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The Transition From Family Home to Alternative Living Arrangements: Experiences of Adults With Intellectual Disabilities and Their Family Members.

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Title: The Transition From Family Home to Alternative Living Arrangements: Experiences of Adults With Intellectual Disabilities and Their Family Members.
Authors: Walker, Ruth (AUTHOR), Belperio, Irene (AUTHOR), Bigby, Christine (AUTHOR), Wiesel, Ilan (AUTHOR), Rillotta, Fiona (AUTHOR), Hutchinson, Claire (AUTHOR)
Source: Journal of Applied Research in Intellectual Disabilities. Mar2025, Vol. 38 Issue 2, p1-11. 11p.
Subjects: Psychological aspects of aging, Siblings, Patient autonomy, Independent living, Qualitative research, Research funding, Patient-family relations, Interviewing, Home environment, Descriptive statistics, Transitional care, Family attitudes, Thematic analysis, Social integration, Research methodology, Social networks, Quality of life, Psychology of parents, Data analysis software, Interpersonal relations, Psychosocial factors
Abstract: Background: It is well documented that many adults with intellectual disabilities live with ageing parents, often without concrete plans for transitioning to alternative living arrangements. Little is known about transition experiences once they occur. This study explores the experiences of adults with intellectual disabilities and their family members of this transition through a relational lens. Method: Semi‐structured interviews were conducted with 25 people: 8 adults with intellectual disabilities, 13 parents, and 4 siblings. Results: Three themes were constructed from the data: 'Gaining independence and letting go', 'negotiating unfamiliar relationships' and 'social inclusion and making new connections.' Conclusion: Adults with intellectual disabilities discussed numerous benefits associated with moving out of the family home, including increased autonomy and opportunities for new relationships. Family members also described benefits of the transition, but some grappled with needing to 'let go' whilst at the same time retaining some degree of control over their family members' lives. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Applied Research in Intellectual Disabilities is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: The Transition From Family Home to Alternative Living Arrangements: Experiences of Adults With Intellectual Disabilities and Their Family Members.
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  Data: <searchLink fieldCode="AR" term="%22Walker%2C+Ruth%22">Walker, Ruth</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Belperio%2C+Irene%22">Belperio, Irene</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Bigby%2C+Christine%22">Bigby, Christine</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Wiesel%2C+Ilan%22">Wiesel, Ilan</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Rillotta%2C+Fiona%22">Rillotta, Fiona</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Hutchinson%2C+Claire%22">Hutchinson, Claire</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Journal+of+Applied+Research+in+Intellectual+Disabilities%22">Journal of Applied Research in Intellectual Disabilities</searchLink>. Mar2025, Vol. 38 Issue 2, p1-11. 11p.
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  Data: <searchLink fieldCode="DE" term="%22Psychological+aspects+of+aging%22">Psychological aspects of aging</searchLink><br /><searchLink fieldCode="DE" term="%22Siblings%22">Siblings</searchLink><br /><searchLink fieldCode="DE" term="%22Patient+autonomy%22">Patient autonomy</searchLink><br /><searchLink fieldCode="DE" term="%22Independent+living%22">Independent living</searchLink><br /><searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Patient-family+relations%22">Patient-family relations</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Home+environment%22">Home environment</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Transitional+care%22">Transitional care</searchLink><br /><searchLink fieldCode="DE" term="%22Family+attitudes%22">Family attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Social+integration%22">Social integration</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Social+networks%22">Social networks</searchLink><br /><searchLink fieldCode="DE" term="%22Quality+of+life%22">Quality of life</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+parents%22">Psychology of parents</searchLink><br /><searchLink fieldCode="DE" term="%22Data+analysis+software%22">Data analysis software</searchLink><br /><searchLink fieldCode="DE" term="%22Interpersonal+relations%22">Interpersonal relations</searchLink><br /><searchLink fieldCode="DE" term="%22Psychosocial+factors%22">Psychosocial factors</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Background: It is well documented that many adults with intellectual disabilities live with ageing parents, often without concrete plans for transitioning to alternative living arrangements. Little is known about transition experiences once they occur. This study explores the experiences of adults with intellectual disabilities and their family members of this transition through a relational lens. Method: Semi‐structured interviews were conducted with 25 people: 8 adults with intellectual disabilities, 13 parents, and 4 siblings. Results: Three themes were constructed from the data: 'Gaining independence and letting go', 'negotiating unfamiliar relationships' and 'social inclusion and making new connections.' Conclusion: Adults with intellectual disabilities discussed numerous benefits associated with moving out of the family home, including increased autonomy and opportunities for new relationships. Family members also described benefits of the transition, but some grappled with needing to 'let go' whilst at the same time retaining some degree of control over their family members' lives. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
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  Data: <i>Copyright of Journal of Applied Research in Intellectual Disabilities is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=184768041
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1111/jar.70047
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 11
        StartPage: 1
    Subjects:
      – SubjectFull: Psychological aspects of aging
        Type: general
      – SubjectFull: Siblings
        Type: general
      – SubjectFull: Patient autonomy
        Type: general
      – SubjectFull: Independent living
        Type: general
      – SubjectFull: Qualitative research
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Patient-family relations
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Home environment
        Type: general
      – SubjectFull: Descriptive statistics
        Type: general
      – SubjectFull: Transitional care
        Type: general
      – SubjectFull: Family attitudes
        Type: general
      – SubjectFull: Thematic analysis
        Type: general
      – SubjectFull: Social integration
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Social networks
        Type: general
      – SubjectFull: Quality of life
        Type: general
      – SubjectFull: Psychology of parents
        Type: general
      – SubjectFull: Data analysis software
        Type: general
      – SubjectFull: Interpersonal relations
        Type: general
      – SubjectFull: Psychosocial factors
        Type: general
    Titles:
      – TitleFull: The Transition From Family Home to Alternative Living Arrangements: Experiences of Adults With Intellectual Disabilities and Their Family Members.
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          Name:
            NameFull: Walker, Ruth
      – PersonEntity:
          Name:
            NameFull: Belperio, Irene
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            NameFull: Bigby, Christine
      – PersonEntity:
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            NameFull: Wiesel, Ilan
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            NameFull: Rillotta, Fiona
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            NameFull: Hutchinson, Claire
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          Dates:
            – D: 01
              M: 03
              Text: Mar2025
              Type: published
              Y: 2025
          Identifiers:
            – Type: issn-print
              Value: 13602322
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              Value: 38
            – Type: issue
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            – TitleFull: Journal of Applied Research in Intellectual Disabilities
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