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Caregiver Perspectives on Telehealth Assessment and Other Supports for Infants with Early Developmental Concerns.

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Title: Caregiver Perspectives on Telehealth Assessment and Other Supports for Infants with Early Developmental Concerns.
Authors: Schmidt, Daltrey (AUTHOR), Urias, Chloe (AUTHOR), Dufek, Sarah (AUTHOR), Talbott, Meagan R. (AUTHOR)
Source: Journal of Autism & Developmental Disorders. Nov2025, Vol. 55 Issue 11, p3811-3821. 11p.
Subjects: Diagnosis of autism, Diagnosis of child development deviations, Community support, Infant development, Research funding, Interviewing, Content analysis, Uncertainty, Services for caregivers, Classification of mental disorders, Telemedicine, Thematic analysis, Research methodology, Social skills, Family support, Asperger's syndrome, Caregiver attitudes, Video recording
Abstract: This study examined the experiences of families of children with developmental concerns in the first year of life, before formal diagnostic evaluations are typically conducted. We aimed to understand the impact of participation in a telehealth-based research evaluation in infancy, identify existing community-based supports perceived favorably by caregivers, and identify suggestions for future directions. Participants were recruited from an prior study evaluating a telehealth assessment for infants with early social communication delays. Here, we interviewed caregivers (n = 19) who participated in follow-up study in toddlerhood. Transcripts from the semi-structured interviews were transcribed and analyzed using both inductive thematic and content coding approaches. Analysis of these interviews resulted in four core themes describing caregiving during this time: (1) Caregivers felt lonely, overwhelmed, and dismissed by providers, leading to feelings of uncertainty about their child's development and future; (2) Telehealth assessments were appreciated because external supports are minimal, complex to navigate, and do not address all areas of need; (3) Desire for additional community and connection; and (4) Information is power. Caregivers reported participating in the telehealth assessments helped them to feel reassured, validated and supported. Outside the study, they sought a wide variety of services and resources. The most frequent requests were for parent coaching sessions and family navigation. Caregivers experienced uncertainty and disempowerment during the pre-diagnostic period and sought education and guidance during this time. Findings reflect the importance of centering family priorities when developing early intervention services for infants with elevated likelihood of autism. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Caregiver Perspectives on Telehealth Assessment and Other Supports for Infants with Early Developmental Concerns.
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  Data: <searchLink fieldCode="AR" term="%22Schmidt%2C+Daltrey%22">Schmidt, Daltrey</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Urias%2C+Chloe%22">Urias, Chloe</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Dufek%2C+Sarah%22">Dufek, Sarah</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Talbott%2C+Meagan+R%2E%22">Talbott, Meagan R.</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Journal+of+Autism+%26+Developmental+Disorders%22">Journal of Autism & Developmental Disorders</searchLink>. Nov2025, Vol. 55 Issue 11, p3811-3821. 11p.
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  Data: <searchLink fieldCode="DE" term="%22Diagnosis+of+autism%22">Diagnosis of autism</searchLink><br /><searchLink fieldCode="DE" term="%22Diagnosis+of+child+development+deviations%22">Diagnosis of child development deviations</searchLink><br /><searchLink fieldCode="DE" term="%22Community+support%22">Community support</searchLink><br /><searchLink fieldCode="DE" term="%22Infant+development%22">Infant development</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Content+analysis%22">Content analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Uncertainty%22">Uncertainty</searchLink><br /><searchLink fieldCode="DE" term="%22Services+for+caregivers%22">Services for caregivers</searchLink><br /><searchLink fieldCode="DE" term="%22Classification+of+mental+disorders%22">Classification of mental disorders</searchLink><br /><searchLink fieldCode="DE" term="%22Telemedicine%22">Telemedicine</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Social+skills%22">Social skills</searchLink><br /><searchLink fieldCode="DE" term="%22Family+support%22">Family support</searchLink><br /><searchLink fieldCode="DE" term="%22Asperger's+syndrome%22">Asperger's syndrome</searchLink><br /><searchLink fieldCode="DE" term="%22Caregiver+attitudes%22">Caregiver attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Video+recording%22">Video recording</searchLink>
– Name: Abstract
  Label: Abstract
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  Data: This study examined the experiences of families of children with developmental concerns in the first year of life, before formal diagnostic evaluations are typically conducted. We aimed to understand the impact of participation in a telehealth-based research evaluation in infancy, identify existing community-based supports perceived favorably by caregivers, and identify suggestions for future directions. Participants were recruited from an prior study evaluating a telehealth assessment for infants with early social communication delays. Here, we interviewed caregivers (n = 19) who participated in follow-up study in toddlerhood. Transcripts from the semi-structured interviews were transcribed and analyzed using both inductive thematic and content coding approaches. Analysis of these interviews resulted in four core themes describing caregiving during this time: (1) Caregivers felt lonely, overwhelmed, and dismissed by providers, leading to feelings of uncertainty about their child's development and future; (2) Telehealth assessments were appreciated because external supports are minimal, complex to navigate, and do not address all areas of need; (3) Desire for additional community and connection; and (4) Information is power. Caregivers reported participating in the telehealth assessments helped them to feel reassured, validated and supported. Outside the study, they sought a wide variety of services and resources. The most frequent requests were for parent coaching sessions and family navigation. Caregivers experienced uncertainty and disempowerment during the pre-diagnostic period and sought education and guidance during this time. Findings reflect the importance of centering family priorities when developing early intervention services for infants with elevated likelihood of autism. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
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  Group: Ab
  Data: <i>Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=189005192
RecordInfo BibRecord:
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      – Type: doi
        Value: 10.1007/s10803-024-06483-3
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      – Code: eng
        Text: English
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        PageCount: 11
        StartPage: 3811
    Subjects:
      – SubjectFull: Diagnosis of autism
        Type: general
      – SubjectFull: Diagnosis of child development deviations
        Type: general
      – SubjectFull: Community support
        Type: general
      – SubjectFull: Infant development
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Content analysis
        Type: general
      – SubjectFull: Uncertainty
        Type: general
      – SubjectFull: Services for caregivers
        Type: general
      – SubjectFull: Classification of mental disorders
        Type: general
      – SubjectFull: Telemedicine
        Type: general
      – SubjectFull: Thematic analysis
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      – SubjectFull: Research methodology
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      – SubjectFull: Social skills
        Type: general
      – SubjectFull: Family support
        Type: general
      – SubjectFull: Asperger's syndrome
        Type: general
      – SubjectFull: Caregiver attitudes
        Type: general
      – SubjectFull: Video recording
        Type: general
    Titles:
      – TitleFull: Caregiver Perspectives on Telehealth Assessment and Other Supports for Infants with Early Developmental Concerns.
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            NameFull: Urias, Chloe
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              Text: Nov2025
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              Y: 2025
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