Getting Cancer Is "Just Bad Luck": Exploring Bereaved Emerging and Young Adults' Cancer Risk Uncertainty After Caring for a Parent With Advanced Cancer.

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Title: Getting Cancer Is "Just Bad Luck": Exploring Bereaved Emerging and Young Adults' Cancer Risk Uncertainty After Caring for a Parent With Advanced Cancer.
Authors: Kastrinos, Amanda (AUTHOR), Salafia, Caroline (AUTHOR), Gebert, Rebecca R. (AUTHOR), Mroz, Emily L. (AUTHOR), Fisher, Carla L. (AUTHOR), Applebaum, Allison J. (AUTHOR)
Source: Psycho-Oncology. May2025, Vol. 34 Issue 5, p1-9. 9p.
Subjects: Young adults, Caregivers, Psychosocial factors, Decision making, Risk aversion, Cancer patients, Health outcome assessment, Disease risk factors
Abstract: Background: Emerging and young adult caregivers (EYACs) who provide care to a parent with advanced cancer are underrepresented in caregiving scholarship, and yet, are not uncommon. Little is known about the psychosocial impacts of caring for a parent at this age or how EYACs manage their uncertainty regarding their own, potentially elevated, future cancer risk. Aims: To employ Uncertainty Management Theory (UMT) to examine how bereaved EYACs of a parent who died of advanced cancer appraise and manage their uncertainty regarding their personal cancer risk. Methods: We conducted a secondary analysis of in‐depth, semi‐structured interviews with EYACs (age 18–35) who cared for a parent who died of advanced cancer (n = 33) < 5 years prior. The interviews were transcribed and thematically analyzed. Results: Some EYACs described appraising their cancer risk uncertainty as an opportunity and were motivated to reduce their risks through behavior choices. Others appraised it as a danger and experienced anxiety, paranoia, and fatalism about their risk. Others described their parents' cancer as "just bad luck," believing it to be a random anomaly that could not impact their cancer risk and reported no changes in their appraisal of their cancer risk uncertainty. Conclusions: EYACs' opportunity and danger appraisals align with studies of high hereditary risk populations but reporting no change in cancer risk uncertainty is unique. The long‐term health implications of appraising their parent's cancer as a random occurrence, disconnected from their personal risk, remain unknown. Future research should seek to help both bereaved and active EYACs better understand their cancer risk and manage their uncertainty. [ABSTRACT FROM AUTHOR]
Copyright of Psycho-Oncology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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  Label: Title
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  Data: Getting Cancer Is &quot;Just Bad Luck&quot;: Exploring Bereaved Emerging and Young Adults&#39; Cancer Risk Uncertainty After Caring for a Parent With Advanced Cancer.
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  Data: &lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Kastrinos%2C+Amanda%22&quot;&gt;Kastrinos, Amanda&lt;/searchLink&gt; (AUTHOR)&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Salafia%2C+Caroline%22&quot;&gt;Salafia, Caroline&lt;/searchLink&gt; (AUTHOR)&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Gebert%2C+Rebecca+R%2E%22&quot;&gt;Gebert, Rebecca R.&lt;/searchLink&gt; (AUTHOR)&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Mroz%2C+Emily+L%2E%22&quot;&gt;Mroz, Emily L.&lt;/searchLink&gt; (AUTHOR)&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Fisher%2C+Carla+L%2E%22&quot;&gt;Fisher, Carla L.&lt;/searchLink&gt; (AUTHOR)&lt;br /&gt;&lt;searchLink fieldCode=&quot;AR&quot; term=&quot;%22Applebaum%2C+Allison+J%2E%22&quot;&gt;Applebaum, Allison J.&lt;/searchLink&gt; (AUTHOR)
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  Data: &lt;searchLink fieldCode=&quot;JN&quot; term=&quot;%22Psycho-Oncology%22&quot;&gt;Psycho-Oncology&lt;/searchLink&gt;. May2025, Vol. 34 Issue 5, p1-9. 9p.
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  Data: &lt;searchLink fieldCode=&quot;DE&quot; term=&quot;%22Young+adults%22&quot;&gt;Young adults&lt;/searchLink&gt;&lt;br /&gt;&lt;searchLink fieldCode=&quot;DE&quot; term=&quot;%22Caregivers%22&quot;&gt;Caregivers&lt;/searchLink&gt;&lt;br /&gt;&lt;searchLink fieldCode=&quot;DE&quot; term=&quot;%22Psychosocial+factors%22&quot;&gt;Psychosocial factors&lt;/searchLink&gt;&lt;br /&gt;&lt;searchLink fieldCode=&quot;DE&quot; term=&quot;%22Decision+making%22&quot;&gt;Decision making&lt;/searchLink&gt;&lt;br /&gt;&lt;searchLink fieldCode=&quot;DE&quot; term=&quot;%22Risk+aversion%22&quot;&gt;Risk aversion&lt;/searchLink&gt;&lt;br /&gt;&lt;searchLink fieldCode=&quot;DE&quot; term=&quot;%22Cancer+patients%22&quot;&gt;Cancer patients&lt;/searchLink&gt;&lt;br /&gt;&lt;searchLink fieldCode=&quot;DE&quot; term=&quot;%22Health+outcome+assessment%22&quot;&gt;Health outcome assessment&lt;/searchLink&gt;&lt;br /&gt;&lt;searchLink fieldCode=&quot;DE&quot; term=&quot;%22Disease+risk+factors%22&quot;&gt;Disease risk factors&lt;/searchLink&gt;
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Background: Emerging and young adult caregivers (EYACs) who provide care to a parent with advanced cancer are underrepresented in caregiving scholarship, and yet, are not uncommon. Little is known about the psychosocial impacts of caring for a parent at this age or how EYACs manage their uncertainty regarding their own, potentially elevated, future cancer risk. Aims: To employ Uncertainty Management Theory (UMT) to examine how bereaved EYACs of a parent who died of advanced cancer appraise and manage their uncertainty regarding their personal cancer risk. Methods: We conducted a secondary analysis of in‐depth, semi‐structured interviews with EYACs (age 18–35) who cared for a parent who died of advanced cancer (n = 33) &lt; 5 years prior. The interviews were transcribed and thematically analyzed. Results: Some EYACs described appraising their cancer risk uncertainty as an opportunity and were motivated to reduce their risks through behavior choices. Others appraised it as a danger and experienced anxiety, paranoia, and fatalism about their risk. Others described their parents&#39; cancer as &quot;just bad luck,&quot; believing it to be a random anomaly that could not impact their cancer risk and reported no changes in their appraisal of their cancer risk uncertainty. Conclusions: EYACs&#39; opportunity and danger appraisals align with studies of high hereditary risk populations but reporting no change in cancer risk uncertainty is unique. The long‐term health implications of appraising their parent&#39;s cancer as a random occurrence, disconnected from their personal risk, remain unknown. Future research should seek to help both bereaved and active EYACs better understand their cancer risk and manage their uncertainty. [ABSTRACT FROM AUTHOR]
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  Data: &lt;i&gt;Copyright of Psycho-Oncology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder&#39;s express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.&lt;/i&gt; (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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      – Type: doi
        Value: 10.1002/pon.70161
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      – Code: eng
        Text: English
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        PageCount: 9
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      – SubjectFull: Young adults
        Type: general
      – SubjectFull: Caregivers
        Type: general
      – SubjectFull: Psychosocial factors
        Type: general
      – SubjectFull: Decision making
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      – SubjectFull: Risk aversion
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      – SubjectFull: Cancer patients
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      – SubjectFull: Health outcome assessment
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      – SubjectFull: Disease risk factors
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      – TitleFull: Getting Cancer Is "Just Bad Luck": Exploring Bereaved Emerging and Young Adults' Cancer Risk Uncertainty After Caring for a Parent With Advanced Cancer.
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              M: 05
              Text: May2025
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              Y: 2025
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