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Experiences of decisional conflict in parents offered hip reconstructive surgery for their child with cerebral palsy.

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Title: Experiences of decisional conflict in parents offered hip reconstructive surgery for their child with cerebral palsy.
Authors: Medeiros, Christina (AUTHOR), Metcalfe, Kelly (AUTHOR), Narayanan, Unni (AUTHOR), Widger, Kimberley (AUTHOR)
Source: Disability & Rehabilitation. May2026, Vol. 48 Issue 10, p3202-3212. 11p.
Subjects: Hip surgery, Cross-sectional method, Health literacy, Children with disabilities, Health attitudes, Therapeutics, Research funding, Patient-family relations, Conflict (Psychology), Scientific observation, Questionnaires, Interviewing, Health, Parent-child relationships, Cerebral palsy, Decision making, Parent attitudes, Descriptive statistics, Information resources, Congenital hip dislocation, Longitudinal method, Thematic analysis, Attitude (Psychology), Research methodology, Research, Conceptual structures, Quality of life, Psychological stress, Parents of children with disabilities, Plastic surgery, Comparative studies, Data analysis software, Health education, Psychosocial factors, Children
Abstract: Purpose: Using a mixed methods study to explore the level of parents' decisional conflict and decision-making experiences when offered hip surgery for their child with non-ambulant cerebral palsy (CP). Methods: Parents of children with non-ambulant CP who were offered hip surgery for their child's hip displacement, were surveyed and completed the Decisional Conflict Scale (DCS). Guided by the Ottawa Decision Support Framework, potential factors associated with decisional conflict were evaluated. Parents were approached to participate in a semi-structured interview guided by Interpretive Description to explore their decision-making experiences. Results: Eleven parents completed the survey and 4 (36.4%) had DCS scores ≥ 25. Nine of 11 parents participated in semi-structured interviews. Themes included: Focus on Future Quality of Life; Processing Time; Necessity of Surgery; and the Importance of Information. Parents indicated key strategies to minimize uncertainty and support them in decision-making included providing ample deliberation time and understandable and accessible information with opportunities for questions. Conclusion: Approximately one-third of parents experience decisional conflict associated with the decision for hip surgery. Healthcare professionals can support parents by assisting parents to focus on their child's quality of life and goals of care while providing ample information and time for decision-making. IMPLICATIONS FOR REHABILITATION: About one third of parents of children with non-ambulant cerebral palsy experience decisional conflict or uncertainty about whether to proceed with hip surgery for their child Parents identify four key areas that influenced their decision-making: "Necessity of Surgery"; "Focus on Future Quality of Life"; "Processing Time"; and "The Importance of Information". Parents need ample deliberation time and easy-to-understand information with opportunities for questions, with an outcomes-focus on their child's future quality of life [ABSTRACT FROM AUTHOR]
Copyright of Disability & Rehabilitation is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Experiences of decisional conflict in parents offered hip reconstructive surgery for their child with cerebral palsy.
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  Data: <searchLink fieldCode="AR" term="%22Medeiros%2C+Christina%22">Medeiros, Christina</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Metcalfe%2C+Kelly%22">Metcalfe, Kelly</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Narayanan%2C+Unni%22">Narayanan, Unni</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Widger%2C+Kimberley%22">Widger, Kimberley</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Disability+%26+Rehabilitation%22">Disability & Rehabilitation</searchLink>. May2026, Vol. 48 Issue 10, p3202-3212. 11p.
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  Data: <searchLink fieldCode="DE" term="%22Hip+surgery%22">Hip surgery</searchLink><br /><searchLink fieldCode="DE" term="%22Cross-sectional+method%22">Cross-sectional method</searchLink><br /><searchLink fieldCode="DE" term="%22Health+literacy%22">Health literacy</searchLink><br /><searchLink fieldCode="DE" term="%22Children+with+disabilities%22">Children with disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Health+attitudes%22">Health attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Therapeutics%22">Therapeutics</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Patient-family+relations%22">Patient-family relations</searchLink><br /><searchLink fieldCode="DE" term="%22Conflict+%28Psychology%29%22">Conflict (Psychology)</searchLink><br /><searchLink fieldCode="DE" term="%22Scientific+observation%22">Scientific observation</searchLink><br /><searchLink fieldCode="DE" term="%22Questionnaires%22">Questionnaires</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Health%22">Health</searchLink><br /><searchLink fieldCode="DE" term="%22Parent-child+relationships%22">Parent-child relationships</searchLink><br /><searchLink fieldCode="DE" term="%22Cerebral+palsy%22">Cerebral palsy</searchLink><br /><searchLink fieldCode="DE" term="%22Decision+making%22">Decision making</searchLink><br /><searchLink fieldCode="DE" term="%22Parent+attitudes%22">Parent attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Information+resources%22">Information resources</searchLink><br /><searchLink fieldCode="DE" term="%22Congenital+hip+dislocation%22">Congenital hip dislocation</searchLink><br /><searchLink fieldCode="DE" term="%22Longitudinal+method%22">Longitudinal method</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Attitude+%28Psychology%29%22">Attitude (Psychology)</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Research%22">Research</searchLink><br /><searchLink fieldCode="DE" term="%22Conceptual+structures%22">Conceptual structures</searchLink><br /><searchLink fieldCode="DE" term="%22Quality+of+life%22">Quality of life</searchLink><br /><searchLink fieldCode="DE" term="%22Psychological+stress%22">Psychological stress</searchLink><br /><searchLink fieldCode="DE" term="%22Parents+of+children+with+disabilities%22">Parents of children with disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Plastic+surgery%22">Plastic surgery</searchLink><br /><searchLink fieldCode="DE" term="%22Comparative+studies%22">Comparative studies</searchLink><br /><searchLink fieldCode="DE" term="%22Data+analysis+software%22">Data analysis software</searchLink><br /><searchLink fieldCode="DE" term="%22Health+education%22">Health education</searchLink><br /><searchLink fieldCode="DE" term="%22Psychosocial+factors%22">Psychosocial factors</searchLink><br /><searchLink fieldCode="DE" term="%22Children%22">Children</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Purpose: Using a mixed methods study to explore the level of parents' decisional conflict and decision-making experiences when offered hip surgery for their child with non-ambulant cerebral palsy (CP). Methods: Parents of children with non-ambulant CP who were offered hip surgery for their child's hip displacement, were surveyed and completed the Decisional Conflict Scale (DCS). Guided by the Ottawa Decision Support Framework, potential factors associated with decisional conflict were evaluated. Parents were approached to participate in a semi-structured interview guided by Interpretive Description to explore their decision-making experiences. Results: Eleven parents completed the survey and 4 (36.4%) had DCS scores ≥ 25. Nine of 11 parents participated in semi-structured interviews. Themes included: Focus on Future Quality of Life; Processing Time; Necessity of Surgery; and the Importance of Information. Parents indicated key strategies to minimize uncertainty and support them in decision-making included providing ample deliberation time and understandable and accessible information with opportunities for questions. Conclusion: Approximately one-third of parents experience decisional conflict associated with the decision for hip surgery. Healthcare professionals can support parents by assisting parents to focus on their child's quality of life and goals of care while providing ample information and time for decision-making. IMPLICATIONS FOR REHABILITATION: About one third of parents of children with non-ambulant cerebral palsy experience decisional conflict or uncertainty about whether to proceed with hip surgery for their child Parents identify four key areas that influenced their decision-making: "Necessity of Surgery"; "Focus on Future Quality of Life"; "Processing Time"; and "The Importance of Information". Parents need ample deliberation time and easy-to-understand information with opportunities for questions, with an outcomes-focus on their child's future quality of life [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
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  Data: <i>Copyright of Disability & Rehabilitation is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=193710063
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1080/09638288.2025.2591694
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 11
        StartPage: 3202
    Subjects:
      – SubjectFull: Hip surgery
        Type: general
      – SubjectFull: Cross-sectional method
        Type: general
      – SubjectFull: Health literacy
        Type: general
      – SubjectFull: Children with disabilities
        Type: general
      – SubjectFull: Health attitudes
        Type: general
      – SubjectFull: Therapeutics
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Patient-family relations
        Type: general
      – SubjectFull: Conflict (Psychology)
        Type: general
      – SubjectFull: Scientific observation
        Type: general
      – SubjectFull: Questionnaires
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Health
        Type: general
      – SubjectFull: Parent-child relationships
        Type: general
      – SubjectFull: Cerebral palsy
        Type: general
      – SubjectFull: Decision making
        Type: general
      – SubjectFull: Parent attitudes
        Type: general
      – SubjectFull: Descriptive statistics
        Type: general
      – SubjectFull: Information resources
        Type: general
      – SubjectFull: Congenital hip dislocation
        Type: general
      – SubjectFull: Longitudinal method
        Type: general
      – SubjectFull: Thematic analysis
        Type: general
      – SubjectFull: Attitude (Psychology)
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Research
        Type: general
      – SubjectFull: Conceptual structures
        Type: general
      – SubjectFull: Quality of life
        Type: general
      – SubjectFull: Psychological stress
        Type: general
      – SubjectFull: Parents of children with disabilities
        Type: general
      – SubjectFull: Plastic surgery
        Type: general
      – SubjectFull: Comparative studies
        Type: general
      – SubjectFull: Data analysis software
        Type: general
      – SubjectFull: Health education
        Type: general
      – SubjectFull: Psychosocial factors
        Type: general
      – SubjectFull: Children
        Type: general
    Titles:
      – TitleFull: Experiences of decisional conflict in parents offered hip reconstructive surgery for their child with cerebral palsy.
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            NameFull: Metcalfe, Kelly
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            NameFull: Narayanan, Unni
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            – D: 15
              M: 05
              Text: May2026
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              Y: 2026
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