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Psychological care for Huntington's disease: A qualitative study exploring interventions in the Netherlands.

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Title: Psychological care for Huntington's disease: A qualitative study exploring interventions in the Netherlands.
Authors: Van der Zwaan, Kasper F. (AUTHOR), Kuijper, Laura C. M. (AUTHOR), van Lonkhuizen, Pearl J. C. (AUTHOR), Roos, Raymund A. C. (AUTHOR), de Bot, Susanne T. (AUTHOR)
Source: Psychology & Psychotherapy: Theory, Research & Practice. Jun2026, Vol. 99 Issue 2, p443-462. 20p.
Subjects: Psychotherapy, Health services accessibility, Qualitative research, Research funding, Medical care, Interviewing, Thematic analysis, Research methodology, Acceptance & commitment therapy, Cognitive therapy, Huntington disease, Disease progression, Behavior therapy, Health care teams
Geographic Terms: Netherlands
Abstract: Objectives: Huntington's disease (HD) is a hereditary neurodegenerative disorder characterized by a range of motor, cognitive, and psychiatric symptoms. Psychological symptoms can arise from being at risk for the disease and from its manifestation, necessitating psychological interventions to address the evolving burden, even before onset. This qualitative study explores the psychological interventions used for HD within the Dutch health care context and identifies barriers and facilitators for their implementation across the different HD disease stages. Methods: A qualitative approach using semi‐structured interviews was employed, involving 13 experienced psychologists from HD health care facilities in the Netherlands. Thematic analysis was conducted to explore the types of psychological interventions used and the facilitators and barriers affecting their implementation. Results: The study identified a range of generic and more specific interventions, with their application varying according to the stages of HD. Early interventions focus on genetic counselling and trauma therapy, while mid to late‐stage care incorporates acceptance and commitment therapy (ACT) and cognitive behavioural therapy (CBT) for managing psychological symptoms. Late‐stage interventions shift to mediated approaches involving family and care teams. Key barriers include cognitive impairments and difficulties in referring patients to other mental health care providers, while key facilitators include multidisciplinary collaboration and preventive interventions. Conclusions: Psychological interventions for HD in the Netherlands are adapted to the disease progression, emphasizing the need for stage‐specific and personalized care. The findings highlight best‐care practices and the importance of early intervention, multidisciplinary collaboration, and evaluation while identifying areas for further research and improvement in care quality. [ABSTRACT FROM AUTHOR]
Copyright of Psychology & Psychotherapy: Theory, Research & Practice is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Psychological care for Huntington's disease: A qualitative study exploring interventions in the Netherlands.
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  Data: <searchLink fieldCode="AR" term="%22Van+der+Zwaan%2C+Kasper+F%2E%22">Van der Zwaan, Kasper F.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Kuijper%2C+Laura+C%2E+M%2E%22">Kuijper, Laura C. M.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22van+Lonkhuizen%2C+Pearl+J%2E+C%2E%22">van Lonkhuizen, Pearl J. C.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Roos%2C+Raymund+A%2E+C%2E%22">Roos, Raymund A. C.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22de+Bot%2C+Susanne+T%2E%22">de Bot, Susanne T.</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="DE" term="%22Psychotherapy%22">Psychotherapy</searchLink><br /><searchLink fieldCode="DE" term="%22Health+services+accessibility%22">Health services accessibility</searchLink><br /><searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+care%22">Medical care</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Acceptance+%26+commitment+therapy%22">Acceptance & commitment therapy</searchLink><br /><searchLink fieldCode="DE" term="%22Cognitive+therapy%22">Cognitive therapy</searchLink><br /><searchLink fieldCode="DE" term="%22Huntington+disease%22">Huntington disease</searchLink><br /><searchLink fieldCode="DE" term="%22Disease+progression%22">Disease progression</searchLink><br /><searchLink fieldCode="DE" term="%22Behavior+therapy%22">Behavior therapy</searchLink><br /><searchLink fieldCode="DE" term="%22Health+care+teams%22">Health care teams</searchLink>
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  Data: <searchLink fieldCode="DE" term="%22Netherlands%22">Netherlands</searchLink>
– Name: Abstract
  Label: Abstract
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  Data: Objectives: Huntington's disease (HD) is a hereditary neurodegenerative disorder characterized by a range of motor, cognitive, and psychiatric symptoms. Psychological symptoms can arise from being at risk for the disease and from its manifestation, necessitating psychological interventions to address the evolving burden, even before onset. This qualitative study explores the psychological interventions used for HD within the Dutch health care context and identifies barriers and facilitators for their implementation across the different HD disease stages. Methods: A qualitative approach using semi‐structured interviews was employed, involving 13 experienced psychologists from HD health care facilities in the Netherlands. Thematic analysis was conducted to explore the types of psychological interventions used and the facilitators and barriers affecting their implementation. Results: The study identified a range of generic and more specific interventions, with their application varying according to the stages of HD. Early interventions focus on genetic counselling and trauma therapy, while mid to late‐stage care incorporates acceptance and commitment therapy (ACT) and cognitive behavioural therapy (CBT) for managing psychological symptoms. Late‐stage interventions shift to mediated approaches involving family and care teams. Key barriers include cognitive impairments and difficulties in referring patients to other mental health care providers, while key facilitators include multidisciplinary collaboration and preventive interventions. Conclusions: Psychological interventions for HD in the Netherlands are adapted to the disease progression, emphasizing the need for stage‐specific and personalized care. The findings highlight best‐care practices and the importance of early intervention, multidisciplinary collaboration, and evaluation while identifying areas for further research and improvement in care quality. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Psychology & Psychotherapy: Theory, Research & Practice is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=193690762
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        Value: 10.1111/papt.70034
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      – Code: eng
        Text: English
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        PageCount: 20
        StartPage: 443
    Subjects:
      – SubjectFull: Psychotherapy
        Type: general
      – SubjectFull: Health services accessibility
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      – SubjectFull: Qualitative research
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      – SubjectFull: Thematic analysis
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      – SubjectFull: Netherlands
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              Text: Jun2026
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