: a challenging diagnosis, lifechanging, and an understanding of limitations. Parents struggled to obtain a diagnosis of tracheomalacia while their child experienced serious symptoms. Aortopexy was seen as life-saving and allowed a return to family life. Airway safety, having their health and achieving a better quality of life were important outcomes of the procedure. Conclusion: Quality of life following aortopexy was perceived to be greatly improved. Children still struggled in aspects of their life, however families worked within their child's limitations, appreciating the life-saving nature of the intervention, and accepting the complexities of their child's comorbidities. Holistic interventions are important for those at risk of poor HRQoL outcomes. [ABSTRACT FROM AUTHOR]
Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: &quot;I think her life got so much better&quot;: parents&#39; perceptions of children&#39;s quality of life following treatment of tracheomalacia with aortopexy.
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  Data: &lt;searchLink fieldCode=&quot;JN&quot; term=&quot;%22Quality+of+Life+Research%22&quot;&gt;Quality of Life Research&lt;/searchLink&gt;. Apr2025, Vol. 34 Issue 4, p1045-1058. 14p.
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  Data: Background: Aortopexy is a procedure to reduce pressure on the trachea in children with severe tracheomalacia. Health-related quality of life (HRQoL) has not been studied in children who have undergone aortopexy; we aimed to explore parents&#39; perceptions of their child&#39;s HRQoL before and after aortopexy. Methods: Parents of children &lt; 18 years who underwent aortopexy at a quaternary specialist centre were purposively sampled and invited to participate in a semi-structured interview. Data were analysed using reflective thematic and content analysis. Results: Eight interviews (23–56 min) were completed with parents whose children were aged 1.9–12.1 years. HRQoL is explored through themes: a challenging diagnosis, lifechanging, and an understanding of limitations. Parents struggled to obtain a diagnosis of tracheomalacia while their child experienced serious symptoms. Aortopexy was seen as life-saving and allowed a return to family life. Airway safety, having their health and achieving a better quality of life were important outcomes of the procedure. Conclusion: Quality of life following aortopexy was perceived to be greatly improved. Children still struggled in aspects of their life, however families worked within their child&#39;s limitations, appreciating the life-saving nature of the intervention, and accepting the complexities of their child&#39;s comorbidities. Holistic interventions are important for those at risk of poor HRQoL outcomes. [ABSTRACT FROM AUTHOR]
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  Data: &lt;i&gt;Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder&#39;s express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.&lt;/i&gt; (Copyright applies to all Abstracts.)
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        Value: 10.1007/s11136-024-03888-6
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        Text: English
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        StartPage: 1045
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        Type: general
      – SubjectFull: Children's health
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      – SubjectFull: Treatment effectiveness
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      – TitleFull: "I think her life got so much better": parents' perceptions of children's quality of life following treatment of tracheomalacia with aortopexy.
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              Text: Apr2025
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