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Preparing Implementation of Transition Readiness Screening: What Do Paediatric Cancer Survivors and Caregivers Want?

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Title: Preparing Implementation of Transition Readiness Screening: What Do Paediatric Cancer Survivors and Caregivers Want?
Authors: Monarque, Marika, Buron, Laurianne, Granger, Nadège Gendron, Louis‐Delsoin, Wendy, Labonté, Nathalie, Provost, Carole, Rosberger, Zeev, Tsimicalis, Argerie, Bergeron, Élodie, Bonanno, Marco, Sultan, Serge, Laverdière, Caroline, Desjardins, Leandra
Source: Child: Care, Health & Development. Jul2025, Vol. 51 Issue 4, p1-12. 12p.
Subjects: Tumors in children, Research funding, Qualitative research, Focus groups, Psychological distress, Interviewing, Questionnaires, Cancer patients, Parent attitudes, Emotions, Transitional care, Thematic analysis, Medical screening, Psychology of parents, Needs assessment, Patients' attitudes
Abstract: Background: Supporting transition from paediatric to adult healthcare is essential for the long‐term well‐being of paediatric cancer survivors. Guided by an implementation science approach, our overall programme of research seeks to integrate transition readiness screening in the routine care of paediatric cancer survivors, using the validated Transition Readiness Assessment Questionnaire (TRAQ). To plan for the screening implementation, the primary objective of this study was to first assess paediatric cancer survivors' current experiences with transition preparation and their preferences for screening and resources. A secondary focus group with parents was also conducted to complement youth perspectives. Methods: Focus groups were conducted with 14‐ to 18‐year‐old paediatric cancer survivors (n = 13) and parents (n = 6). Focus groups explored perceptions of care at the long‐term follow‐up clinic, transition preparedness, preferences for TRAQ administration (e.g., format, moment and location) and preferences for transition readiness resources. Interviews were analysed with an inductive thematic analysis approach. Results: This study identified several barriers to TRAQ implementation, including adolescents' lack of transition awareness, attachment to paediatric care and parental distress. Unclear TRAQ items were also noted as a challenge for adolescents. Strategies to address these barriers include regular discussions with healthcare providers, a comprehensive transition resource website, addressing emotional needs, providing parent guidance and offering flexible TRAQ administration options, for example, by leveraging technology (QR codes, choice of online or paper administration). Conclusion: This study highlighted the importance of addressing the informational and emotional needs of adolescents and parents for implementation, notably by engaging in discussions with clinicians and tailoring online transition readiness resources. Preferences and suggestions for TRAQ administration and resources will be integrated to align with patients and parents' needs and optimize implementation. Key Messages: The study identified key barriers to TRAQ implementation, including paediatric cancer survivors' lack of awareness of transition and understanding of the TRAQ, attachment to paediatric care and parental distress about long‐term follow‐up.Participants suggested strategies such as offering the TRAQ online, integrating it into wait times and enhancing awareness through individualized discussions.Addressing emotional needs through dedicated resources and incorporating discussions about transition‐related distress into the TRAQ implementation process is crucial.Participants preferred online resources over paper formats, and a webpage on transition resources was acceptable to both adolescents and parents.Results of this study are an essential first step in the preparation of a successful TRAQ implementation, with findings allowing better planning and adaptation of implementation to the local context and to adolescents and parents. [ABSTRACT FROM AUTHOR]
Copyright of Child: Care, Health & Development is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Preparing Implementation of Transition Readiness Screening: What Do Paediatric Cancer Survivors and Caregivers Want?
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  Data: <searchLink fieldCode="AR" term="%22Monarque%2C+Marika%22">Monarque, Marika</searchLink><br /><searchLink fieldCode="AR" term="%22Buron%2C+Laurianne%22">Buron, Laurianne</searchLink><br /><searchLink fieldCode="AR" term="%22Granger%2C+Nadège Gendron%22">Granger, Nadège Gendron</searchLink><br /><searchLink fieldCode="AR" term="%22Louis‐Delsoin%2C+Wendy%22">Louis‐Delsoin, Wendy</searchLink><br /><searchLink fieldCode="AR" term="%22Labonté%2C+Nathalie%22">Labonté, Nathalie</searchLink><br /><searchLink fieldCode="AR" term="%22Provost%2C+Carole%22">Provost, Carole</searchLink><br /><searchLink fieldCode="AR" term="%22Rosberger%2C+Zeev%22">Rosberger, Zeev</searchLink><br /><searchLink fieldCode="AR" term="%22Tsimicalis%2C+Argerie%22">Tsimicalis, Argerie</searchLink><br /><searchLink fieldCode="AR" term="%22Bergeron%2C+Élodie%22">Bergeron, Élodie</searchLink><br /><searchLink fieldCode="AR" term="%22Bonanno%2C+Marco%22">Bonanno, Marco</searchLink><br /><searchLink fieldCode="AR" term="%22Sultan%2C+Serge%22">Sultan, Serge</searchLink><br /><searchLink fieldCode="AR" term="%22Laverdière%2C+Caroline%22">Laverdière, Caroline</searchLink><br /><searchLink fieldCode="AR" term="%22Desjardins%2C+Leandra%22">Desjardins, Leandra</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22Child%3A+Care%2C+Health+%26+Development%22">Child: Care, Health & Development</searchLink>. Jul2025, Vol. 51 Issue 4, p1-12. 12p.
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  Data: <searchLink fieldCode="DE" term="%22Tumors+in+children%22">Tumors in children</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Focus+groups%22">Focus groups</searchLink><br /><searchLink fieldCode="DE" term="%22Psychological+distress%22">Psychological distress</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Questionnaires%22">Questionnaires</searchLink><br /><searchLink fieldCode="DE" term="%22Cancer+patients%22">Cancer patients</searchLink><br /><searchLink fieldCode="DE" term="%22Parent+attitudes%22">Parent attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Emotions%22">Emotions</searchLink><br /><searchLink fieldCode="DE" term="%22Transitional+care%22">Transitional care</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+screening%22">Medical screening</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+parents%22">Psychology of parents</searchLink><br /><searchLink fieldCode="DE" term="%22Needs+assessment%22">Needs assessment</searchLink><br /><searchLink fieldCode="DE" term="%22Patients'+attitudes%22">Patients' attitudes</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Background: Supporting transition from paediatric to adult healthcare is essential for the long‐term well‐being of paediatric cancer survivors. Guided by an implementation science approach, our overall programme of research seeks to integrate transition readiness screening in the routine care of paediatric cancer survivors, using the validated Transition Readiness Assessment Questionnaire (TRAQ). To plan for the screening implementation, the primary objective of this study was to first assess paediatric cancer survivors' current experiences with transition preparation and their preferences for screening and resources. A secondary focus group with parents was also conducted to complement youth perspectives. Methods: Focus groups were conducted with 14‐ to 18‐year‐old paediatric cancer survivors (n = 13) and parents (n = 6). Focus groups explored perceptions of care at the long‐term follow‐up clinic, transition preparedness, preferences for TRAQ administration (e.g., format, moment and location) and preferences for transition readiness resources. Interviews were analysed with an inductive thematic analysis approach. Results: This study identified several barriers to TRAQ implementation, including adolescents' lack of transition awareness, attachment to paediatric care and parental distress. Unclear TRAQ items were also noted as a challenge for adolescents. Strategies to address these barriers include regular discussions with healthcare providers, a comprehensive transition resource website, addressing emotional needs, providing parent guidance and offering flexible TRAQ administration options, for example, by leveraging technology (QR codes, choice of online or paper administration). Conclusion: This study highlighted the importance of addressing the informational and emotional needs of adolescents and parents for implementation, notably by engaging in discussions with clinicians and tailoring online transition readiness resources. Preferences and suggestions for TRAQ administration and resources will be integrated to align with patients and parents' needs and optimize implementation. Key Messages: The study identified key barriers to TRAQ implementation, including paediatric cancer survivors' lack of awareness of transition and understanding of the TRAQ, attachment to paediatric care and parental distress about long‐term follow‐up.Participants suggested strategies such as offering the TRAQ online, integrating it into wait times and enhancing awareness through individualized discussions.Addressing emotional needs through dedicated resources and incorporating discussions about transition‐related distress into the TRAQ implementation process is crucial.Participants preferred online resources over paper formats, and a webpage on transition resources was acceptable to both adolescents and parents.Results of this study are an essential first step in the preparation of a successful TRAQ implementation, with findings allowing better planning and adaptation of implementation to the local context and to adolescents and parents. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
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  Data: <i>Copyright of Child: Care, Health & Development is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1111/cch.70109
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      – Code: eng
        Text: English
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        PageCount: 12
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    Subjects:
      – SubjectFull: Tumors in children
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Qualitative research
        Type: general
      – SubjectFull: Focus groups
        Type: general
      – SubjectFull: Psychological distress
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Questionnaires
        Type: general
      – SubjectFull: Cancer patients
        Type: general
      – SubjectFull: Parent attitudes
        Type: general
      – SubjectFull: Emotions
        Type: general
      – SubjectFull: Transitional care
        Type: general
      – SubjectFull: Thematic analysis
        Type: general
      – SubjectFull: Medical screening
        Type: general
      – SubjectFull: Psychology of parents
        Type: general
      – SubjectFull: Needs assessment
        Type: general
      – SubjectFull: Patients' attitudes
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      – TitleFull: Preparing Implementation of Transition Readiness Screening: What Do Paediatric Cancer Survivors and Caregivers Want?
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              Text: Jul2025
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