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Around-the-clock: Caregiving at night for juveniles living with type 1 diabetes – a systematic review.

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Title: Around-the-clock: Caregiving at night for juveniles living with type 1 diabetes – a systematic review.
Authors: Howard, Vivienne, Maguire, Rebecca, De Bruin, Enda, Deane-King, Jennifer, Duda, Natalie, Corrigan, Siobhan
Source: Psychology, Health & Medicine. Sep2025, Vol. 30 Issue 8, p1701-1722. 22p.
Subjects: Type 1 diabetes, Hospital night care, Medical information storage & retrieval systems, Research funding, Health impact assessment, Health status indicators, CINAHL database, Fatigue (Physiology), Services for caregivers, Decision making, Affective disorders, Age distribution, Burden of care, Experience, MEDLINE, Systematic reviews, Sleep deprivation, Technology, Psychology of caregivers, Child care, Sleep quality, Psychology information storage & retrieval systems
Abstract: Caring for children with type 1 diabetes (T1D) can require around-the-clock attention but there is little acknowledgment of the impact that nocturnal caregiving can have on caregivers in clinical care provision. This systematic review aimed to (1) explicate nocturnal caregiving practice (NCP) by identifying and synthesising peer-reviewed research to establish the prevalence and nature of NCP, (2) explore the impacts of NCP for caregivers, (3) evaluate the perceived value of technology for supporting NCP, and (4) examine potential solutions for mitigating NCP burden. In January, 2022, the databases CINAHL, MEDLINE, Web of Science, PsycINFO, Scopus and EMBASE were searched to identify peer-reviewed studies, published in English since 1997, which addressed NCP for juveniles with T1D. Quantitative, qualitative and mixed-methods studies were included. Risk of bias analysis was carried out using the quality assessment with diverse studies tool. Where possible, quantitative data were aggregated. Qualitative data was subjected to a narrative synthesis, using thematic analysis. Thirty-one studies met inclusion criteria, comprising 3,547 caregivers. 88% of caregivers engaged in NCP, though frequency was variable. Over 50% of participants (19–80%) failed to get adequate sleep and 54% reported poor sleep quality. Qualitative testimony detailed adverse impacts of NCP; exhaustion, difficulty making illness-management decisions, negative impacts on mood and physical health. Benefits from technology were equivocal. Evidence regarding predictors and associations for NCP, such as patient age, was contradictory. 83% of authors recommended that sleep be routinely addressed in clinic, which is not current practice. This review provides clear evidence that NCP in T1D is pervasive with significant negative impacts on caregivers. These secondary impacts of juvenile T1D need to be acknowledged so that care guidelines can be modified and psychosocial supports can be developed for use in clinical treatment environments. [ABSTRACT FROM AUTHOR]
Copyright of Psychology, Health & Medicine is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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  Data: Around-the-clock: Caregiving at night for juveniles living with type 1 diabetes – a systematic review.
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  Data: <searchLink fieldCode="AR" term="%22Howard%2C+Vivienne%22">Howard, Vivienne</searchLink><br /><searchLink fieldCode="AR" term="%22Maguire%2C+Rebecca%22">Maguire, Rebecca</searchLink><br /><searchLink fieldCode="AR" term="%22De+Bruin%2C+Enda%22">De Bruin, Enda</searchLink><br /><searchLink fieldCode="AR" term="%22Deane-King%2C+Jennifer%22">Deane-King, Jennifer</searchLink><br /><searchLink fieldCode="AR" term="%22Duda%2C+Natalie%22">Duda, Natalie</searchLink><br /><searchLink fieldCode="AR" term="%22Corrigan%2C+Siobhan%22">Corrigan, Siobhan</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22Psychology%2C+Health+%26+Medicine%22">Psychology, Health & Medicine</searchLink>. Sep2025, Vol. 30 Issue 8, p1701-1722. 22p.
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  Data: <searchLink fieldCode="DE" term="%22Type+1+diabetes%22">Type 1 diabetes</searchLink><br /><searchLink fieldCode="DE" term="%22Hospital+night+care%22">Hospital night care</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+information+storage+%26+retrieval+systems%22">Medical information storage & retrieval systems</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Health+impact+assessment%22">Health impact assessment</searchLink><br /><searchLink fieldCode="DE" term="%22Health+status+indicators%22">Health status indicators</searchLink><br /><searchLink fieldCode="DE" term="%22CINAHL+database%22">CINAHL database</searchLink><br /><searchLink fieldCode="DE" term="%22Fatigue+%28Physiology%29%22">Fatigue (Physiology)</searchLink><br /><searchLink fieldCode="DE" term="%22Services+for+caregivers%22">Services for caregivers</searchLink><br /><searchLink fieldCode="DE" term="%22Decision+making%22">Decision making</searchLink><br /><searchLink fieldCode="DE" term="%22Affective+disorders%22">Affective disorders</searchLink><br /><searchLink fieldCode="DE" term="%22Age+distribution%22">Age distribution</searchLink><br /><searchLink fieldCode="DE" term="%22Burden+of+care%22">Burden of care</searchLink><br /><searchLink fieldCode="DE" term="%22Experience%22">Experience</searchLink><br /><searchLink fieldCode="DE" term="%22MEDLINE%22">MEDLINE</searchLink><br /><searchLink fieldCode="DE" term="%22Systematic+reviews%22">Systematic reviews</searchLink><br /><searchLink fieldCode="DE" term="%22Sleep+deprivation%22">Sleep deprivation</searchLink><br /><searchLink fieldCode="DE" term="%22Technology%22">Technology</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+caregivers%22">Psychology of caregivers</searchLink><br /><searchLink fieldCode="DE" term="%22Child+care%22">Child care</searchLink><br /><searchLink fieldCode="DE" term="%22Sleep+quality%22">Sleep quality</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+information+storage+%26+retrieval+systems%22">Psychology information storage & retrieval systems</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Caring for children with type 1 diabetes (T1D) can require around-the-clock attention but there is little acknowledgment of the impact that nocturnal caregiving can have on caregivers in clinical care provision. This systematic review aimed to (1) explicate nocturnal caregiving practice (NCP) by identifying and synthesising peer-reviewed research to establish the prevalence and nature of NCP, (2) explore the impacts of NCP for caregivers, (3) evaluate the perceived value of technology for supporting NCP, and (4) examine potential solutions for mitigating NCP burden. In January, 2022, the databases CINAHL, MEDLINE, Web of Science, PsycINFO, Scopus and EMBASE were searched to identify peer-reviewed studies, published in English since 1997, which addressed NCP for juveniles with T1D. Quantitative, qualitative and mixed-methods studies were included. Risk of bias analysis was carried out using the quality assessment with diverse studies tool. Where possible, quantitative data were aggregated. Qualitative data was subjected to a narrative synthesis, using thematic analysis. Thirty-one studies met inclusion criteria, comprising 3,547 caregivers. 88% of caregivers engaged in NCP, though frequency was variable. Over 50% of participants (19–80%) failed to get adequate sleep and 54% reported poor sleep quality. Qualitative testimony detailed adverse impacts of NCP; exhaustion, difficulty making illness-management decisions, negative impacts on mood and physical health. Benefits from technology were equivocal. Evidence regarding predictors and associations for NCP, such as patient age, was contradictory. 83% of authors recommended that sleep be routinely addressed in clinic, which is not current practice. This review provides clear evidence that NCP in T1D is pervasive with significant negative impacts on caregivers. These secondary impacts of juvenile T1D need to be acknowledged so that care guidelines can be modified and psychosocial supports can be developed for use in clinical treatment environments. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
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  Data: <i>Copyright of Psychology, Health & Medicine is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1080/13548506.2025.2468529
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
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        PageCount: 22
        StartPage: 1701
    Subjects:
      – SubjectFull: Type 1 diabetes
        Type: general
      – SubjectFull: Hospital night care
        Type: general
      – SubjectFull: Medical information storage & retrieval systems
        Type: general
      – SubjectFull: Research funding
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      – SubjectFull: Health impact assessment
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      – SubjectFull: Health status indicators
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      – SubjectFull: CINAHL database
        Type: general
      – SubjectFull: Fatigue (Physiology)
        Type: general
      – SubjectFull: Services for caregivers
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      – SubjectFull: Decision making
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      – SubjectFull: Affective disorders
        Type: general
      – SubjectFull: Age distribution
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      – SubjectFull: Burden of care
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      – SubjectFull: Systematic reviews
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      – SubjectFull: Sleep deprivation
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      – SubjectFull: Technology
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      – SubjectFull: Psychology of caregivers
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      – SubjectFull: Child care
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      – SubjectFull: Sleep quality
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      – SubjectFull: Psychology information storage & retrieval systems
        Type: general
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      – TitleFull: Around-the-clock: Caregiving at night for juveniles living with type 1 diabetes – a systematic review.
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              M: 09
              Text: Sep2025
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