Societal Costs, Healthcare Utilisation and Labour Market Affiliation of Persons With Adult‐Onset Myotonic Dystrophy Type 1 (DM1)—A Register‐Based Study II.
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| Title: | Societal Costs, Healthcare Utilisation and Labour Market Affiliation of Persons With Adult‐Onset Myotonic Dystrophy Type 1 (DM1)—A Register‐Based Study II. |
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| Authors: | Handberg, Charlotte (AUTHOR), Rudolfsen, Jan Håkon (AUTHOR), Andersen, Henning (AUTHOR), Vissing, John (AUTHOR), Rossau, Charlotte Dahl (AUTHOR), Dreyer, Pia (AUTHOR), Olsen, Jens (AUTHOR), Bengtsson, Simone D. (AUTHOR), Aagaard, Heidi (AUTHOR), Werlauff, Ulla (AUTHOR) |
| Source: | European Journal of Neurology. Jun2025, Vol. 32 Issue 6, p1-11. 11p. |
| Subjects: | Medical care use, Labor market, Externalities, Myotonia atrophica, Biopsychosocial model, Disability retirement |
| Geographic Terms: | Denmark |
| Abstract: | Background: Adult‐onset myotonic dystrophy type 1 (DM1) is characterised by diagnostic delay due to milder symptomatology than the congenital and juvenile forms. The multiorgan symptoms in the multiorgan nature of DM1 have negative biopsychosocial consequences. The aim was to apply national health registers to provide updated knowledge on the use and costs of healthcare services and labour market affiliation of persons with adult‐onset DM1 in Denmark. Methods: Analyses were based on a population of 949 adult persons with DM1 and 9427 controls. Median age at diagnosis was 43 years. Each person with DM1 was matched with ten reference individuals from the general Danish population without DM1. Data were retrieved from several databases: Statistics Denmark, the Danish National Patient Register, Danish National Health Service Register, the Danish National Prescription Registry and the Income register and the DREAM database. Results: During the 20‐year following diagnosis, persons with DM1 had 2.5 times more inpatient contacts, 2 times more outpatient contacts and 29.1 times more hours of home care than their controls. Persons with DM1 had a lower educational level, a higher risk of early disability pension (HR: 11.6, CI: 9.92–13.6), 68.2 weeks more unemployment and 29.2 weeks more long‐term sick leave and EUR 11,700–23,500 a lower income per year of the study. For all results, the difference between persons with DM1 and their controls was more expressed in males. Conclusions: The course of disease in adult‐onset DM1—normally considered to be mild—has a significant impact on health and living conditions. [ABSTRACT FROM AUTHOR] |
| Copyright of European Journal of Neurology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 186225057 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Societal Costs, Healthcare Utilisation and Labour Market Affiliation of Persons With Adult‐Onset Myotonic Dystrophy Type 1 (DM1)—A Register‐Based Study II. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Handberg%2C+Charlotte%22">Handberg, Charlotte</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Rudolfsen%2C+Jan+Håkon%22">Rudolfsen, Jan Håkon</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Andersen%2C+Henning%22">Andersen, Henning</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Vissing%2C+John%22">Vissing, John</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Rossau%2C+Charlotte+Dahl%22">Rossau, Charlotte Dahl</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Dreyer%2C+Pia%22">Dreyer, Pia</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Olsen%2C+Jens%22">Olsen, Jens</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Bengtsson%2C+Simone+D%2E%22">Bengtsson, Simone D.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Aagaard%2C+Heidi%22">Aagaard, Heidi</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Werlauff%2C+Ulla%22">Werlauff, Ulla</searchLink> (AUTHOR) – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22European+Journal+of+Neurology%22">European Journal of Neurology</searchLink>. Jun2025, Vol. 32 Issue 6, p1-11. 11p. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Medical+care+use%22">Medical care use</searchLink><br /><searchLink fieldCode="DE" term="%22Labor+market%22">Labor market</searchLink><br /><searchLink fieldCode="DE" term="%22Externalities%22">Externalities</searchLink><br /><searchLink fieldCode="DE" term="%22Myotonia+atrophica%22">Myotonia atrophica</searchLink><br /><searchLink fieldCode="DE" term="%22Biopsychosocial+model%22">Biopsychosocial model</searchLink><br /><searchLink fieldCode="DE" term="%22Disability+retirement%22">Disability retirement</searchLink> – Name: SubjectGeographic Label: Geographic Terms Group: Su Data: <searchLink fieldCode="DE" term="%22Denmark%22">Denmark</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Background: Adult‐onset myotonic dystrophy type 1 (DM1) is characterised by diagnostic delay due to milder symptomatology than the congenital and juvenile forms. The multiorgan symptoms in the multiorgan nature of DM1 have negative biopsychosocial consequences. The aim was to apply national health registers to provide updated knowledge on the use and costs of healthcare services and labour market affiliation of persons with adult‐onset DM1 in Denmark. Methods: Analyses were based on a population of 949 adult persons with DM1 and 9427 controls. Median age at diagnosis was 43 years. Each person with DM1 was matched with ten reference individuals from the general Danish population without DM1. Data were retrieved from several databases: Statistics Denmark, the Danish National Patient Register, Danish National Health Service Register, the Danish National Prescription Registry and the Income register and the DREAM database. Results: During the 20‐year following diagnosis, persons with DM1 had 2.5 times more inpatient contacts, 2 times more outpatient contacts and 29.1 times more hours of home care than their controls. Persons with DM1 had a lower educational level, a higher risk of early disability pension (HR: 11.6, CI: 9.92–13.6), 68.2 weeks more unemployment and 29.2 weeks more long‐term sick leave and EUR 11,700–23,500 a lower income per year of the study. For all results, the difference between persons with DM1 and their controls was more expressed in males. Conclusions: The course of disease in adult‐onset DM1—normally considered to be mild—has a significant impact on health and living conditions. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of European Journal of Neurology is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=186225057 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1111/ene.70211 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 11 StartPage: 1 Subjects: – SubjectFull: Medical care use Type: general – SubjectFull: Labor market Type: general – SubjectFull: Externalities Type: general – SubjectFull: Myotonia atrophica Type: general – SubjectFull: Biopsychosocial model Type: general – SubjectFull: Disability retirement Type: general – SubjectFull: Denmark Type: general Titles: – TitleFull: Societal Costs, Healthcare Utilisation and Labour Market Affiliation of Persons With Adult‐Onset Myotonic Dystrophy Type 1 (DM1)—A Register‐Based Study II. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Handberg, Charlotte – PersonEntity: Name: NameFull: Rudolfsen, Jan Håkon – PersonEntity: Name: NameFull: Andersen, Henning – PersonEntity: Name: NameFull: Vissing, John – PersonEntity: Name: NameFull: Rossau, Charlotte Dahl – PersonEntity: Name: NameFull: Dreyer, Pia – PersonEntity: Name: NameFull: Olsen, Jens – PersonEntity: Name: NameFull: Bengtsson, Simone D. – PersonEntity: Name: NameFull: Aagaard, Heidi – PersonEntity: Name: NameFull: Werlauff, Ulla IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 06 Text: Jun2025 Type: published Y: 2025 Identifiers: – Type: issn-print Value: 13515101 Numbering: – Type: volume Value: 32 – Type: issue Value: 6 Titles: – TitleFull: European Journal of Neurology Type: main |
| ResultId | 1 |
