View in EDS HTML Full Text PDF Full Text

Characterising Insistence on Sameness and Circumscribed Interests: A Qualitative Study of Parent Perspectives.

Saved in:
Bibliographic Details
Title: Characterising Insistence on Sameness and Circumscribed Interests: A Qualitative Study of Parent Perspectives.
Authors: Spackman, Emily, Geng, Alicia, Smillie, Luke D., Frazier, Thomas W., Hardan, Antonio Y., Alvarez, Gail A., Whitehouse, Andrew, Schuck, Rachel K., Leekam, Sue R., Uljarević, Mirko
Source: Journal of Autism & Developmental Disorders. Aug2025, Vol. 55 Issue 8, p2896-2908. 13p.
Subjects: Behavior disorders, Research funding, Qualitative research, Autism, Interviewing, Parent attitudes, Attitudes toward disabilities, Teenagers' conduct of life, Attention, Thematic analysis, Research methodology, Conceptual structures, Asperger's syndrome, Parents of children with disabilities, Psychology of caregivers, Child behavior, Caregiver attitudes, Psychosocial factors, Symptoms, Adolescence, Children
Geographic Terms: United States
Abstract: Manifestations of insistence on sameness (IS) and circumscribed interests (CI) are complex, with individuals varying considerably, not only in the types of behaviours they express, but also in terms of a behaviour's frequency, intensity, trajectory, adaptive benefits, and impacts. However, current quantitative RRB instruments capture only certain aspects of these behaviours (e.g., mostly frequency or general "severity"). Thus, the current study utilised a semi-structured caregiver interview to provide an in-depth, qualitative characterization of different aspects of IS and CI presentation. Caregivers of 27 autistic children and adolescents displaying IS and/or CI behaviours (3–16 years; 18 males; 9 females) participated in a semi-structured interview. Responses were analysed using thematic framework analysis. Framework analysis identified nine different aspects of IS and CI presentation: (1) intensity, (2) frequency, (3) emergence of behaviour, (4) changes over time, (5) day-to-day fluctuations, (6) purpose/adaptive benefit, (7) experiences of distress, (8) challenges for the individual, their family, and their socialisation, and (9) management strategies and their effectiveness. Autistic children and adolescents were reported to vary greatly on each of these dimensions. Findings demonstrate the complexity of IS and CI presentations and highlight the need for more comprehensive quantitative assessments that independently assess the frequency, intensity, and impact of behaviours. Further, findings reported here emphasize the need for ecologically valid measures that assess the contexts in which these behaviours occur and how their presentations can change within and across days. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
Full text is not displayed to guests.
FullText Links:
  – Type: pdflink
Text:
  Availability: 1
Header DbId: pbh
DbLabel: Psychology and Behavioral Sciences Collection
An: 186910039
AccessLevel: 6
PubType: Academic Journal
PubTypeId: academicJournal
PreciseRelevancyScore: 0
IllustrationInfo
Items – Name: Title
  Label: Title
  Group: Ti
  Data: Characterising Insistence on Sameness and Circumscribed Interests: A Qualitative Study of Parent Perspectives.
– Name: Author
  Label: Authors
  Group: Au
  Data: <searchLink fieldCode="AR" term="%22Spackman%2C+Emily%22">Spackman, Emily</searchLink><br /><searchLink fieldCode="AR" term="%22Geng%2C+Alicia%22">Geng, Alicia</searchLink><br /><searchLink fieldCode="AR" term="%22Smillie%2C+Luke+D%2E%22">Smillie, Luke D.</searchLink><br /><searchLink fieldCode="AR" term="%22Frazier%2C+Thomas+W%2E%22">Frazier, Thomas W.</searchLink><br /><searchLink fieldCode="AR" term="%22Hardan%2C+Antonio+Y%2E%22">Hardan, Antonio Y.</searchLink><br /><searchLink fieldCode="AR" term="%22Alvarez%2C+Gail+A%2E%22">Alvarez, Gail A.</searchLink><br /><searchLink fieldCode="AR" term="%22Whitehouse%2C+Andrew%22">Whitehouse, Andrew</searchLink><br /><searchLink fieldCode="AR" term="%22Schuck%2C+Rachel+K%2E%22">Schuck, Rachel K.</searchLink><br /><searchLink fieldCode="AR" term="%22Leekam%2C+Sue+R%2E%22">Leekam, Sue R.</searchLink><br /><searchLink fieldCode="AR" term="%22Uljarević%2C+Mirko%22">Uljarević, Mirko</searchLink>
– Name: TitleSource
  Label: Source
  Group: Src
  Data: <searchLink fieldCode="JN" term="%22Journal+of+Autism+%26+Developmental+Disorders%22">Journal of Autism & Developmental Disorders</searchLink>. Aug2025, Vol. 55 Issue 8, p2896-2908. 13p.
– Name: Subject
  Label: Subjects
  Group: Su
  Data: <searchLink fieldCode="DE" term="%22Behavior+disorders%22">Behavior disorders</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Autism%22">Autism</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Parent+attitudes%22">Parent attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Attitudes+toward+disabilities%22">Attitudes toward disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Teenagers'+conduct+of+life%22">Teenagers' conduct of life</searchLink><br /><searchLink fieldCode="DE" term="%22Attention%22">Attention</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Conceptual+structures%22">Conceptual structures</searchLink><br /><searchLink fieldCode="DE" term="%22Asperger's+syndrome%22">Asperger's syndrome</searchLink><br /><searchLink fieldCode="DE" term="%22Parents+of+children+with+disabilities%22">Parents of children with disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+caregivers%22">Psychology of caregivers</searchLink><br /><searchLink fieldCode="DE" term="%22Child+behavior%22">Child behavior</searchLink><br /><searchLink fieldCode="DE" term="%22Caregiver+attitudes%22">Caregiver attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Psychosocial+factors%22">Psychosocial factors</searchLink><br /><searchLink fieldCode="DE" term="%22Symptoms%22">Symptoms</searchLink><br /><searchLink fieldCode="DE" term="%22Adolescence%22">Adolescence</searchLink><br /><searchLink fieldCode="DE" term="%22Children%22">Children</searchLink>
– Name: SubjectGeographic
  Label: Geographic Terms
  Group: Su
  Data: <searchLink fieldCode="DE" term="%22United+States%22">United States</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Manifestations of insistence on sameness (IS) and circumscribed interests (CI) are complex, with individuals varying considerably, not only in the types of behaviours they express, but also in terms of a behaviour's frequency, intensity, trajectory, adaptive benefits, and impacts. However, current quantitative RRB instruments capture only certain aspects of these behaviours (e.g., mostly frequency or general "severity"). Thus, the current study utilised a semi-structured caregiver interview to provide an in-depth, qualitative characterization of different aspects of IS and CI presentation. Caregivers of 27 autistic children and adolescents displaying IS and/or CI behaviours (3–16 years; 18 males; 9 females) participated in a semi-structured interview. Responses were analysed using thematic framework analysis. Framework analysis identified nine different aspects of IS and CI presentation: (1) intensity, (2) frequency, (3) emergence of behaviour, (4) changes over time, (5) day-to-day fluctuations, (6) purpose/adaptive benefit, (7) experiences of distress, (8) challenges for the individual, their family, and their socialisation, and (9) management strategies and their effectiveness. Autistic children and adolescents were reported to vary greatly on each of these dimensions. Findings demonstrate the complexity of IS and CI presentations and highlight the need for more comprehensive quantitative assessments that independently assess the frequency, intensity, and impact of behaviours. Further, findings reported here emphasize the need for ecologically valid measures that assess the contexts in which these behaviours occur and how their presentations can change within and across days. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=186910039
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1007/s10803-024-06404-4
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 13
        StartPage: 2896
    Subjects:
      – SubjectFull: Behavior disorders
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Qualitative research
        Type: general
      – SubjectFull: Autism
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Parent attitudes
        Type: general
      – SubjectFull: Attitudes toward disabilities
        Type: general
      – SubjectFull: Teenagers' conduct of life
        Type: general
      – SubjectFull: Attention
        Type: general
      – SubjectFull: Thematic analysis
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Conceptual structures
        Type: general
      – SubjectFull: Asperger's syndrome
        Type: general
      – SubjectFull: Parents of children with disabilities
        Type: general
      – SubjectFull: Psychology of caregivers
        Type: general
      – SubjectFull: Child behavior
        Type: general
      – SubjectFull: Caregiver attitudes
        Type: general
      – SubjectFull: Psychosocial factors
        Type: general
      – SubjectFull: Symptoms
        Type: general
      – SubjectFull: Adolescence
        Type: general
      – SubjectFull: Children
        Type: general
      – SubjectFull: United States
        Type: general
    Titles:
      – TitleFull: Characterising Insistence on Sameness and Circumscribed Interests: A Qualitative Study of Parent Perspectives.
        Type: main
  BibRelationships:
    HasContributorRelationships:
      – PersonEntity:
          Name:
            NameFull: Spackman, Emily
      – PersonEntity:
          Name:
            NameFull: Geng, Alicia
      – PersonEntity:
          Name:
            NameFull: Smillie, Luke D.
      – PersonEntity:
          Name:
            NameFull: Frazier, Thomas W.
      – PersonEntity:
          Name:
            NameFull: Hardan, Antonio Y.
      – PersonEntity:
          Name:
            NameFull: Alvarez, Gail A.
      – PersonEntity:
          Name:
            NameFull: Whitehouse, Andrew
      – PersonEntity:
          Name:
            NameFull: Schuck, Rachel K.
      – PersonEntity:
          Name:
            NameFull: Leekam, Sue R.
      – PersonEntity:
          Name:
            NameFull: Uljarević, Mirko
    IsPartOfRelationships:
      – BibEntity:
          Dates:
            – D: 01
              M: 08
              Text: Aug2025
              Type: published
              Y: 2025
          Identifiers:
            – Type: issn-print
              Value: 01623257
          Numbering:
            – Type: volume
              Value: 55
            – Type: issue
              Value: 8
          Titles:
            – TitleFull: Journal of Autism & Developmental Disorders
              Type: main
ResultId 1