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Living with Loss: Evaluating an Internet-Based Program for Parents Following Perinatal Death.

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Title: Living with Loss: Evaluating an Internet-Based Program for Parents Following Perinatal Death.
Authors: Loughnan, Siobhan A., Lancaster, Ann, Crocker, Sara, Astell, Chrissie, Griffin, Alison, Wojcieszek, Aleena M., Boyle, Frances M., Ellwood, David, Dean, Julie, Horey, Dell, Callander, Emily, Jackson, Claire, Seeho, Sean, Shand, Antonia, Flenady, Vicki
Source: Journal of Loss & Trauma. 2025, Vol. 30 Issue 5, p708-732. 25p.
Subjects: Psychological distress, Research funding, Medical care, Evaluation of human services programs, Statistical sampling, Internet, Parent attitudes, Perinatal death, Psychological adaptation, Randomized controlled trials, Descriptive statistics, Anxiety, Bereavement, Control groups, Pre-tests & post-tests, Psychology of mothers, Social support, Psychology of parents, Comparative studies, Grief, Patient satisfaction, Well-being, Mental depression
Abstract: Stillbirth and neonatal death are devastating pregnancy outcomes with enduring psychosocial and emotional effects on parents and families. Families need appropriate support, yet access to services is often limited. In a randomized controlled trial, we evaluated the efficacy and acceptability of a self-guided internet-based perinatal grief program, Living with Loss (LWL), to support coping and wellbeing among bereaved parents following perinatal death. Eligible parents, largely mothers, were recruited online and randomized to the intervention arm (n = 48) or a care-as-usual (CAU) control arm (n = 47). The LWL program comprised six internet-based modules completed over 8 weeks. The primary outcome was psychological distress; secondary outcomes were perinatal grief intensity, anxiety, depression, and program satisfaction and acceptability. The LWL program reduced psychological distress at post-program compared with CAU. The program had moderate adherence rates and high program satisfaction. There were no differences in the secondary outcomes, and the effect on psychological distress was not sustained at 3-month follow-up. This study provides preliminary evidence for the utility of an internet-based perinatal grief support program to reduce psychological distress in the shorter term among bereaved parents. Further research is needed to determine how psychological distress can be minimized in the longer term, and whether self-guided internet-based support is effective for bereaved fathers and extended family members. Further research is also needed to investigate the effectiveness of the program in real-world settings. Trial Registration: Australian New Zealand Clinical Trials Registry, ACTRN12621000631808, registered prospectively on 27/05/2021; [ABSTRACT FROM AUTHOR]
Copyright of Journal of Loss & Trauma is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Living with Loss: Evaluating an Internet-Based Program for Parents Following Perinatal Death.
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  Data: <searchLink fieldCode="AR" term="%22Loughnan%2C+Siobhan+A%2E%22">Loughnan, Siobhan A.</searchLink><br /><searchLink fieldCode="AR" term="%22Lancaster%2C+Ann%22">Lancaster, Ann</searchLink><br /><searchLink fieldCode="AR" term="%22Crocker%2C+Sara%22">Crocker, Sara</searchLink><br /><searchLink fieldCode="AR" term="%22Astell%2C+Chrissie%22">Astell, Chrissie</searchLink><br /><searchLink fieldCode="AR" term="%22Griffin%2C+Alison%22">Griffin, Alison</searchLink><br /><searchLink fieldCode="AR" term="%22Wojcieszek%2C+Aleena+M%2E%22">Wojcieszek, Aleena M.</searchLink><br /><searchLink fieldCode="AR" term="%22Boyle%2C+Frances+M%2E%22">Boyle, Frances M.</searchLink><br /><searchLink fieldCode="AR" term="%22Ellwood%2C+David%22">Ellwood, David</searchLink><br /><searchLink fieldCode="AR" term="%22Dean%2C+Julie%22">Dean, Julie</searchLink><br /><searchLink fieldCode="AR" term="%22Horey%2C+Dell%22">Horey, Dell</searchLink><br /><searchLink fieldCode="AR" term="%22Callander%2C+Emily%22">Callander, Emily</searchLink><br /><searchLink fieldCode="AR" term="%22Jackson%2C+Claire%22">Jackson, Claire</searchLink><br /><searchLink fieldCode="AR" term="%22Seeho%2C+Sean%22">Seeho, Sean</searchLink><br /><searchLink fieldCode="AR" term="%22Shand%2C+Antonia%22">Shand, Antonia</searchLink><br /><searchLink fieldCode="AR" term="%22Flenady%2C+Vicki%22">Flenady, Vicki</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22Journal+of+Loss+%26+Trauma%22">Journal of Loss & Trauma</searchLink>. 2025, Vol. 30 Issue 5, p708-732. 25p.
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  Data: <searchLink fieldCode="DE" term="%22Psychological+distress%22">Psychological distress</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+care%22">Medical care</searchLink><br /><searchLink fieldCode="DE" term="%22Evaluation+of+human+services+programs%22">Evaluation of human services programs</searchLink><br /><searchLink fieldCode="DE" term="%22Statistical+sampling%22">Statistical sampling</searchLink><br /><searchLink fieldCode="DE" term="%22Internet%22">Internet</searchLink><br /><searchLink fieldCode="DE" term="%22Parent+attitudes%22">Parent attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Perinatal+death%22">Perinatal death</searchLink><br /><searchLink fieldCode="DE" term="%22Psychological+adaptation%22">Psychological adaptation</searchLink><br /><searchLink fieldCode="DE" term="%22Randomized+controlled+trials%22">Randomized controlled trials</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Anxiety%22">Anxiety</searchLink><br /><searchLink fieldCode="DE" term="%22Bereavement%22">Bereavement</searchLink><br /><searchLink fieldCode="DE" term="%22Control+groups%22">Control groups</searchLink><br /><searchLink fieldCode="DE" term="%22Pre-tests+%26+post-tests%22">Pre-tests & post-tests</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+mothers%22">Psychology of mothers</searchLink><br /><searchLink fieldCode="DE" term="%22Social+support%22">Social support</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+parents%22">Psychology of parents</searchLink><br /><searchLink fieldCode="DE" term="%22Comparative+studies%22">Comparative studies</searchLink><br /><searchLink fieldCode="DE" term="%22Grief%22">Grief</searchLink><br /><searchLink fieldCode="DE" term="%22Patient+satisfaction%22">Patient satisfaction</searchLink><br /><searchLink fieldCode="DE" term="%22Well-being%22">Well-being</searchLink><br /><searchLink fieldCode="DE" term="%22Mental+depression%22">Mental depression</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Stillbirth and neonatal death are devastating pregnancy outcomes with enduring psychosocial and emotional effects on parents and families. Families need appropriate support, yet access to services is often limited. In a randomized controlled trial, we evaluated the efficacy and acceptability of a self-guided internet-based perinatal grief program, Living with Loss (LWL), to support coping and wellbeing among bereaved parents following perinatal death. Eligible parents, largely mothers, were recruited online and randomized to the intervention arm (n = 48) or a care-as-usual (CAU) control arm (n = 47). The LWL program comprised six internet-based modules completed over 8 weeks. The primary outcome was psychological distress; secondary outcomes were perinatal grief intensity, anxiety, depression, and program satisfaction and acceptability. The LWL program reduced psychological distress at post-program compared with CAU. The program had moderate adherence rates and high program satisfaction. There were no differences in the secondary outcomes, and the effect on psychological distress was not sustained at 3-month follow-up. This study provides preliminary evidence for the utility of an internet-based perinatal grief support program to reduce psychological distress in the shorter term among bereaved parents. Further research is needed to determine how psychological distress can be minimized in the longer term, and whether self-guided internet-based support is effective for bereaved fathers and extended family members. Further research is also needed to investigate the effectiveness of the program in real-world settings. Trial Registration: Australian New Zealand Clinical Trials Registry, ACTRN12621000631808, registered prospectively on 27/05/2021; [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
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  Data: <i>Copyright of Journal of Loss & Trauma is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1080/15325024.2024.2415708
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      – Code: eng
        Text: English
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        PageCount: 25
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    Subjects:
      – SubjectFull: Psychological distress
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Medical care
        Type: general
      – SubjectFull: Evaluation of human services programs
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      – SubjectFull: Statistical sampling
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      – SubjectFull: Internet
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      – SubjectFull: Parent attitudes
        Type: general
      – SubjectFull: Perinatal death
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      – SubjectFull: Psychological adaptation
        Type: general
      – SubjectFull: Randomized controlled trials
        Type: general
      – SubjectFull: Descriptive statistics
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      – SubjectFull: Anxiety
        Type: general
      – SubjectFull: Bereavement
        Type: general
      – SubjectFull: Control groups
        Type: general
      – SubjectFull: Pre-tests & post-tests
        Type: general
      – SubjectFull: Psychology of mothers
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      – SubjectFull: Grief
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      – SubjectFull: Patient satisfaction
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      – SubjectFull: Well-being
        Type: general
      – SubjectFull: Mental depression
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      – TitleFull: Living with Loss: Evaluating an Internet-Based Program for Parents Following Perinatal Death.
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