View in EDS

Families' perspectives of transitioning young adults with cerebral palsy to independent living.

Saved in:
Bibliographic Details
Title: Families' perspectives of transitioning young adults with cerebral palsy to independent living.
Authors: Hickey, L. (AUTHOR), Harms, L. (AUTHOR), Culnane, E. (AUTHOR), Saunders, V. (AUTHOR), Imms, C. (AUTHOR), Ball, M. (AUTHOR), Reddihough, D. (AUTHOR)
Source: Disability & Rehabilitation. May2026, Vol. 48 Issue 10, p2989-3004. 16p.
Subjects: Families & psychology, Community support, Health services accessibility, Independent living, Research funding, Patient safety, Endowments, Medical quality control, Content analysis, Cerebral palsy, Family relations, Uncertainty, Psychological well-being, Confidence, Tertiary care, Children's hospitals, Descriptive statistics, Transitional care, Family attitudes, Thematic analysis, Research, Research methodology, Aging, Social support, Housing, Data analysis software, Adolescence, Adults
Geographic Terms: Australia
Abstract: Purpose: Adolescents and Young Adults (AYAs) with cerebral palsy (CP) face health and social inequities when transitioning to independent living. This study aimed to 1) understand the meaning of the transition to independent living for family members, and 2) identify barriers and enablers within family, community and service systems that may impact on this transition. Materials and methods: Exploratory research design. Family members of AYAs with CP were surveyed through two health services. Responses were analysed using reflexive thematic and inductive content analysis and descriptive statistics. Results: Thirty-two family members of 31 AYAs with CP took part in the study. Four themes were identified in relation to the meaning of the transition to independent living: 1) the opportunity for AYAs to experience adult life, 2) freedom for all parties, 3) uncertainty and worry about safely transferring care, and 4) future planning for ageing family members. Six themes related to barriers and enablers were [1]: AYAs health and wellbeing [2]; proximity to the AYA [3]; navigating complex service systems [4] timely access to funding and equipment [5], finding suitable accommodation and [6] confidence in care quality. Conclusions: Findings provide insights for health and disability services supporting AYAs and families transitioning to independent living. IMPLICATIONS FOR REHABILITATION: Understanding family members' perspectives on the meaning of the transition to independent living for young people living with cerebral palsy is needed to support the transition process. Although transition is desired, family members' experience of being overwhelmed by the structural inequalities that impede their young person's transition, needs to be addressed. Health professionals require a dual focus approach: simultaneously supporting a young person's independence goals, whilst incrementally building the skills and confidence of families to address their needs and concerns throughout the transition process. Health professionals should develop and maintain a thorough understanding of structural barriers and systemic challenges affecting independent living, enabling them to effectively guide families through the complex transition process with informed, tailored support. [ABSTRACT FROM AUTHOR]
Copyright of Disability & Rehabilitation is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
FullText Text:
  Availability: 0
Header DbId: pbh
DbLabel: Psychology and Behavioral Sciences Collection
An: 193710044
AccessLevel: 6
PubType: Academic Journal
PubTypeId: academicJournal
PreciseRelevancyScore: 0
IllustrationInfo
Items – Name: Title
  Label: Title
  Group: Ti
  Data: Families' perspectives of transitioning young adults with cerebral palsy to independent living.
– Name: Author
  Label: Authors
  Group: Au
  Data: <searchLink fieldCode="AR" term="%22Hickey%2C+L%2E%22">Hickey, L.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Harms%2C+L%2E%22">Harms, L.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Culnane%2C+E%2E%22">Culnane, E.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Saunders%2C+V%2E%22">Saunders, V.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Imms%2C+C%2E%22">Imms, C.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Ball%2C+M%2E%22">Ball, M.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Reddihough%2C+D%2E%22">Reddihough, D.</searchLink> (AUTHOR)
– Name: TitleSource
  Label: Source
  Group: Src
  Data: <searchLink fieldCode="JN" term="%22Disability+%26+Rehabilitation%22">Disability & Rehabilitation</searchLink>. May2026, Vol. 48 Issue 10, p2989-3004. 16p.
– Name: Subject
  Label: Subjects
  Group: Su
  Data: <searchLink fieldCode="DE" term="%22Families+%26+psychology%22">Families & psychology</searchLink><br /><searchLink fieldCode="DE" term="%22Community+support%22">Community support</searchLink><br /><searchLink fieldCode="DE" term="%22Health+services+accessibility%22">Health services accessibility</searchLink><br /><searchLink fieldCode="DE" term="%22Independent+living%22">Independent living</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Patient+safety%22">Patient safety</searchLink><br /><searchLink fieldCode="DE" term="%22Endowments%22">Endowments</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+quality+control%22">Medical quality control</searchLink><br /><searchLink fieldCode="DE" term="%22Content+analysis%22">Content analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Cerebral+palsy%22">Cerebral palsy</searchLink><br /><searchLink fieldCode="DE" term="%22Family+relations%22">Family relations</searchLink><br /><searchLink fieldCode="DE" term="%22Uncertainty%22">Uncertainty</searchLink><br /><searchLink fieldCode="DE" term="%22Psychological+well-being%22">Psychological well-being</searchLink><br /><searchLink fieldCode="DE" term="%22Confidence%22">Confidence</searchLink><br /><searchLink fieldCode="DE" term="%22Tertiary+care%22">Tertiary care</searchLink><br /><searchLink fieldCode="DE" term="%22Children's+hospitals%22">Children's hospitals</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Transitional+care%22">Transitional care</searchLink><br /><searchLink fieldCode="DE" term="%22Family+attitudes%22">Family attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Research%22">Research</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Aging%22">Aging</searchLink><br /><searchLink fieldCode="DE" term="%22Social+support%22">Social support</searchLink><br /><searchLink fieldCode="DE" term="%22Housing%22">Housing</searchLink><br /><searchLink fieldCode="DE" term="%22Data+analysis+software%22">Data analysis software</searchLink><br /><searchLink fieldCode="DE" term="%22Adolescence%22">Adolescence</searchLink><br /><searchLink fieldCode="DE" term="%22Adults%22">Adults</searchLink>
– Name: SubjectGeographic
  Label: Geographic Terms
  Group: Su
  Data: <searchLink fieldCode="DE" term="%22Australia%22">Australia</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Purpose: Adolescents and Young Adults (AYAs) with cerebral palsy (CP) face health and social inequities when transitioning to independent living. This study aimed to 1) understand the meaning of the transition to independent living for family members, and 2) identify barriers and enablers within family, community and service systems that may impact on this transition. Materials and methods: Exploratory research design. Family members of AYAs with CP were surveyed through two health services. Responses were analysed using reflexive thematic and inductive content analysis and descriptive statistics. Results: Thirty-two family members of 31 AYAs with CP took part in the study. Four themes were identified in relation to the meaning of the transition to independent living: 1) the opportunity for AYAs to experience adult life, 2) freedom for all parties, 3) uncertainty and worry about safely transferring care, and 4) future planning for ageing family members. Six themes related to barriers and enablers were [1]: AYAs health and wellbeing [2]; proximity to the AYA [3]; navigating complex service systems [4] timely access to funding and equipment [5], finding suitable accommodation and [6] confidence in care quality. Conclusions: Findings provide insights for health and disability services supporting AYAs and families transitioning to independent living. IMPLICATIONS FOR REHABILITATION: Understanding family members' perspectives on the meaning of the transition to independent living for young people living with cerebral palsy is needed to support the transition process. Although transition is desired, family members' experience of being overwhelmed by the structural inequalities that impede their young person's transition, needs to be addressed. Health professionals require a dual focus approach: simultaneously supporting a young person's independence goals, whilst incrementally building the skills and confidence of families to address their needs and concerns throughout the transition process. Health professionals should develop and maintain a thorough understanding of structural barriers and systemic challenges affecting independent living, enabling them to effectively guide families through the complex transition process with informed, tailored support. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Disability & Rehabilitation is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=193710044
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1080/09638288.2025.2564289
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 16
        StartPage: 2989
    Subjects:
      – SubjectFull: Families & psychology
        Type: general
      – SubjectFull: Community support
        Type: general
      – SubjectFull: Health services accessibility
        Type: general
      – SubjectFull: Independent living
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Patient safety
        Type: general
      – SubjectFull: Endowments
        Type: general
      – SubjectFull: Medical quality control
        Type: general
      – SubjectFull: Content analysis
        Type: general
      – SubjectFull: Cerebral palsy
        Type: general
      – SubjectFull: Family relations
        Type: general
      – SubjectFull: Uncertainty
        Type: general
      – SubjectFull: Psychological well-being
        Type: general
      – SubjectFull: Confidence
        Type: general
      – SubjectFull: Tertiary care
        Type: general
      – SubjectFull: Children's hospitals
        Type: general
      – SubjectFull: Descriptive statistics
        Type: general
      – SubjectFull: Transitional care
        Type: general
      – SubjectFull: Family attitudes
        Type: general
      – SubjectFull: Thematic analysis
        Type: general
      – SubjectFull: Research
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Aging
        Type: general
      – SubjectFull: Social support
        Type: general
      – SubjectFull: Housing
        Type: general
      – SubjectFull: Data analysis software
        Type: general
      – SubjectFull: Adolescence
        Type: general
      – SubjectFull: Adults
        Type: general
      – SubjectFull: Australia
        Type: general
    Titles:
      – TitleFull: Families' perspectives of transitioning young adults with cerebral palsy to independent living.
        Type: main
  BibRelationships:
    HasContributorRelationships:
      – PersonEntity:
          Name:
            NameFull: Hickey, L.
      – PersonEntity:
          Name:
            NameFull: Harms, L.
      – PersonEntity:
          Name:
            NameFull: Culnane, E.
      – PersonEntity:
          Name:
            NameFull: Saunders, V.
      – PersonEntity:
          Name:
            NameFull: Imms, C.
      – PersonEntity:
          Name:
            NameFull: Ball, M.
      – PersonEntity:
          Name:
            NameFull: Reddihough, D.
    IsPartOfRelationships:
      – BibEntity:
          Dates:
            – D: 15
              M: 05
              Text: May2026
              Type: published
              Y: 2026
          Identifiers:
            – Type: issn-print
              Value: 09638288
          Numbering:
            – Type: volume
              Value: 48
            – Type: issue
              Value: 10
          Titles:
            – TitleFull: Disability & Rehabilitation
              Type: main
ResultId 1