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Coping with Tourette's syndrome: a meta-ethnography of individual and family perspectives.

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Title: Coping with Tourette's syndrome: a meta-ethnography of individual and family perspectives.
Authors: Maxwell-Scott, Melanie (AUTHOR), O'Keeffe, Fiadhnait (AUTHOR), Eccles, Fiona J. R. (AUTHOR)
Source: Psychology & Health. Nov2025, Vol. 40 Issue 11, p1833-1855. 23p.
Subjects: Risk assessment, Qualitative research, Group identity, Tic disorders, Academic accommodations, CINAHL database, Psychological adaptation, Parent attitudes, Tourette syndrome, Systematic reviews, Attitude (Psychology), Social attitudes, MEDLINE, Teachers, Crowds, Social context, Social skills, Psychology of parents, Individual development, Social support, Patients' attitudes, Self-perception, Psychology information storage & retrieval systems, Social stigma, Friendship, Social isolation, Symptoms
Abstract: Objective: This systematic review and meta-ethnography aimed to examine how children, adults and families cope with Tourette's syndrome (TS). Methods: A systematic search of four databases was completed in October 2022. Sixteen papers met the inclusion criteria and were synthesised using Noblit and Hare's (1988) meta-ethnographic approach. Results: Three themes were constructed: redefining the self and social identity, controlling the visible presentation of Tourette's syndrome, and challenging the narrative. Conclusion: Findings indicate that coping involves the need to integrate TS with identity, to exert control over tics and to challenge the misrepresentations of TS in wider society. A supportive environment provided by parents and friends enables individuals to feel proud that they can control their tics, and this allows for the positive integration of TS into identity. Raising awareness at a societal level through educational campaigns is important when aiming to improve coping with a stigmatised condition. Further research is recommended, for example, to understand how common co-occurring conditions, such as attention deficit hyperactivity disorder, impact coping. [ABSTRACT FROM AUTHOR]
Copyright of Psychology & Health is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Coping with Tourette's syndrome: a meta-ethnography of individual and family perspectives.
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  Data: Objective: This systematic review and meta-ethnography aimed to examine how children, adults and families cope with Tourette's syndrome (TS). Methods: A systematic search of four databases was completed in October 2022. Sixteen papers met the inclusion criteria and were synthesised using Noblit and Hare's (1988) meta-ethnographic approach. Results: Three themes were constructed: redefining the self and social identity, controlling the visible presentation of Tourette's syndrome, and challenging the narrative. Conclusion: Findings indicate that coping involves the need to integrate TS with identity, to exert control over tics and to challenge the misrepresentations of TS in wider society. A supportive environment provided by parents and friends enables individuals to feel proud that they can control their tics, and this allows for the positive integration of TS into identity. Raising awareness at a societal level through educational campaigns is important when aiming to improve coping with a stigmatised condition. Further research is recommended, for example, to understand how common co-occurring conditions, such as attention deficit hyperactivity disorder, impact coping. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Psychology & Health is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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      – Type: doi
        Value: 10.1080/08870446.2024.2360126
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      – Code: eng
        Text: English
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        PageCount: 23
        StartPage: 1833
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      – SubjectFull: Risk assessment
        Type: general
      – SubjectFull: Qualitative research
        Type: general
      – SubjectFull: Group identity
        Type: general
      – SubjectFull: Tic disorders
        Type: general
      – SubjectFull: Academic accommodations
        Type: general
      – SubjectFull: CINAHL database
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      – SubjectFull: Psychological adaptation
        Type: general
      – SubjectFull: Parent attitudes
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      – SubjectFull: Tourette syndrome
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      – SubjectFull: Systematic reviews
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      – SubjectFull: Attitude (Psychology)
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      – SubjectFull: Friendship
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      – SubjectFull: Social isolation
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      – SubjectFull: Symptoms
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      – TitleFull: Coping with Tourette's syndrome: a meta-ethnography of individual and family perspectives.
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              Text: Nov2025
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