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Factors influencing activity performance and participation in usual life situations among people with Parkinson's disease: a mixed methods study.

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Title: Factors influencing activity performance and participation in usual life situations among people with Parkinson's disease: a mixed methods study.
Authors: Paul, Serene S. (AUTHOR), Porciuncula, Franchino (AUTHOR), Cavanaugh, James T. (AUTHOR), Dennis, Sarah (AUTHOR), Baker, Teresa C. (AUTHOR), Duncan, Ryan P. (AUTHOR), Rawson, Kerri S. (AUTHOR), Nordahl, Timothy J. (AUTHOR), Earhart, Gammon M. (AUTHOR), Ellis, Theresa D. (AUTHOR)
Source: Disability & Rehabilitation. May2026, Vol. 48 Issue 10, p3138-3150. 13p.
Subjects: Drug therapy for Parkinson's disease, Psychological resilience, Behavior disorders, Fear, Disease duration, Arm, Secondary analysis, Interviewing, Antiparkinsonian agents, Fatigue (Physiology), Sex distribution, Questionnaires, Multiple regression analysis, Severity of illness index, Parkinson's disease, Judgment sampling, Movement disorders, Gait disorders, Anxiety, Affective disorders, Diagnosis, Gait in humans, Descriptive statistics, Functional status, Thematic analysis, Motivation (Psychology), Neurological disorders, Leisure, Longitudinal method, Quality of life, Participation, Research methodology, Sleep deprivation, Communication, Neuropsychological tests, Statistics, Data analysis software, Activities of daily living, Patients' attitudes, Mental depression, Apathy, Comorbidity, Postural balance, Social stigma, Accidental falls, Dopa, Social participation, Nosology
Abstract: Introduction: Multiple factors contribute to disability in persons with Parkinson's disease (PD). Understanding which factors most influence activity performance and participation in usual life situations may help clinicians develop personalised rehabilitation interventions. Methods: A triangulation mixed methods study was conducted using 137 people with PD; 13 were purposively sampled for semi-structured interviews. Two regression models examined the contributions of motor and non-motor impairments, activity limitations, personal and health factors to activities of daily living (ADL) performance and participation in usual life situations, respectively. Interviews probed participants' life experiences with PD. Results: Motor and non-motor impairments, activity limitations, and PD duration explained 70% of the variance in ADL performance. Non-motor impairments, activity limitations, personal factors, and PD medications explained 54% of the variance in participation. Qualitative results revealed themes of "motivation to keep going" and "resilience to live well" in maintaining participation across a diverse range of life situations and highlighted the impacts of PD motor and non-motor impairments. Discussion: Complex interactions were revealed among individuals' unique interests, life situations in which they participated, environments in which tasks were performed, willingness to make adaptations, impairment profile, and PD severity. Motor, non-motor, and contextual factors should be addressed in personalised intervention plans. IMPLICATIONS FOR REHABILITATION: Participation depends on the interaction of the person's interests, nature of the chosen activity, impairment profile, and Parkinson's severity. Rehabilitation interventions delivered to people with Parkinson's should address both the individual's troubling motor and non-motor impairments, as well as the meaningful contexts in which they perform tasks. Healthcare professionals should proactively help people with Parkinson's find suitable workaround strategies to maintain participation. [ABSTRACT FROM AUTHOR]
Copyright of Disability & Rehabilitation is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Factors influencing activity performance and participation in usual life situations among people with Parkinson's disease: a mixed methods study.
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– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Introduction: Multiple factors contribute to disability in persons with Parkinson's disease (PD). Understanding which factors most influence activity performance and participation in usual life situations may help clinicians develop personalised rehabilitation interventions. Methods: A triangulation mixed methods study was conducted using 137 people with PD; 13 were purposively sampled for semi-structured interviews. Two regression models examined the contributions of motor and non-motor impairments, activity limitations, personal and health factors to activities of daily living (ADL) performance and participation in usual life situations, respectively. Interviews probed participants' life experiences with PD. Results: Motor and non-motor impairments, activity limitations, and PD duration explained 70% of the variance in ADL performance. Non-motor impairments, activity limitations, personal factors, and PD medications explained 54% of the variance in participation. Qualitative results revealed themes of "motivation to keep going" and "resilience to live well" in maintaining participation across a diverse range of life situations and highlighted the impacts of PD motor and non-motor impairments. Discussion: Complex interactions were revealed among individuals' unique interests, life situations in which they participated, environments in which tasks were performed, willingness to make adaptations, impairment profile, and PD severity. Motor, non-motor, and contextual factors should be addressed in personalised intervention plans. IMPLICATIONS FOR REHABILITATION: Participation depends on the interaction of the person's interests, nature of the chosen activity, impairment profile, and Parkinson's severity. Rehabilitation interventions delivered to people with Parkinson's should address both the individual's troubling motor and non-motor impairments, as well as the meaningful contexts in which they perform tasks. Healthcare professionals should proactively help people with Parkinson's find suitable workaround strategies to maintain participation. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Disability & Rehabilitation is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=193710058
RecordInfo BibRecord:
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    Identifiers:
      – Type: doi
        Value: 10.1080/09638288.2025.2589718
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      – Code: eng
        Text: English
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        PageCount: 13
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    Subjects:
      – SubjectFull: Drug therapy for Parkinson's disease
        Type: general
      – SubjectFull: Psychological resilience
        Type: general
      – SubjectFull: Behavior disorders
        Type: general
      – SubjectFull: Fear
        Type: general
      – SubjectFull: Disease duration
        Type: general
      – SubjectFull: Arm
        Type: general
      – SubjectFull: Secondary analysis
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Antiparkinsonian agents
        Type: general
      – SubjectFull: Fatigue (Physiology)
        Type: general
      – SubjectFull: Sex distribution
        Type: general
      – SubjectFull: Questionnaires
        Type: general
      – SubjectFull: Multiple regression analysis
        Type: general
      – SubjectFull: Severity of illness index
        Type: general
      – SubjectFull: Parkinson's disease
        Type: general
      – SubjectFull: Judgment sampling
        Type: general
      – SubjectFull: Movement disorders
        Type: general
      – SubjectFull: Gait disorders
        Type: general
      – SubjectFull: Anxiety
        Type: general
      – SubjectFull: Affective disorders
        Type: general
      – SubjectFull: Diagnosis
        Type: general
      – SubjectFull: Gait in humans
        Type: general
      – SubjectFull: Descriptive statistics
        Type: general
      – SubjectFull: Functional status
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      – SubjectFull: Thematic analysis
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      – SubjectFull: Motivation (Psychology)
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      – SubjectFull: Neurological disorders
        Type: general
      – SubjectFull: Leisure
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      – SubjectFull: Longitudinal method
        Type: general
      – SubjectFull: Quality of life
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      – SubjectFull: Participation
        Type: general
      – SubjectFull: Research methodology
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      – SubjectFull: Sleep deprivation
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        Type: general
      – SubjectFull: Neuropsychological tests
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      – SubjectFull: Statistics
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      – SubjectFull: Data analysis software
        Type: general
      – SubjectFull: Activities of daily living
        Type: general
      – SubjectFull: Patients' attitudes
        Type: general
      – SubjectFull: Mental depression
        Type: general
      – SubjectFull: Apathy
        Type: general
      – SubjectFull: Comorbidity
        Type: general
      – SubjectFull: Postural balance
        Type: general
      – SubjectFull: Social stigma
        Type: general
      – SubjectFull: Accidental falls
        Type: general
      – SubjectFull: Dopa
        Type: general
      – SubjectFull: Social participation
        Type: general
      – SubjectFull: Nosology
        Type: general
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