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Quality of life and access to treatment for patients with multiple sclerosis during economic crisis: the Lebanese experience.

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Title: Quality of life and access to treatment for patients with multiple sclerosis during economic crisis: the Lebanese experience.
Authors: Zeineddine, Maya (AUTHOR), Ismail, Ghida (AUTHOR), Issa, Malak (AUTHOR), El-Hajj, Taghrid (AUTHOR), Tfaily, Hassan (AUTHOR), Dassouki, Mohamad (AUTHOR), Assaf, Elie (AUTHOR), Abboud, Halim (AUTHOR), Salameh, Pascale (AUTHOR), Al-Hajje, Amal (AUTHOR), Boumediene, Farid (AUTHOR), Yamout, Bassem (AUTHOR)
Source: Quality of Life Research. Aug2025, Vol. 34 Issue 8, p2293-2303. 11p.
Subjects: Quality of life, Multiple sclerosis, Disabilities, Sociodemographic factors, Health services accessibility, Lebanese, Financial crises, Health impact assessment
Geographic Terms: Lebanon
Abstract: Purpose: Multiple sclerosis (MS) is a demyelinating disease of the central nervous system that can lead to lifelong disability, significantly impacting patient's quality of life (QOL). The current Lebanese economic crisis led to limited accessibility to MS therapies and had a major impact on QOL.The aim of this study was to assess QOL in a cohort of Lebanese MS patients, and its association with socio-demographic factors, disease characteristics, and treatment accessibility. Methods: A cross-sectional, survey-based study was conducted between June and September 2022 in Lebanese patients with confirmed MS diagnosis as per the 2017 McDonald criteria. Structured questionnaires were used to obtain (1) socio-demographic and medical information, (2) QOL assessment using the MS International QOL questionnaire (MusiQoL), and (3) information related to barriers in accessing MS therapies. All questionnaires were administered via telephone call. Results: A total of 350 MS patients were included in the study. Most participants (92.3%) were diagnosed with relapsing–remitting MS and were females (65.1%) with a mean age of 39.4 ± 11.4 years. The mean MusiQol global index was 69.2 ± 11.5. In the multivariate analysis, younger age, higher level of education, being employed, being married, living outside the capital Beirut, and having no physical disability were significantly associated with higher MusiQol global index scores. A total of 216 Lebanese MS patients (61.7%) had no access to MS treatments due to the economic crisis. Treatment discontinuation and lack of governmental or private insurance were significant predictors of lower MusiQol scores. Conclusion: The economic crisis and resultant recession in Lebanon had a significantly negative impacted on QOL and treatment accessibility of MS patients. Socio-demographic factors, disease characteristics and treatment accessibility were strong predictors of QOL. [ABSTRACT FROM AUTHOR]
Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Quality of life and access to treatment for patients with multiple sclerosis during economic crisis: the Lebanese experience.
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  Data: <searchLink fieldCode="AR" term="%22Zeineddine%2C+Maya%22">Zeineddine, Maya</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Ismail%2C+Ghida%22">Ismail, Ghida</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Issa%2C+Malak%22">Issa, Malak</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22El-Hajj%2C+Taghrid%22">El-Hajj, Taghrid</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Tfaily%2C+Hassan%22">Tfaily, Hassan</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Dassouki%2C+Mohamad%22">Dassouki, Mohamad</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Assaf%2C+Elie%22">Assaf, Elie</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Abboud%2C+Halim%22">Abboud, Halim</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Salameh%2C+Pascale%22">Salameh, Pascale</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Al-Hajje%2C+Amal%22">Al-Hajje, Amal</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Boumediene%2C+Farid%22">Boumediene, Farid</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Yamout%2C+Bassem%22">Yamout, Bassem</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Quality+of+Life+Research%22">Quality of Life Research</searchLink>. Aug2025, Vol. 34 Issue 8, p2293-2303. 11p.
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  Data: <searchLink fieldCode="DE" term="%22Quality+of+life%22">Quality of life</searchLink><br /><searchLink fieldCode="DE" term="%22Multiple+sclerosis%22">Multiple sclerosis</searchLink><br /><searchLink fieldCode="DE" term="%22Disabilities%22">Disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Sociodemographic+factors%22">Sociodemographic factors</searchLink><br /><searchLink fieldCode="DE" term="%22Health+services+accessibility%22">Health services accessibility</searchLink><br /><searchLink fieldCode="DE" term="%22Lebanese%22">Lebanese</searchLink><br /><searchLink fieldCode="DE" term="%22Financial+crises%22">Financial crises</searchLink><br /><searchLink fieldCode="DE" term="%22Health+impact+assessment%22">Health impact assessment</searchLink>
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  Data: Purpose: Multiple sclerosis (MS) is a demyelinating disease of the central nervous system that can lead to lifelong disability, significantly impacting patient's quality of life (QOL). The current Lebanese economic crisis led to limited accessibility to MS therapies and had a major impact on QOL.The aim of this study was to assess QOL in a cohort of Lebanese MS patients, and its association with socio-demographic factors, disease characteristics, and treatment accessibility. Methods: A cross-sectional, survey-based study was conducted between June and September 2022 in Lebanese patients with confirmed MS diagnosis as per the 2017 McDonald criteria. Structured questionnaires were used to obtain (1) socio-demographic and medical information, (2) QOL assessment using the MS International QOL questionnaire (MusiQoL), and (3) information related to barriers in accessing MS therapies. All questionnaires were administered via telephone call. Results: A total of 350 MS patients were included in the study. Most participants (92.3%) were diagnosed with relapsing–remitting MS and were females (65.1%) with a mean age of 39.4 ± 11.4 years. The mean MusiQol global index was 69.2 ± 11.5. In the multivariate analysis, younger age, higher level of education, being employed, being married, living outside the capital Beirut, and having no physical disability were significantly associated with higher MusiQol global index scores. A total of 216 Lebanese MS patients (61.7%) had no access to MS treatments due to the economic crisis. Treatment discontinuation and lack of governmental or private insurance were significant predictors of lower MusiQol scores. Conclusion: The economic crisis and resultant recession in Lebanon had a significantly negative impacted on QOL and treatment accessibility of MS patients. Socio-demographic factors, disease characteristics and treatment accessibility were strong predictors of QOL. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Quality of Life Research is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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        Value: 10.1007/s11136-025-03970-7
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        Text: English
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