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Black Caregiver Perspectives During a Developmental Diagnostic Interview.

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Title: Black Caregiver Perspectives During a Developmental Diagnostic Interview.
Authors: Thompson Brown, Lillian (AUTHOR), Kasambira Fannin, Danai (AUTHOR), Lamptey, Ann (AUTHOR), Uzonyi, Thelma E. (AUTHOR), Pearson, Jamie N. (AUTHOR)
Source: Journal of Autism & Developmental Disorders. Mar2026, Vol. 56 Issue 3, p916-932. 17p.
Subjects: Diagnosis of child development deviations, African Americans, Qualitative research, Interviewing, Content analysis, Retrospective studies, Descriptive statistics, Judgment sampling, Research methodology, Psychology of caregivers, Delphi method, Data analysis software, Caregiver attitudes, Video recording
Abstract: Despite increasing autism prevalence rates across racial and ethnic groups, research has traditionally overlooked the influence of culture on developmental diagnostic conversations. Addressing this gap in research is crucial to understanding and mitigating potential disparities in diagnostic experiences, especially among Black caregivers. Black caregivers encounter frustration and discrimination during the diagnostic process, citing dismissiveness and a lack of cultural competence from healthcare providers. To address these issues, this study centers the perspectives of Black caregivers as they participate in a developmental diagnostic program for toddlers under three years of age. This retrospective qualitative study, conducted exclusively by a Black research team, involved nineteen Black caregivers of thirteen toddlers as they participated in semi-structured interviews conducted by a multidisciplinary clinical team. The research team employed a conceptual content analysis to examine caregivers' descriptions of their children's behaviors and characteristics, as well as the factors and experiences associated with their descriptions. Caregivers provided distinct descriptions of behaviors and characteristics in the categories of language and communication, learning, and temperament, associating them with situational and dispositional factors and experiences. The findings offer valuable insights for implementing culturally responsive diagnostic practices. Additionally, these results may enhance the quality of caregiver-provider interactions during developmental assessment, leading to earlier and more accurate diagnoses for Black children. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Black Caregiver Perspectives During a Developmental Diagnostic Interview.
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  Data: <searchLink fieldCode="AR" term="%22Thompson+Brown%2C+Lillian%22">Thompson Brown, Lillian</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Kasambira+Fannin%2C+Danai%22">Kasambira Fannin, Danai</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Lamptey%2C+Ann%22">Lamptey, Ann</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Uzonyi%2C+Thelma+E%2E%22">Uzonyi, Thelma E.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Pearson%2C+Jamie+N%2E%22">Pearson, Jamie N.</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Journal+of+Autism+%26+Developmental+Disorders%22">Journal of Autism & Developmental Disorders</searchLink>. Mar2026, Vol. 56 Issue 3, p916-932. 17p.
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  Data: <searchLink fieldCode="DE" term="%22Diagnosis+of+child+development+deviations%22">Diagnosis of child development deviations</searchLink><br /><searchLink fieldCode="DE" term="%22African+Americans%22">African Americans</searchLink><br /><searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Content+analysis%22">Content analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Retrospective+studies%22">Retrospective studies</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Judgment+sampling%22">Judgment sampling</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+caregivers%22">Psychology of caregivers</searchLink><br /><searchLink fieldCode="DE" term="%22Delphi+method%22">Delphi method</searchLink><br /><searchLink fieldCode="DE" term="%22Data+analysis+software%22">Data analysis software</searchLink><br /><searchLink fieldCode="DE" term="%22Caregiver+attitudes%22">Caregiver attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Video+recording%22">Video recording</searchLink>
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  Label: Abstract
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  Data: Despite increasing autism prevalence rates across racial and ethnic groups, research has traditionally overlooked the influence of culture on developmental diagnostic conversations. Addressing this gap in research is crucial to understanding and mitigating potential disparities in diagnostic experiences, especially among Black caregivers. Black caregivers encounter frustration and discrimination during the diagnostic process, citing dismissiveness and a lack of cultural competence from healthcare providers. To address these issues, this study centers the perspectives of Black caregivers as they participate in a developmental diagnostic program for toddlers under three years of age. This retrospective qualitative study, conducted exclusively by a Black research team, involved nineteen Black caregivers of thirteen toddlers as they participated in semi-structured interviews conducted by a multidisciplinary clinical team. The research team employed a conceptual content analysis to examine caregivers' descriptions of their children's behaviors and characteristics, as well as the factors and experiences associated with their descriptions. Caregivers provided distinct descriptions of behaviors and characteristics in the categories of language and communication, learning, and temperament, associating them with situational and dispositional factors and experiences. The findings offer valuable insights for implementing culturally responsive diagnostic practices. Additionally, these results may enhance the quality of caregiver-provider interactions during developmental assessment, leading to earlier and more accurate diagnoses for Black children. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
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  Data: <i>Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=191886359
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        Value: 10.1007/s10803-024-06615-9
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      – Code: eng
        Text: English
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        PageCount: 17
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    Subjects:
      – SubjectFull: Diagnosis of child development deviations
        Type: general
      – SubjectFull: African Americans
        Type: general
      – SubjectFull: Qualitative research
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Content analysis
        Type: general
      – SubjectFull: Retrospective studies
        Type: general
      – SubjectFull: Descriptive statistics
        Type: general
      – SubjectFull: Judgment sampling
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Psychology of caregivers
        Type: general
      – SubjectFull: Delphi method
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      – SubjectFull: Data analysis software
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      – SubjectFull: Caregiver attitudes
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      – SubjectFull: Video recording
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      – TitleFull: Black Caregiver Perspectives During a Developmental Diagnostic Interview.
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              M: 03
              Text: Mar2026
              Type: published
              Y: 2026
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