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Conducting ethical, co-produced research with autistic individuals with an eating disorder: best practice guidelines.

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Title: Conducting ethical, co-produced research with autistic individuals with an eating disorder: best practice guidelines.
Authors: Nimbley, Emy (AUTHOR), Maloney, Ellen (AUTHOR), Gillespie-Smith, Karri (AUTHOR), Sharpe, Helen (AUTHOR), Buchan, Kyle (AUTHOR), Kettley, Sarah (AUTHOR), Bragg, Jessica (AUTHOR), Shepherd, Alison (AUTHOR), Choat, Becky (AUTHOR), Long, Joseph (AUTHOR), Whateley, Isla (AUTHOR), Booth, Ollie (AUTHOR), Baker, Julie-Anne (AUTHOR), Renton, Nix (AUTHOR), Nuttal, Emily (AUTHOR), Darley, Harriet (AUTHOR), Fidgin, Lin (AUTHOR), Campbell, Laura (AUTHOR), Suratwala, Tasha (AUTHOR), Temple, Casper (AUTHOR)
Source: Eating Disorders. Jan/Feb2026, Vol. 34 Issue 1, p90-100. 11p.
Subjects: Treatment of eating disorders, Treatment of autism, Medical protocols, Parents, Health literacy, Interprofessional relations, Autism, Leadership, Goal (Psychology), Eating disorders, Caregivers, Medical research, Adult education workshops, Asperger's syndrome, Physicians, Medical practice, Disease complications
Abstract: There is a notable overlap between autism and eating disorders (EDs), and autistic individuals may experience poorer ED treatment outcomes than non-autistic peers. To make meaningful change in this field, it is imperative that we actively engage in co-production of research, however there are currently no guidelines to support co-production with autistic people with eating disorders. This paper reports on best practice guidelines that were co-produced across a series of workshops bringing together autistic people with EDs, researchers, clinicians, third-sector organisations, and parents/carers. The guidelines are intended to be used as a foundation for future co-produced autism and ED research. By creating a trusted, ethical co-production relationship, we hope to generate more clinically meaningful and translatable research. CLINICAL IMPLICATIONS: There is increasing awareness of an overlap between autism and eating disorders and concerns around the effectiveness of eating disorder treatment for this population There is a lack of research with autistic individuals with eating disorders and a pressing need to prioritise meaningful co-produced research Clinical practice should be informed by autism-affirming eating disorder research [ABSTRACT FROM AUTHOR]
Copyright of Eating Disorders is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Conducting ethical, co-produced research with autistic individuals with an eating disorder: best practice guidelines.
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  Data: There is a notable overlap between autism and eating disorders (EDs), and autistic individuals may experience poorer ED treatment outcomes than non-autistic peers. To make meaningful change in this field, it is imperative that we actively engage in co-production of research, however there are currently no guidelines to support co-production with autistic people with eating disorders. This paper reports on best practice guidelines that were co-produced across a series of workshops bringing together autistic people with EDs, researchers, clinicians, third-sector organisations, and parents/carers. The guidelines are intended to be used as a foundation for future co-produced autism and ED research. By creating a trusted, ethical co-production relationship, we hope to generate more clinically meaningful and translatable research. CLINICAL IMPLICATIONS: There is increasing awareness of an overlap between autism and eating disorders and concerns around the effectiveness of eating disorder treatment for this population There is a lack of research with autistic individuals with eating disorders and a pressing need to prioritise meaningful co-produced research Clinical practice should be informed by autism-affirming eating disorder research [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Eating Disorders is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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        Value: 10.1080/10640266.2024.2441540
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