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Lived experience-informed eating disorders research: an illustrative example.

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Title: Lived experience-informed eating disorders research: an illustrative example.
Authors: Phillipou, Andrea (AUTHOR), Calvert, Shannon (AUTHOR), de Boer, Kathleen (AUTHOR), Dwyer, Dominic (AUTHOR), Eddy, Kamryn T. (AUTHOR), Gao, Caroline (AUTHOR), Pepin, Genevieve (AUTHOR), Miles, Stephanie (AUTHOR), Neill, Erica (AUTHOR)
Source: Eating Disorders. May/Jun2026, Vol. 34 Issue 3, p281-292. 12p.
Subjects: Psychiatry, Interprofessional relations, Mental illness, Psychoeducation, Eating disorders, Experience, Experimental design, Patient participation
Geographic Terms: Australia
Abstract: The mental health field, and more recently, the eating disorders field specifically, has witnessed a paradigm shift towards collaborative research which is conducted in partnership with individuals possessing lived and living experiences of mental health conditions (i.e. those with personal lived or living experience and those who are family, carers, or other supports). However, despite this shift, the challenge of engaging individuals with lived experiences in a manner that avoids tokenism, manages power imbalances, and ensures meaningful involvement persists. This paper aims to encourage those working in the eating disorders field to establish authentic, equitable partnerships with lived experience contributors. To provide clarity and to encourage researchers to engage in effective and authentic lived experience collaborations, this paper describes different types of lived experience involvement in research, using real-life examples from a study that is currently being established. [ABSTRACT FROM AUTHOR]
Copyright of Eating Disorders is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Lived experience-informed eating disorders research: an illustrative example.
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  Data: <searchLink fieldCode="JN" term="%22Eating+Disorders%22">Eating Disorders</searchLink>. May/Jun2026, Vol. 34 Issue 3, p281-292. 12p.
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  Data: The mental health field, and more recently, the eating disorders field specifically, has witnessed a paradigm shift towards collaborative research which is conducted in partnership with individuals possessing lived and living experiences of mental health conditions (i.e. those with personal lived or living experience and those who are family, carers, or other supports). However, despite this shift, the challenge of engaging individuals with lived experiences in a manner that avoids tokenism, manages power imbalances, and ensures meaningful involvement persists. This paper aims to encourage those working in the eating disorders field to establish authentic, equitable partnerships with lived experience contributors. To provide clarity and to encourage researchers to engage in effective and authentic lived experience collaborations, this paper describes different types of lived experience involvement in research, using real-life examples from a study that is currently being established. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Eating Disorders is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=193489854
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        Value: 10.1080/10640266.2025.2471220
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      – Code: eng
        Text: English
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      – SubjectFull: Mental illness
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      – SubjectFull: Psychoeducation
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      – SubjectFull: Eating disorders
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      – SubjectFull: Experience
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      – SubjectFull: Experimental design
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      – SubjectFull: Patient participation
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      – SubjectFull: Australia
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      – TitleFull: Lived experience-informed eating disorders research: an illustrative example.
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            – D: 01
              M: 05
              Text: May/Jun2026
              Type: published
              Y: 2026
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