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Community Provider Perspectives on an Autism Learning Health Network: A Qualitative Study.

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Title: Community Provider Perspectives on an Autism Learning Health Network: A Qualitative Study.
Authors: Kearney, Josie (AUTHOR), Bosyj, Catherine (AUTHOR), Rombos, Victoria (AUTHOR), Curran, Alicia Brewer (AUTHOR), Clark, Brenda (AUTHOR), Cornell, Wendy (AUTHOR), Mah, Shannon (AUTHOR), Mahurin, Melissa (AUTHOR), Piroddi, Nicholas (AUTHOR), Sohl, Kristin (AUTHOR), Zwaigenbaum, Lonnie (AUTHOR), Penner, Melanie (AUTHOR)
Source: Journal of Autism & Developmental Disorders. Apr2026, Vol. 56 Issue 4, p1408-1417. 10p.
Subjects: Asperger's syndrome in children, Community health services, Autism in children, Research funding, Qualitative research, Medical care, Interviewing, Descriptive statistics, Judgment sampling, Attitudes of medical personnel, Research methodology, Data analysis software, Phenomenology, Quality assurance
Abstract: Although autism is highly prevalent, no single care center has enough patients to produce generalizable knowledge of optimal care; this slows the pace of quality improvement research. The Autism Care Network (ACNet) is a learning health network (LHN) dedicated to developing the most effective approach to care for autistic children and adolescents through integrating clinical and research data. Given that most autistic patients receive care in the community, expanding ACNet to include community providers is essential to improve autism care. Our objectives were to: (1) understand the current data collection practices, learning needs, capacity, and overall interest of community clinicians in participating in an autism LHN; (2) identify their perspectives on participating in a LHN and ways in which their engagement and interest can be cultivated. Participants were purposively sampled from community physicians who participated in ASD-focused educational programming. In-depth semi-structured interviews were conducted. Analysis of 29 participant interviews yielded five primary themes: Navigating Administrative Challenges, Improving Data Collection Practices, Increasing Provider Confidence and Competence, Breaking Down Silos, and System and Societal Barriers to Achieving Best Practices. This study provides a rich and nuanced understanding of the experiences of community providers regarding the challenges of ASD care provision in the community. Overall, these findings suggest that LHNs have the potential to address several of the issues in community autism care highlighted by community providers. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Community Provider Perspectives on an Autism Learning Health Network: A Qualitative Study.
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  Data: <searchLink fieldCode="JN" term="%22Journal+of+Autism+%26+Developmental+Disorders%22">Journal of Autism & Developmental Disorders</searchLink>. Apr2026, Vol. 56 Issue 4, p1408-1417. 10p.
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  Data: Although autism is highly prevalent, no single care center has enough patients to produce generalizable knowledge of optimal care; this slows the pace of quality improvement research. The Autism Care Network (ACNet) is a learning health network (LHN) dedicated to developing the most effective approach to care for autistic children and adolescents through integrating clinical and research data. Given that most autistic patients receive care in the community, expanding ACNet to include community providers is essential to improve autism care. Our objectives were to: (1) understand the current data collection practices, learning needs, capacity, and overall interest of community clinicians in participating in an autism LHN; (2) identify their perspectives on participating in a LHN and ways in which their engagement and interest can be cultivated. Participants were purposively sampled from community physicians who participated in ASD-focused educational programming. In-depth semi-structured interviews were conducted. Analysis of 29 participant interviews yielded five primary themes: Navigating Administrative Challenges, Improving Data Collection Practices, Increasing Provider Confidence and Competence, Breaking Down Silos, and System and Societal Barriers to Achieving Best Practices. This study provides a rich and nuanced understanding of the experiences of community providers regarding the challenges of ASD care provision in the community. Overall, these findings suggest that LHNs have the potential to address several of the issues in community autism care highlighted by community providers. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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      – Type: doi
        Value: 10.1007/s10803-024-06597-8
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      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 10
        StartPage: 1408
    Subjects:
      – SubjectFull: Asperger's syndrome in children
        Type: general
      – SubjectFull: Community health services
        Type: general
      – SubjectFull: Autism in children
        Type: general
      – SubjectFull: Research funding
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      – SubjectFull: Qualitative research
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      – SubjectFull: Medical care
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      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Descriptive statistics
        Type: general
      – SubjectFull: Judgment sampling
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      – SubjectFull: Attitudes of medical personnel
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      – SubjectFull: Research methodology
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      – SubjectFull: Data analysis software
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      – SubjectFull: Phenomenology
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      – SubjectFull: Quality assurance
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      – TitleFull: Community Provider Perspectives on an Autism Learning Health Network: A Qualitative Study.
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              Text: Apr2026
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              Y: 2026
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