A Qualitative Study Exploring Ways to Support Parent Caregivers of Adults With Intellectual and Developmental Disabilities.
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| Title: | A Qualitative Study Exploring Ways to Support Parent Caregivers of Adults With Intellectual and Developmental Disabilities. |
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| Authors: | Sanderson, Kelli A. (AUTHOR), Burke, Meghan M. (AUTHOR), Bumble, Jennifer L. (AUTHOR) |
| Source: | Journal of Applied Research in Intellectual Disabilities. Mar2025, Vol. 38 Issue 2, p1-12. 12p. |
| Subjects: | Parents, Medical care use, Qualitative research, Services for caregivers, Descriptive statistics, Intellectual disabilities, Developmental disabilities, Surveys, Thematic analysis, Patient-centered care, Adult children, Financial management, Social support, Adults |
| Abstract: | Background: Many parents are the primary caregivers for their adult children with intellectual and/or developmental disabilities. While there can be many benefits of caregiving, there can also be negative consequences for the parent caregiver and, in turn, for their adult child with intellectual and/or developmental disabilities. Given the critical care that parents provide to their adult children with intellectual and/or developmental disabilities, we aimed to understand the supports parents need to be effective caregivers. Method: Qualitative data (write‐in responses) from a national survey completed by 315 parents of adults with intellectual and/or developmental disabilities were analysed using thematic analysis. Results: Four themes emerged from the data, including the need fortangible support, social support, help navigating disability services and resources, and assistance with future planning. Conclusions: Our findings point to the need for financial compensation for parent caregivers of adults with intellectual and/or developmental disabilities, enhanced disability services, and spaces for families to connect and share resources. [ABSTRACT FROM AUTHOR] |
| Copyright of Journal of Applied Research in Intellectual Disabilities is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
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