'Do I actually even need all these tablets?' A qualitative study exploring deprescribing decision-making for people in receipt of palliative care and their family members.
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| Title: | 'Do I actually even need all these tablets?' A qualitative study exploring deprescribing decision-making for people in receipt of palliative care and their family members. |
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| Authors: | Robinson-Barella, Anna, Richardson, Charlotte Lucy, Bayley, Zana, Husband, Andy, Bojke, Rona, Bojke, Andy, Quibell, Rachel, Baker, Lisa, McDougall, Emma, Exley, Catherine, Hanratty, Barbara, Elverson, Joanna, Jansen, Jesse, Todd, Adam |
| Source: | Palliative Medicine. May2025, Vol. 39 Issue 5, p543-552. 10p. |
| Subjects: | Palliative treatment, Qualitative research, Research funding, Interviewing, Deprescribing, Polypharmacy, Home environment, Heart failure, Reflection (Philosophy), Experience, Thematic analysis, Nursing care facilities, Research, Research methodology, Obstructive lung diseases, Patient decision making, Extended families, Tumors, Psychosocial factors, Patients' attitudes, Hospice care, Motor neuron diseases, Pulmonary fibrosis |
| Abstract: | Background: For people in receipt of palliative care, where polypharmacy is common and medication burden is high, there remains limited knowledge around the decision-making processes that underpin deprescribing; for example, recent deprescribing studies have focused on wider issues of identifying polypharmacy in palliative care contexts. However, little is known about the specific challenges of, and preferences towards, decision-making to support the deprescribing for people in receipt of palliative care. Aim: To explore decision-making processes that underpin deprescribing approaches, based on the experiences of people in receipt of palliative care, and their family member(s). Design: An explorative qualitative study involving in-person semi-structured interviews, analysed using reflexive thematic analysis. Setting/participants: Twenty-five semi-structured interviews were conducted with people in receipt of palliative care (n = 25), where 12 of these interviews were undertaken as dyads, with both the patient and a family member together. Interviews were undertaken across a range of settings, spanning: hospice outpatient day units (n = 11), hospice inpatient wards (n = 4), care home (n = 1) and patients' own homes (n = 9), and involved people with diverse diagnoses (including: cancer 52%, heart failure 20%, motor neurone disease 12%, pulmonary fibrosis 4% and chronic obstructive pulmonary disease 4%). Results: Two overarching themes were developed – the first reflected the need to address patient understanding by 'laying the foundations of deprescribing decision-making'. The second theme, 'having a voice in deprescribing decision-making', reflected desires to (pro)-actively involve patients and their family member(s) within these processes. Conclusion: There is a need to take a balanced, person-centred and shared approach to deprescribing decision-making for people receiving palliative care. Co-design strategies offer one approach to further explore this. [ABSTRACT FROM AUTHOR] |
| Copyright of Palliative Medicine is the property of Sage Publications Inc. and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 184747411 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: 'Do I actually even need all these tablets?' A qualitative study exploring deprescribing decision-making for people in receipt of palliative care and their family members. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Robinson-Barella%2C+Anna%22">Robinson-Barella, Anna</searchLink><br /><searchLink fieldCode="AR" term="%22Richardson%2C+Charlotte+Lucy%22">Richardson, Charlotte Lucy</searchLink><br /><searchLink fieldCode="AR" term="%22Bayley%2C+Zana%22">Bayley, Zana</searchLink><br /><searchLink fieldCode="AR" term="%22Husband%2C+Andy%22">Husband, Andy</searchLink><br /><searchLink fieldCode="AR" term="%22Bojke%2C+Rona%22">Bojke, Rona</searchLink><br /><searchLink fieldCode="AR" term="%22Bojke%2C+Andy%22">Bojke, Andy</searchLink><br /><searchLink fieldCode="AR" term="%22Quibell%2C+Rachel%22">Quibell, Rachel</searchLink><br /><searchLink fieldCode="AR" term="%22Baker%2C+Lisa%22">Baker, Lisa</searchLink><br /><searchLink fieldCode="AR" term="%22McDougall%2C+Emma%22">McDougall, Emma</searchLink><br /><searchLink fieldCode="AR" term="%22Exley%2C+Catherine%22">Exley, Catherine</searchLink><br /><searchLink fieldCode="AR" term="%22Hanratty%2C+Barbara%22">Hanratty, Barbara</searchLink><br /><searchLink fieldCode="AR" term="%22Elverson%2C+Joanna%22">Elverson, Joanna</searchLink><br /><searchLink fieldCode="AR" term="%22Jansen%2C+Jesse%22">Jansen, Jesse</searchLink><br /><searchLink fieldCode="AR" term="%22Todd%2C+Adam%22">Todd, Adam</searchLink> – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Palliative+Medicine%22">Palliative Medicine</searchLink>. May2025, Vol. 39 Issue 5, p543-552. 10p. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Palliative+treatment%22">Palliative treatment</searchLink><br /><searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Deprescribing%22">Deprescribing</searchLink><br /><searchLink fieldCode="DE" term="%22Polypharmacy%22">Polypharmacy</searchLink><br /><searchLink fieldCode="DE" term="%22Home+environment%22">Home environment</searchLink><br /><searchLink fieldCode="DE" term="%22Heart+failure%22">Heart failure</searchLink><br /><searchLink fieldCode="DE" term="%22Reflection+%28Philosophy%29%22">Reflection (Philosophy)</searchLink><br /><searchLink fieldCode="DE" term="%22Experience%22">Experience</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Nursing+care+facilities%22">Nursing care facilities</searchLink><br /><searchLink fieldCode="DE" term="%22Research%22">Research</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Obstructive+lung+diseases%22">Obstructive lung diseases</searchLink><br /><searchLink fieldCode="DE" term="%22Patient+decision+making%22">Patient decision making</searchLink><br /><searchLink fieldCode="DE" term="%22Extended+families%22">Extended families</searchLink><br /><searchLink fieldCode="DE" term="%22Tumors%22">Tumors</searchLink><br /><searchLink fieldCode="DE" term="%22Psychosocial+factors%22">Psychosocial factors</searchLink><br /><searchLink fieldCode="DE" term="%22Patients'+attitudes%22">Patients' attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Hospice+care%22">Hospice care</searchLink><br /><searchLink fieldCode="DE" term="%22Motor+neuron+diseases%22">Motor neuron diseases</searchLink><br /><searchLink fieldCode="DE" term="%22Pulmonary+fibrosis%22">Pulmonary fibrosis</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Background: For people in receipt of palliative care, where polypharmacy is common and medication burden is high, there remains limited knowledge around the decision-making processes that underpin deprescribing; for example, recent deprescribing studies have focused on wider issues of identifying polypharmacy in palliative care contexts. However, little is known about the specific challenges of, and preferences towards, decision-making to support the deprescribing for people in receipt of palliative care. Aim: To explore decision-making processes that underpin deprescribing approaches, based on the experiences of people in receipt of palliative care, and their family member(s). Design: An explorative qualitative study involving in-person semi-structured interviews, analysed using reflexive thematic analysis. Setting/participants: Twenty-five semi-structured interviews were conducted with people in receipt of palliative care (n = 25), where 12 of these interviews were undertaken as dyads, with both the patient and a family member together. Interviews were undertaken across a range of settings, spanning: hospice outpatient day units (n = 11), hospice inpatient wards (n = 4), care home (n = 1) and patients' own homes (n = 9), and involved people with diverse diagnoses (including: cancer 52%, heart failure 20%, motor neurone disease 12%, pulmonary fibrosis 4% and chronic obstructive pulmonary disease 4%). Results: Two overarching themes were developed – the first reflected the need to address patient understanding by 'laying the foundations of deprescribing decision-making'. The second theme, 'having a voice in deprescribing decision-making', reflected desires to (pro)-actively involve patients and their family member(s) within these processes. Conclusion: There is a need to take a balanced, person-centred and shared approach to deprescribing decision-making for people receiving palliative care. Co-design strategies offer one approach to further explore this. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Palliative Medicine is the property of Sage Publications Inc. and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1177/02692163251327900 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 10 StartPage: 543 Subjects: – SubjectFull: Palliative treatment Type: general – SubjectFull: Qualitative research Type: general – SubjectFull: Research funding Type: general – SubjectFull: Interviewing Type: general – SubjectFull: Deprescribing Type: general – SubjectFull: Polypharmacy Type: general – SubjectFull: Home environment Type: general – SubjectFull: Heart failure Type: general – SubjectFull: Reflection (Philosophy) Type: general – SubjectFull: Experience Type: general – SubjectFull: Thematic analysis Type: general – SubjectFull: Nursing care facilities Type: general – SubjectFull: Research Type: general – SubjectFull: Research methodology Type: general – SubjectFull: Obstructive lung diseases Type: general – SubjectFull: Patient decision making Type: general – SubjectFull: Extended families Type: general – SubjectFull: Tumors Type: general – SubjectFull: Psychosocial factors Type: general – SubjectFull: Patients' attitudes Type: general – SubjectFull: Hospice care Type: general – SubjectFull: Motor neuron diseases Type: general – SubjectFull: Pulmonary fibrosis Type: general Titles: – TitleFull: 'Do I actually even need all these tablets?' A qualitative study exploring deprescribing decision-making for people in receipt of palliative care and their family members. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Robinson-Barella, Anna – PersonEntity: Name: NameFull: Richardson, Charlotte Lucy – PersonEntity: Name: NameFull: Bayley, Zana – PersonEntity: Name: NameFull: Husband, Andy – PersonEntity: Name: NameFull: Bojke, Rona – PersonEntity: Name: NameFull: Bojke, Andy – PersonEntity: Name: NameFull: Quibell, Rachel – PersonEntity: Name: NameFull: Baker, Lisa – PersonEntity: Name: NameFull: McDougall, Emma – PersonEntity: Name: NameFull: Exley, Catherine – PersonEntity: Name: NameFull: Hanratty, Barbara – PersonEntity: Name: NameFull: Elverson, Joanna – PersonEntity: Name: NameFull: Jansen, Jesse – PersonEntity: Name: NameFull: Todd, Adam IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 05 Text: May2025 Type: published Y: 2025 Identifiers: – Type: issn-print Value: 02692163 Numbering: – Type: volume Value: 39 – Type: issue Value: 5 Titles: – TitleFull: Palliative Medicine Type: main |
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