The Transition From Family Home to Alternative Living Arrangements: Experiences of Adults With Intellectual Disabilities and Their Family Members.
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| Title: | The Transition From Family Home to Alternative Living Arrangements: Experiences of Adults With Intellectual Disabilities and Their Family Members. |
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| Authors: | Walker, Ruth (AUTHOR), Belperio, Irene (AUTHOR), Bigby, Christine (AUTHOR), Wiesel, Ilan (AUTHOR), Rillotta, Fiona (AUTHOR), Hutchinson, Claire (AUTHOR) |
| Source: | Journal of Applied Research in Intellectual Disabilities. Mar2025, Vol. 38 Issue 2, p1-11. 11p. |
| Subjects: | Psychological aspects of aging, Siblings, Patient autonomy, Independent living, Qualitative research, Research funding, Patient-family relations, Interviewing, Home environment, Descriptive statistics, Transitional care, Family attitudes, Thematic analysis, Social integration, Research methodology, Social networks, Quality of life, Psychology of parents, Data analysis software, Interpersonal relations, Psychosocial factors |
| Abstract: | Background: It is well documented that many adults with intellectual disabilities live with ageing parents, often without concrete plans for transitioning to alternative living arrangements. Little is known about transition experiences once they occur. This study explores the experiences of adults with intellectual disabilities and their family members of this transition through a relational lens. Method: Semi‐structured interviews were conducted with 25 people: 8 adults with intellectual disabilities, 13 parents, and 4 siblings. Results: Three themes were constructed from the data: 'Gaining independence and letting go', 'negotiating unfamiliar relationships' and 'social inclusion and making new connections.' Conclusion: Adults with intellectual disabilities discussed numerous benefits associated with moving out of the family home, including increased autonomy and opportunities for new relationships. Family members also described benefits of the transition, but some grappled with needing to 'let go' whilst at the same time retaining some degree of control over their family members' lives. [ABSTRACT FROM AUTHOR] |
| Copyright of Journal of Applied Research in Intellectual Disabilities is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
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| Abstract: | Background: It is well documented that many adults with intellectual disabilities live with ageing parents, often without concrete plans for transitioning to alternative living arrangements. Little is known about transition experiences once they occur. This study explores the experiences of adults with intellectual disabilities and their family members of this transition through a relational lens. Method: Semi‐structured interviews were conducted with 25 people: 8 adults with intellectual disabilities, 13 parents, and 4 siblings. Results: Three themes were constructed from the data: 'Gaining independence and letting go', 'negotiating unfamiliar relationships' and 'social inclusion and making new connections.' Conclusion: Adults with intellectual disabilities discussed numerous benefits associated with moving out of the family home, including increased autonomy and opportunities for new relationships. Family members also described benefits of the transition, but some grappled with needing to 'let go' whilst at the same time retaining some degree of control over their family members' lives. [ABSTRACT FROM AUTHOR] |
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| ISSN: | 13602322 |
| DOI: | 10.1111/jar.70047 |
