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Family Caregivers' Burden and Coping With Caring for Children With Cerebral Palsy: A Qualitative Study in a Low‐Resourced Context, Ghana.

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Title: Family Caregivers' Burden and Coping With Caring for Children With Cerebral Palsy: A Qualitative Study in a Low‐Resourced Context, Ghana.
Authors: Kisinna, Asongo Akwobi, Ohene, Lillian Akorfa, Attafuah, Priscilla A. A.
Source: Child: Care, Health & Development. Jul2025, Vol. 51 Issue 4, p1-11. 11p.
Subjects: Families & psychology, Cerebral palsy treatment, Emotion regulation, Health literacy, Public hospitals, Psychology of children with disabilities, Qualitative research, Interviewing, Health, Cerebral palsy, Psychological adaptation, Judgment sampling, Information resources, Descriptive statistics, Burden of care, Family attitudes, Thematic analysis, Research, Research methodology, Parents of children with disabilities, Psychology of caregivers, Phenomenology, Comparative studies, Physiological stress, Social support, Resource-limited settings, Caregiver attitudes, Social stigma, Well-being, Psychosocial factors, Children
Geographic Terms: Ghana
Abstract: Background: The family caregivers of children with cerebral palsy experience various challenges during the caregiving trajectory. Objectives: This study explores the family caregivers' burden and coping strategies with caring for children with cerebral palsy in Tamale Metropolis, Ghana. Design: The study adopted an exploratory, descriptive phenomenological approach. Participants were recruited using a purposive sampling technique. Semistructured interviews were conducted, and we achieved data saturation with 15 participants. The data were analysed using a thematic approach. Findings The findings identified that physical strain, work‐related challenges and stigma constituted the primary caregiver's burden. The coping strategies employed included emotional coping, displacement/ignoring, seeking knowledge and religious coping. Implications: The nature of the care burden requires deliberate caregiver information and care support throughout the care trajectory. A formal support system will contribute to caregivers' effective and efficient coping with caring for children with cerebral palsy. Summary: In a low‐resource context, the caregiver burden of parents encompasses physical strain, work‐related challenges, and stigma, reflecting multifaceted difficulties faced in caring for children with cerebral palsy (CP).Physical exhaustion, sleep deprivation, and health issues such as waist pain are common, with caregivers often performing demanding tasks like feeding and bathing, primarily affecting mothers.Work‐related challenges include impacts on employment, such as reduced work attendance, decreased productivity, and economic hardships.Stigmatization is a significant social burden, with caregivers experiencing discrimination, social exclusion, and negative community perceptions rooted in myths and misconceptions about CP.Emotional coping mechanisms include maintaining composure, discussing frustrations with spouses, crying as an emotional release, and seeking spiritual solace through prayer and religious activities.Religious faith serves as a central pillar for resilience, with many caregivers believing that God's purpose, testing, or healing power provided comfort and strength.Regular prayer, religious entertainment, and listening to testimonies reinforce hope and acceptance, which facilitate emotional stability amidst ongoing challenges. [ABSTRACT FROM AUTHOR]
Copyright of Child: Care, Health & Development is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Family Caregivers' Burden and Coping With Caring for Children With Cerebral Palsy: A Qualitative Study in a Low‐Resourced Context, Ghana.
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  Data: <searchLink fieldCode="JN" term="%22Child%3A+Care%2C+Health+%26+Development%22">Child: Care, Health & Development</searchLink>. Jul2025, Vol. 51 Issue 4, p1-11. 11p.
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  Data: <searchLink fieldCode="DE" term="%22Ghana%22">Ghana</searchLink>
– Name: Abstract
  Label: Abstract
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  Data: Background: The family caregivers of children with cerebral palsy experience various challenges during the caregiving trajectory. Objectives: This study explores the family caregivers' burden and coping strategies with caring for children with cerebral palsy in Tamale Metropolis, Ghana. Design: The study adopted an exploratory, descriptive phenomenological approach. Participants were recruited using a purposive sampling technique. Semistructured interviews were conducted, and we achieved data saturation with 15 participants. The data were analysed using a thematic approach. Findings The findings identified that physical strain, work‐related challenges and stigma constituted the primary caregiver's burden. The coping strategies employed included emotional coping, displacement/ignoring, seeking knowledge and religious coping. Implications: The nature of the care burden requires deliberate caregiver information and care support throughout the care trajectory. A formal support system will contribute to caregivers' effective and efficient coping with caring for children with cerebral palsy. Summary: In a low‐resource context, the caregiver burden of parents encompasses physical strain, work‐related challenges, and stigma, reflecting multifaceted difficulties faced in caring for children with cerebral palsy (CP).Physical exhaustion, sleep deprivation, and health issues such as waist pain are common, with caregivers often performing demanding tasks like feeding and bathing, primarily affecting mothers.Work‐related challenges include impacts on employment, such as reduced work attendance, decreased productivity, and economic hardships.Stigmatization is a significant social burden, with caregivers experiencing discrimination, social exclusion, and negative community perceptions rooted in myths and misconceptions about CP.Emotional coping mechanisms include maintaining composure, discussing frustrations with spouses, crying as an emotional release, and seeking spiritual solace through prayer and religious activities.Religious faith serves as a central pillar for resilience, with many caregivers believing that God's purpose, testing, or healing power provided comfort and strength.Regular prayer, religious entertainment, and listening to testimonies reinforce hope and acceptance, which facilitate emotional stability amidst ongoing challenges. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Child: Care, Health & Development is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=187022037
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1111/cch.70141
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 11
        StartPage: 1
    Subjects:
      – SubjectFull: Families & psychology
        Type: general
      – SubjectFull: Cerebral palsy treatment
        Type: general
      – SubjectFull: Emotion regulation
        Type: general
      – SubjectFull: Health literacy
        Type: general
      – SubjectFull: Public hospitals
        Type: general
      – SubjectFull: Psychology of children with disabilities
        Type: general
      – SubjectFull: Qualitative research
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Health
        Type: general
      – SubjectFull: Cerebral palsy
        Type: general
      – SubjectFull: Psychological adaptation
        Type: general
      – SubjectFull: Judgment sampling
        Type: general
      – SubjectFull: Information resources
        Type: general
      – SubjectFull: Descriptive statistics
        Type: general
      – SubjectFull: Burden of care
        Type: general
      – SubjectFull: Family attitudes
        Type: general
      – SubjectFull: Thematic analysis
        Type: general
      – SubjectFull: Research
        Type: general
      – SubjectFull: Research methodology
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      – SubjectFull: Parents of children with disabilities
        Type: general
      – SubjectFull: Psychology of caregivers
        Type: general
      – SubjectFull: Phenomenology
        Type: general
      – SubjectFull: Comparative studies
        Type: general
      – SubjectFull: Physiological stress
        Type: general
      – SubjectFull: Social support
        Type: general
      – SubjectFull: Resource-limited settings
        Type: general
      – SubjectFull: Caregiver attitudes
        Type: general
      – SubjectFull: Social stigma
        Type: general
      – SubjectFull: Well-being
        Type: general
      – SubjectFull: Psychosocial factors
        Type: general
      – SubjectFull: Children
        Type: general
      – SubjectFull: Ghana
        Type: general
    Titles:
      – TitleFull: Family Caregivers' Burden and Coping With Caring for Children With Cerebral Palsy: A Qualitative Study in a Low‐Resourced Context, Ghana.
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            NameFull: Kisinna, Asongo Akwobi
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              Text: Jul2025
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