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A Qualitative Study Exploring Ways to Support Parent Caregivers of Adults With Intellectual and Developmental Disabilities.

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Title: A Qualitative Study Exploring Ways to Support Parent Caregivers of Adults With Intellectual and Developmental Disabilities.
Authors: Sanderson, Kelli A. (AUTHOR), Burke, Meghan M. (AUTHOR), Bumble, Jennifer L. (AUTHOR)
Source: Journal of Applied Research in Intellectual Disabilities. Mar2025, Vol. 38 Issue 2, p1-12. 12p.
Subjects: Parents, Medical care use, Qualitative research, Services for caregivers, Descriptive statistics, Intellectual disabilities, Developmental disabilities, Surveys, Thematic analysis, Patient-centered care, Adult children, Financial management, Social support, Adults
Abstract: Background: Many parents are the primary caregivers for their adult children with intellectual and/or developmental disabilities. While there can be many benefits of caregiving, there can also be negative consequences for the parent caregiver and, in turn, for their adult child with intellectual and/or developmental disabilities. Given the critical care that parents provide to their adult children with intellectual and/or developmental disabilities, we aimed to understand the supports parents need to be effective caregivers. Method: Qualitative data (write‐in responses) from a national survey completed by 315 parents of adults with intellectual and/or developmental disabilities were analysed using thematic analysis. Results: Four themes emerged from the data, including the need fortangible support, social support, help navigating disability services and resources, and assistance with future planning. Conclusions: Our findings point to the need for financial compensation for parent caregivers of adults with intellectual and/or developmental disabilities, enhanced disability services, and spaces for families to connect and share resources. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Applied Research in Intellectual Disabilities is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: A Qualitative Study Exploring Ways to Support Parent Caregivers of Adults With Intellectual and Developmental Disabilities.
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  Data: <searchLink fieldCode="AR" term="%22Sanderson%2C+Kelli+A%2E%22">Sanderson, Kelli A.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Burke%2C+Meghan+M%2E%22">Burke, Meghan M.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Bumble%2C+Jennifer+L%2E%22">Bumble, Jennifer L.</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Journal+of+Applied+Research+in+Intellectual+Disabilities%22">Journal of Applied Research in Intellectual Disabilities</searchLink>. Mar2025, Vol. 38 Issue 2, p1-12. 12p.
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  Data: <searchLink fieldCode="DE" term="%22Parents%22">Parents</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+care+use%22">Medical care use</searchLink><br /><searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Services+for+caregivers%22">Services for caregivers</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Intellectual+disabilities%22">Intellectual disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Developmental+disabilities%22">Developmental disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Surveys%22">Surveys</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Patient-centered+care%22">Patient-centered care</searchLink><br /><searchLink fieldCode="DE" term="%22Adult+children%22">Adult children</searchLink><br /><searchLink fieldCode="DE" term="%22Financial+management%22">Financial management</searchLink><br /><searchLink fieldCode="DE" term="%22Social+support%22">Social support</searchLink><br /><searchLink fieldCode="DE" term="%22Adults%22">Adults</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Background: Many parents are the primary caregivers for their adult children with intellectual and/or developmental disabilities. While there can be many benefits of caregiving, there can also be negative consequences for the parent caregiver and, in turn, for their adult child with intellectual and/or developmental disabilities. Given the critical care that parents provide to their adult children with intellectual and/or developmental disabilities, we aimed to understand the supports parents need to be effective caregivers. Method: Qualitative data (write‐in responses) from a national survey completed by 315 parents of adults with intellectual and/or developmental disabilities were analysed using thematic analysis. Results: Four themes emerged from the data, including the need fortangible support, social support, help navigating disability services and resources, and assistance with future planning. Conclusions: Our findings point to the need for financial compensation for parent caregivers of adults with intellectual and/or developmental disabilities, enhanced disability services, and spaces for families to connect and share resources. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Journal of Applied Research in Intellectual Disabilities is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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    Identifiers:
      – Type: doi
        Value: 10.1111/jar.70025
    Languages:
      – Code: eng
        Text: English
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        PageCount: 12
        StartPage: 1
    Subjects:
      – SubjectFull: Parents
        Type: general
      – SubjectFull: Medical care use
        Type: general
      – SubjectFull: Qualitative research
        Type: general
      – SubjectFull: Services for caregivers
        Type: general
      – SubjectFull: Descriptive statistics
        Type: general
      – SubjectFull: Intellectual disabilities
        Type: general
      – SubjectFull: Developmental disabilities
        Type: general
      – SubjectFull: Surveys
        Type: general
      – SubjectFull: Thematic analysis
        Type: general
      – SubjectFull: Patient-centered care
        Type: general
      – SubjectFull: Adult children
        Type: general
      – SubjectFull: Financial management
        Type: general
      – SubjectFull: Social support
        Type: general
      – SubjectFull: Adults
        Type: general
    Titles:
      – TitleFull: A Qualitative Study Exploring Ways to Support Parent Caregivers of Adults With Intellectual and Developmental Disabilities.
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            NameFull: Sanderson, Kelli A.
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            NameFull: Burke, Meghan M.
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            NameFull: Bumble, Jennifer L.
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              Text: Mar2025
              Type: published
              Y: 2025
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