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What are the unmet needs in people affected by dementia? A scoping review of reviews.

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Title: What are the unmet needs in people affected by dementia? A scoping review of reviews.
Authors: Koh, Wei Qi (AUTHOR), Roes, Martina (AUTHOR), de Vugt, Marjolein (AUTHOR), Sezgin, Duygu (AUTHOR), Gonçalves-Pereira, Manuel (AUTHOR), Müller, Nicole (AUTHOR), Diaz, Ana (AUTHOR), Casey, Dympna (AUTHOR), Ingram, Chantal (AUTHOR), Walden, Amy Kate (AUTHOR), Thyrian, Jochen René (AUTHOR), Neal, David (AUTHOR), Comas, Adelina (AUTHOR), Hopper, Louise (AUTHOR)
Source: Aging & Mental Health. Nov2025, Vol. 29 Issue 11, p1943-1966. 24p.
Subjects: Treatment of dementia, Social determinants of health, Psychological distress, CINAHL database, Descriptive statistics, Loneliness, MEDLINE, Systematic reviews, Quality of life, Dementia, Psychology of caregivers, Medical needs assessment, Needs assessment, Online information services, Health equity, Health education, Dementia patients, Activities of daily living
Abstract: Objectives: To examine through a social health lens the unmet needs of people affected by dementia, which includes people with dementia, their informal and formal (or professional) caregivers. 'Unmet needs' was conceptualised as inaccessible or a lack of appropriate interventions to address identified problems. Method: A scoping review of reviews was conducted. Five electronic databases were searched, followed by a two-stage-screening process. Data were extracted into a standardised sheet comprising study characteristics and domains from the Camberwell Assessment of Needs for the Elderly (CANE), and narratively synthesised. Unmet needs of people with dementia were mapped onto a social health framework. Results: Eighty-five reviews were included. The most frequently reported unmet needs of people with dementia were related to psychological distress, lack of daytime activities, and company, all of which contribute to poorer social health. Informal caregivers most frequently reported a lack of information about the disease trajectory, post-diagnostic care, and home-based practical support. Formal caregivers had related information needs; their psychological distress stemmed from a range of sources. Conclusion: This review of reviews provides a high-level synthesis of the unmet needs of people affected by dementia. It underscores fundamental knowledge gaps and shortcomings in existing interventions and services particularly for formal and informal caregivers. [ABSTRACT FROM AUTHOR]
Copyright of Aging & Mental Health is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: What are the unmet needs in people affected by dementia? A scoping review of reviews.
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  Label: Abstract
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  Data: Objectives: To examine through a social health lens the unmet needs of people affected by dementia, which includes people with dementia, their informal and formal (or professional) caregivers. 'Unmet needs' was conceptualised as inaccessible or a lack of appropriate interventions to address identified problems. Method: A scoping review of reviews was conducted. Five electronic databases were searched, followed by a two-stage-screening process. Data were extracted into a standardised sheet comprising study characteristics and domains from the Camberwell Assessment of Needs for the Elderly (CANE), and narratively synthesised. Unmet needs of people with dementia were mapped onto a social health framework. Results: Eighty-five reviews were included. The most frequently reported unmet needs of people with dementia were related to psychological distress, lack of daytime activities, and company, all of which contribute to poorer social health. Informal caregivers most frequently reported a lack of information about the disease trajectory, post-diagnostic care, and home-based practical support. Formal caregivers had related information needs; their psychological distress stemmed from a range of sources. Conclusion: This review of reviews provides a high-level synthesis of the unmet needs of people affected by dementia. It underscores fundamental knowledge gaps and shortcomings in existing interventions and services particularly for formal and informal caregivers. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Aging & Mental Health is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=189083023
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        Value: 10.1080/13607863.2025.2534406
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        Text: English
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      – SubjectFull: Psychological distress
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      – SubjectFull: Dementia patients
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