OUTCOME MEASURES IN MUSCULAR DYSTROPHY REHABILITATION: AN ICF CONTENT COMPARISON APPROACH TO THE MOST COMMONLY USED MD SCALES.
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| Title: | OUTCOME MEASURES IN MUSCULAR DYSTROPHY REHABILITATION: AN ICF CONTENT COMPARISON APPROACH TO THE MOST COMMONLY USED MD SCALES. |
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| Authors: | TARANU, Mihaela, SEBIO-GARCÍA, Raquel, MILISENDA, José C., ALEJALDRE, Aida, PASTOR, Xavier, LAXE, Sara |
| Source: | Journal of Rehabilitation Medicine. 2025, Issue 57, p1-11. 11p. |
| Subjects: | Muscular dystrophy treatment, Treatment effectiveness, International Classification of Functioning, Disability & Health, Biopsychosocial model, Functional status |
| Abstract: | Introduction: Functioning is the reason to be of rehabilitation as it is essential to the lives of people who suffer from a disease. The International Classification of Functioning, Disability and Health (ICF) can help in designing a functioning profile of a patient, identifying needs for rehabilitation plans and measuring the results of an intervention. Objective: To identify the outcome measurement instruments reported in clinical studies in muscular dystrophies (MDs) and provide an ICF content analysis. Method: A systematic literature review was conducted until October 2022, using Medline, PubMed, and Scopus databases. Papers assessing outcomes related to functioning in patients with MDs were included. Results: A total of 116 papers were included and all identified outcome measures were linked to the ICF. Inter-researcher agreement for the linking process was 0.82. The analysed instruments focused mainly on aspects of body functions, followed by activities and participation. General scales were more comprehensive than specific. Conclusions: The application of ICF in this research enhances the understanding of functioning of patients with MDs and the need to develop more specific but comprehensive scales tailored to the needs of MD patients, and can guide clinicians in a assessing patients through a biopsychosocial perspective. [ABSTRACT FROM AUTHOR] |
| Copyright of Journal of Rehabilitation Medicine is the property of Foundation of Rehabilitation Medicine and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 191758201 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: OUTCOME MEASURES IN MUSCULAR DYSTROPHY REHABILITATION: AN ICF CONTENT COMPARISON APPROACH TO THE MOST COMMONLY USED MD SCALES. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22TARANU%2C+Mihaela%22">TARANU, Mihaela</searchLink><br /><searchLink fieldCode="AR" term="%22SEBIO-GARCÍA%2C+Raquel%22">SEBIO-GARCÍA, Raquel</searchLink><br /><searchLink fieldCode="AR" term="%22MILISENDA%2C+José+C%2E%22">MILISENDA, José C.</searchLink><br /><searchLink fieldCode="AR" term="%22ALEJALDRE%2C+Aida%22">ALEJALDRE, Aida</searchLink><br /><searchLink fieldCode="AR" term="%22PASTOR%2C+Xavier%22">PASTOR, Xavier</searchLink><br /><searchLink fieldCode="AR" term="%22LAXE%2C+Sara%22">LAXE, Sara</searchLink> – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Journal+of+Rehabilitation+Medicine%22">Journal of Rehabilitation Medicine</searchLink>. 2025, Issue 57, p1-11. 11p. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Muscular+dystrophy+treatment%22">Muscular dystrophy treatment</searchLink><br /><searchLink fieldCode="DE" term="%22Treatment+effectiveness%22">Treatment effectiveness</searchLink><br /><searchLink fieldCode="DE" term="%22International+Classification+of+Functioning%2C+Disability+%26+Health%22">International Classification of Functioning, Disability & Health</searchLink><br /><searchLink fieldCode="DE" term="%22Biopsychosocial+model%22">Biopsychosocial model</searchLink><br /><searchLink fieldCode="DE" term="%22Functional+status%22">Functional status</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Introduction: Functioning is the reason to be of rehabilitation as it is essential to the lives of people who suffer from a disease. The International Classification of Functioning, Disability and Health (ICF) can help in designing a functioning profile of a patient, identifying needs for rehabilitation plans and measuring the results of an intervention. Objective: To identify the outcome measurement instruments reported in clinical studies in muscular dystrophies (MDs) and provide an ICF content analysis. Method: A systematic literature review was conducted until October 2022, using Medline, PubMed, and Scopus databases. Papers assessing outcomes related to functioning in patients with MDs were included. Results: A total of 116 papers were included and all identified outcome measures were linked to the ICF. Inter-researcher agreement for the linking process was 0.82. The analysed instruments focused mainly on aspects of body functions, followed by activities and participation. General scales were more comprehensive than specific. Conclusions: The application of ICF in this research enhances the understanding of functioning of patients with MDs and the need to develop more specific but comprehensive scales tailored to the needs of MD patients, and can guide clinicians in a assessing patients through a biopsychosocial perspective. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Journal of Rehabilitation Medicine is the property of Foundation of Rehabilitation Medicine and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=191758201 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.2340/jrm.v57.40327 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 11 StartPage: 1 Subjects: – SubjectFull: Muscular dystrophy treatment Type: general – SubjectFull: Treatment effectiveness Type: general – SubjectFull: International Classification of Functioning, Disability & Health Type: general – SubjectFull: Biopsychosocial model Type: general – SubjectFull: Functional status Type: general Titles: – TitleFull: OUTCOME MEASURES IN MUSCULAR DYSTROPHY REHABILITATION: AN ICF CONTENT COMPARISON APPROACH TO THE MOST COMMONLY USED MD SCALES. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: TARANU, Mihaela – PersonEntity: Name: NameFull: SEBIO-GARCÍA, Raquel – PersonEntity: Name: NameFull: MILISENDA, José C. – PersonEntity: Name: NameFull: ALEJALDRE, Aida – PersonEntity: Name: NameFull: PASTOR, Xavier – PersonEntity: Name: NameFull: LAXE, Sara IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 01 Text: 2025 Type: published Y: 2025 Identifiers: – Type: issn-print Value: 16501977 Numbering: – Type: issue Value: 57 Titles: – TitleFull: Journal of Rehabilitation Medicine Type: main |
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