Integration of Family Navigation into ECHO Autism for Pediatric Primary Care in Underserved Communities.
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| Title: | Integration of Family Navigation into ECHO Autism for Pediatric Primary Care in Underserved Communities. |
|---|---|
| Authors: | Mazurek, Micah O. (AUTHOR), Nevill, Rose E. (AUTHOR), Orlando, Karen (AUTHOR), Page, Keith (AUTHOR), Howard, Mya (AUTHOR), Davis, Beth Ellen (AUTHOR) |
| Source: | Journal of Autism & Developmental Disorders. Oct2025, Vol. 55 Issue 10, p3553-3564. 12p. |
| Subjects: | Treatment of autism, Medically underserved areas, Health services accessibility, Community health services, Interdisciplinary education, Curriculum, Research funding, Self-efficacy, Children with disabilities, Primary health care, Evaluation of human services programs, Pilot projects, Questionnaires, Family roles, Continuing medical education, Descriptive statistics, Patient-centered care, Pediatrics, Telemedicine, Early intervention (Education), Family-centered care, Asperger's syndrome, Medical screening, Learning strategies, Comparative studies, Medical referrals, Integrated health care delivery, Children |
| Geographic Terms: | Virginia |
| Abstract: | Children with autism from underserved communities face complex system-, provider-, and family-level barriers to accessing timely diagnosis and early intervention. The current study evaluated the preliminary effects and feasibility of a new program (ECHO Autism LINKS) that integrated pediatric primary care provider (PCP) training with family navigation (FN) to bridge the gaps between screening, referral, and service access. Three cohorts of PCPs (n = 42) participated in the program, which consisted of 60-minute sessions delivered by Zoom twice per month for 12 months. Each session included didactics, case-based learning, and collaborative discussion with participants and an interdisciplinary team of experts. Family navigators were members of the expert team and provided FN services to families referred by PCP participants. Program attendance and engagement were strong, with 40 cases presented and 258 families referred for FN services, most of whom (83%) needed help accessing and connecting with services, and 13% required ongoing support due to complex needs. PCPs demonstrated significant improvements in self-efficacy in providing best-practice care for children with autism, reported high satisfaction, and observed improved knowledge and practice as a result of the program. The results of this initial pilot provide support for the feasibility, acceptability, and preliminary efficacy of the ECHO Autism LINKS program. The model holds promise in addressing complex barriers to healthcare access by providing both PCPs and families with the knowledge and support they need. Future research is needed to evaluate the efficacy and effectiveness of the program in improving child and family outcomes. [ABSTRACT FROM AUTHOR] |
| Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 188317744 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Integration of Family Navigation into ECHO Autism for Pediatric Primary Care in Underserved Communities. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Mazurek%2C+Micah+O%2E%22">Mazurek, Micah O.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Nevill%2C+Rose+E%2E%22">Nevill, Rose E.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Orlando%2C+Karen%22">Orlando, Karen</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Page%2C+Keith%22">Page, Keith</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Howard%2C+Mya%22">Howard, Mya</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Davis%2C+Beth+Ellen%22">Davis, Beth Ellen</searchLink> (AUTHOR) – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Journal+of+Autism+%26+Developmental+Disorders%22">Journal of Autism & Developmental Disorders</searchLink>. Oct2025, Vol. 55 Issue 10, p3553-3564. 12p. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Treatment+of+autism%22">Treatment of autism</searchLink><br /><searchLink fieldCode="DE" term="%22Medically+underserved+areas%22">Medically underserved areas</searchLink><br /><searchLink fieldCode="DE" term="%22Health+services+accessibility%22">Health services accessibility</searchLink><br /><searchLink fieldCode="DE" term="%22Community+health+services%22">Community health services</searchLink><br /><searchLink fieldCode="DE" term="%22Interdisciplinary+education%22">Interdisciplinary education</searchLink><br /><searchLink fieldCode="DE" term="%22Curriculum%22">Curriculum</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Self-efficacy%22">Self-efficacy</searchLink><br /><searchLink fieldCode="DE" term="%22Children+with+disabilities%22">Children with disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Primary+health+care%22">Primary health care</searchLink><br /><searchLink fieldCode="DE" term="%22Evaluation+of+human+services+programs%22">Evaluation of human services programs</searchLink><br /><searchLink fieldCode="DE" term="%22Pilot+projects%22">Pilot projects</searchLink><br /><searchLink fieldCode="DE" term="%22Questionnaires%22">Questionnaires</searchLink><br /><searchLink fieldCode="DE" term="%22Family+roles%22">Family roles</searchLink><br /><searchLink fieldCode="DE" term="%22Continuing+medical+education%22">Continuing medical education</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Patient-centered+care%22">Patient-centered care</searchLink><br /><searchLink fieldCode="DE" term="%22Pediatrics%22">Pediatrics</searchLink><br /><searchLink fieldCode="DE" term="%22Telemedicine%22">Telemedicine</searchLink><br /><searchLink fieldCode="DE" term="%22Early+intervention+%28Education%29%22">Early intervention (Education)</searchLink><br /><searchLink fieldCode="DE" term="%22Family-centered+care%22">Family-centered care</searchLink><br /><searchLink fieldCode="DE" term="%22Asperger's+syndrome%22">Asperger's syndrome</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+screening%22">Medical screening</searchLink><br /><searchLink fieldCode="DE" term="%22Learning+strategies%22">Learning strategies</searchLink><br /><searchLink fieldCode="DE" term="%22Comparative+studies%22">Comparative studies</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+referrals%22">Medical referrals</searchLink><br /><searchLink fieldCode="DE" term="%22Integrated+health+care+delivery%22">Integrated health care delivery</searchLink><br /><searchLink fieldCode="DE" term="%22Children%22">Children</searchLink> – Name: SubjectGeographic Label: Geographic Terms Group: Su Data: <searchLink fieldCode="DE" term="%22Virginia%22">Virginia</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Children with autism from underserved communities face complex system-, provider-, and family-level barriers to accessing timely diagnosis and early intervention. The current study evaluated the preliminary effects and feasibility of a new program (ECHO Autism LINKS) that integrated pediatric primary care provider (PCP) training with family navigation (FN) to bridge the gaps between screening, referral, and service access. Three cohorts of PCPs (n = 42) participated in the program, which consisted of 60-minute sessions delivered by Zoom twice per month for 12 months. Each session included didactics, case-based learning, and collaborative discussion with participants and an interdisciplinary team of experts. Family navigators were members of the expert team and provided FN services to families referred by PCP participants. Program attendance and engagement were strong, with 40 cases presented and 258 families referred for FN services, most of whom (83%) needed help accessing and connecting with services, and 13% required ongoing support due to complex needs. PCPs demonstrated significant improvements in self-efficacy in providing best-practice care for children with autism, reported high satisfaction, and observed improved knowledge and practice as a result of the program. The results of this initial pilot provide support for the feasibility, acceptability, and preliminary efficacy of the ECHO Autism LINKS program. The model holds promise in addressing complex barriers to healthcare access by providing both PCPs and families with the knowledge and support they need. Future research is needed to evaluate the efficacy and effectiveness of the program in improving child and family outcomes. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1007/s10803-024-06445-9 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 12 StartPage: 3553 Subjects: – SubjectFull: Treatment of autism Type: general – SubjectFull: Medically underserved areas Type: general – SubjectFull: Health services accessibility Type: general – SubjectFull: Community health services Type: general – SubjectFull: Interdisciplinary education Type: general – SubjectFull: Curriculum Type: general – SubjectFull: Research funding Type: general – SubjectFull: Self-efficacy Type: general – SubjectFull: Children with disabilities Type: general – SubjectFull: Primary health care Type: general – SubjectFull: Evaluation of human services programs Type: general – SubjectFull: Pilot projects Type: general – SubjectFull: Questionnaires Type: general – SubjectFull: Family roles Type: general – SubjectFull: Continuing medical education Type: general – SubjectFull: Descriptive statistics Type: general – SubjectFull: Patient-centered care Type: general – SubjectFull: Pediatrics Type: general – SubjectFull: Telemedicine Type: general – SubjectFull: Early intervention (Education) Type: general – SubjectFull: Family-centered care Type: general – SubjectFull: Asperger's syndrome Type: general – SubjectFull: Medical screening Type: general – SubjectFull: Learning strategies Type: general – SubjectFull: Comparative studies Type: general – SubjectFull: Medical referrals Type: general – SubjectFull: Integrated health care delivery Type: general – SubjectFull: Children Type: general – SubjectFull: Virginia Type: general Titles: – TitleFull: Integration of Family Navigation into ECHO Autism for Pediatric Primary Care in Underserved Communities. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Mazurek, Micah O. – PersonEntity: Name: NameFull: Nevill, Rose E. – PersonEntity: Name: NameFull: Orlando, Karen – PersonEntity: Name: NameFull: Page, Keith – PersonEntity: Name: NameFull: Howard, Mya – PersonEntity: Name: NameFull: Davis, Beth Ellen IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 10 Text: Oct2025 Type: published Y: 2025 Identifiers: – Type: issn-print Value: 01623257 Numbering: – Type: volume Value: 55 – Type: issue Value: 10 Titles: – TitleFull: Journal of Autism & Developmental Disorders Type: main |
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