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Experiences of Spanish-Speaking Families with a Remote Neurodevelopmental Assessment.

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Title: Experiences of Spanish-Speaking Families with a Remote Neurodevelopmental Assessment.
Authors: Kinard, Jessica L. (AUTHOR), Lopez-Vazquez, Mónica (AUTHOR), Robinson, Luz E. (AUTHOR), Moreno-Lizarazo, Oscar (AUTHOR), Litwin, Sophie G. (AUTHOR), Aguirre, Anggie N. (AUTHOR), Ramirez, Chavely Gonzalez (AUTHOR), Brooks, Luisa (AUTHOR), DeRamus, Margaret (AUTHOR), Grzadzinski, Rebecca (AUTHOR), Wheeler, Anne (AUTHOR), Kelleher, Bridgette (AUTHOR), Okoniewski, Katherine C. (AUTHOR)
Source: Journal of Autism & Developmental Disorders. Jan2026, Vol. 56 Issue 1, p183-212. 30p.
Subjects: Families & psychology, Emigration & immigration, Infant development, Qualitative research, Research funding, Neural development, Autism, Interviewing, Questionnaires, Spaniards, Descriptive statistics, Experience, Sound recordings, Thematic analysis, Spanish language, Research methodology, Trust, Asperger's syndrome, Grounded theory, Psychological tests, Data analysis software, Video recording
Geographic Terms: United States
Abstract: U.S. Hispanic families with limited English proficiency experience barriers to autism diagnosis, such as lack of Spanish-speaking providers and assessments. Remote assessments in Spanish have the potential to address some of these barriers. This study explored the acceptability and feasibility of a remote developmental assessment (Parent Administered Neurodevelopmental Assessment, i.e., PANDABox) for Hispanic infants at high likelihood for autism. The PANDABox was translated into Spanish by two independent groups, synthesized, and reviewed by 10 native Spanish-speakers. Thirteen Spanish-speaking families completed the PANDABox-Spanish with their infant at high likelihood for autism. Remote developmental measures that exist in Spanish were administered for comparison. Families then participated in semi-structured interviews to explore their experiences, which were analyzed in Spanish using an inductive, grounded theory approach. Translation reviewers revealed the need to adapt peekaboo and storybook activities, build in dialogue addressing caregivers' concerns, and add visual supports. PANDABox families valued communicating directly to a Spanish-speaking specialist, felt that the translation was clear, and that, overall, the administration was easy. Families had mixed preferences for in-person or remote assessments, with some families valuing the accessibility and comfort of the PANDABox and others expressing concerns about the validity of remote versus in-person options. Families also discussed barriers related to literacy and confidentiality. The PANDABox-Spanish is a promising option for increasing accessibility to laboratory-grade neurodevelopmental assessment. More broadly, providers need to consider families' familiarity with common assessment activities, access to information about early identification, and concerns related to confidentiality. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Experiences of Spanish-Speaking Families with a Remote Neurodevelopmental Assessment.
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  Data: <searchLink fieldCode="AR" term="%22Kinard%2C+Jessica+L%2E%22">Kinard, Jessica L.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Lopez-Vazquez%2C+Mónica%22">Lopez-Vazquez, Mónica</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Robinson%2C+Luz+E%2E%22">Robinson, Luz E.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Moreno-Lizarazo%2C+Oscar%22">Moreno-Lizarazo, Oscar</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Litwin%2C+Sophie+G%2E%22">Litwin, Sophie G.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Aguirre%2C+Anggie+N%2E%22">Aguirre, Anggie N.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Ramirez%2C+Chavely+Gonzalez%22">Ramirez, Chavely Gonzalez</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Brooks%2C+Luisa%22">Brooks, Luisa</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22DeRamus%2C+Margaret%22">DeRamus, Margaret</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Grzadzinski%2C+Rebecca%22">Grzadzinski, Rebecca</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Wheeler%2C+Anne%22">Wheeler, Anne</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Kelleher%2C+Bridgette%22">Kelleher, Bridgette</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Okoniewski%2C+Katherine+C%2E%22">Okoniewski, Katherine C.</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Journal+of+Autism+%26+Developmental+Disorders%22">Journal of Autism & Developmental Disorders</searchLink>. Jan2026, Vol. 56 Issue 1, p183-212. 30p.
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  Data: <searchLink fieldCode="DE" term="%22Families+%26+psychology%22">Families & psychology</searchLink><br /><searchLink fieldCode="DE" term="%22Emigration+%26+immigration%22">Emigration & immigration</searchLink><br /><searchLink fieldCode="DE" term="%22Infant+development%22">Infant development</searchLink><br /><searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Neural+development%22">Neural development</searchLink><br /><searchLink fieldCode="DE" term="%22Autism%22">Autism</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Questionnaires%22">Questionnaires</searchLink><br /><searchLink fieldCode="DE" term="%22Spaniards%22">Spaniards</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Experience%22">Experience</searchLink><br /><searchLink fieldCode="DE" term="%22Sound+recordings%22">Sound recordings</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Spanish+language%22">Spanish language</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Trust%22">Trust</searchLink><br /><searchLink fieldCode="DE" term="%22Asperger's+syndrome%22">Asperger's syndrome</searchLink><br /><searchLink fieldCode="DE" term="%22Grounded+theory%22">Grounded theory</searchLink><br /><searchLink fieldCode="DE" term="%22Psychological+tests%22">Psychological tests</searchLink><br /><searchLink fieldCode="DE" term="%22Data+analysis+software%22">Data analysis software</searchLink><br /><searchLink fieldCode="DE" term="%22Video+recording%22">Video recording</searchLink>
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  Data: U.S. Hispanic families with limited English proficiency experience barriers to autism diagnosis, such as lack of Spanish-speaking providers and assessments. Remote assessments in Spanish have the potential to address some of these barriers. This study explored the acceptability and feasibility of a remote developmental assessment (Parent Administered Neurodevelopmental Assessment, i.e., PANDABox) for Hispanic infants at high likelihood for autism. The PANDABox was translated into Spanish by two independent groups, synthesized, and reviewed by 10 native Spanish-speakers. Thirteen Spanish-speaking families completed the PANDABox-Spanish with their infant at high likelihood for autism. Remote developmental measures that exist in Spanish were administered for comparison. Families then participated in semi-structured interviews to explore their experiences, which were analyzed in Spanish using an inductive, grounded theory approach. Translation reviewers revealed the need to adapt peekaboo and storybook activities, build in dialogue addressing caregivers' concerns, and add visual supports. PANDABox families valued communicating directly to a Spanish-speaking specialist, felt that the translation was clear, and that, overall, the administration was easy. Families had mixed preferences for in-person or remote assessments, with some families valuing the accessibility and comfort of the PANDABox and others expressing concerns about the validity of remote versus in-person options. Families also discussed barriers related to literacy and confidentiality. The PANDABox-Spanish is a promising option for increasing accessibility to laboratory-grade neurodevelopmental assessment. More broadly, providers need to consider families' familiarity with common assessment activities, access to information about early identification, and concerns related to confidentiality. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=191290299
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      – Type: doi
        Value: 10.1007/s10803-024-06538-5
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      – Code: eng
        Text: English
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        PageCount: 30
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      – SubjectFull: Families & psychology
        Type: general
      – SubjectFull: Emigration & immigration
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      – SubjectFull: Infant development
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      – SubjectFull: Qualitative research
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      – SubjectFull: Research funding
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      – SubjectFull: Spaniards
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      – SubjectFull: Descriptive statistics
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      – SubjectFull: Experience
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      – SubjectFull: Sound recordings
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      – SubjectFull: Spanish language
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