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Parents' Early Concerns about Their Child with Autism: Relation to Age of Diagnosis.

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Title: Parents' Early Concerns about Their Child with Autism: Relation to Age of Diagnosis.
Authors: Leach, Madison (AUTHOR), Mazefsky, Carla A. (AUTHOR), Northrup, Jessie B. (AUTHOR)
Source: Journal of Autism & Developmental Disorders. May2026, Vol. 56 Issue 5, p2009-2022. 14p.
Subjects: Diagnosis of autism, Age of onset, Research funding, T-test (Statistics), Data analysis, Questionnaires, Autism, Parent-child relationships, Multiple regression analysis, Parent attitudes, Age distribution, Retrospective studies, Descriptive statistics, Developmental disabilities, Child development, Medical records, Acquisition of data, Analysis of variance, Statistics, Parents of children with disabilities, Asperger's syndrome, Psychology of parents, Data analysis software, Psychosocial factors, Sensitivity & specificity (Statistics), Symptoms
Abstract: There is a substantial time gap between when parents develop concerns about their child (ages 1–2) and when they receive a diagnosis of autism (ages 3–5), delaying the onset of critical interventions. Few studies have examined how the timing, type, and quantity of early parental concerns are associated with age of diagnosis. The aims of this study were to describe characteristics of parents' concerns in a large community-based sample and explore how characteristics of concerns relate to age of diagnosis. This study included 853 parents of 2- to 5-year-old children with an autism diagnosis. Parents completed an online survey including questions regarding their child's age when they first became concerned about their development, what their first concern was, all concerns they have had about their child, and age of diagnosis. An earlier age at first concern and the presence of several specific types of concerns (i.e., delayed/absence response to name, reduced eye contact, developmental regression, delayed gesture development, limited emotional response) were found to be significant predictors of earlier age at diagnosis. In addition, when accounting for age of first concern and the presence of specific types of concerns, a higher number of concerns was associated with a later age of diagnosis. Several specific types of concerns significantly predict the age at diagnosis, although several of these specific types are not commonly reported by parents. Educating parents and pediatricians about these concerns may improve early detection and intervention, ultimately improving long-term outcomes for children and families. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Parents' Early Concerns about Their Child with Autism: Relation to Age of Diagnosis.
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  Data: <searchLink fieldCode="AR" term="%22Leach%2C+Madison%22">Leach, Madison</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Mazefsky%2C+Carla+A%2E%22">Mazefsky, Carla A.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Northrup%2C+Jessie+B%2E%22">Northrup, Jessie B.</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Journal+of+Autism+%26+Developmental+Disorders%22">Journal of Autism & Developmental Disorders</searchLink>. May2026, Vol. 56 Issue 5, p2009-2022. 14p.
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  Data: <searchLink fieldCode="DE" term="%22Diagnosis+of+autism%22">Diagnosis of autism</searchLink><br /><searchLink fieldCode="DE" term="%22Age+of+onset%22">Age of onset</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22T-test+%28Statistics%29%22">T-test (Statistics)</searchLink><br /><searchLink fieldCode="DE" term="%22Data+analysis%22">Data analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Questionnaires%22">Questionnaires</searchLink><br /><searchLink fieldCode="DE" term="%22Autism%22">Autism</searchLink><br /><searchLink fieldCode="DE" term="%22Parent-child+relationships%22">Parent-child relationships</searchLink><br /><searchLink fieldCode="DE" term="%22Multiple+regression+analysis%22">Multiple regression analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Parent+attitudes%22">Parent attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Age+distribution%22">Age distribution</searchLink><br /><searchLink fieldCode="DE" term="%22Retrospective+studies%22">Retrospective studies</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Developmental+disabilities%22">Developmental disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Child+development%22">Child development</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+records%22">Medical records</searchLink><br /><searchLink fieldCode="DE" term="%22Acquisition+of+data%22">Acquisition of data</searchLink><br /><searchLink fieldCode="DE" term="%22Analysis+of+variance%22">Analysis of variance</searchLink><br /><searchLink fieldCode="DE" term="%22Statistics%22">Statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Parents+of+children+with+disabilities%22">Parents of children with disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Asperger's+syndrome%22">Asperger's syndrome</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+parents%22">Psychology of parents</searchLink><br /><searchLink fieldCode="DE" term="%22Data+analysis+software%22">Data analysis software</searchLink><br /><searchLink fieldCode="DE" term="%22Psychosocial+factors%22">Psychosocial factors</searchLink><br /><searchLink fieldCode="DE" term="%22Sensitivity+%26+specificity+%28Statistics%29%22">Sensitivity & specificity (Statistics)</searchLink><br /><searchLink fieldCode="DE" term="%22Symptoms%22">Symptoms</searchLink>
– Name: Abstract
  Label: Abstract
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  Data: There is a substantial time gap between when parents develop concerns about their child (ages 1–2) and when they receive a diagnosis of autism (ages 3–5), delaying the onset of critical interventions. Few studies have examined how the timing, type, and quantity of early parental concerns are associated with age of diagnosis. The aims of this study were to describe characteristics of parents' concerns in a large community-based sample and explore how characteristics of concerns relate to age of diagnosis. This study included 853 parents of 2- to 5-year-old children with an autism diagnosis. Parents completed an online survey including questions regarding their child's age when they first became concerned about their development, what their first concern was, all concerns they have had about their child, and age of diagnosis. An earlier age at first concern and the presence of several specific types of concerns (i.e., delayed/absence response to name, reduced eye contact, developmental regression, delayed gesture development, limited emotional response) were found to be significant predictors of earlier age at diagnosis. In addition, when accounting for age of first concern and the presence of specific types of concerns, a higher number of concerns was associated with a later age of diagnosis. Several specific types of concerns significantly predict the age at diagnosis, although several of these specific types are not commonly reported by parents. Educating parents and pediatricians about these concerns may improve early detection and intervention, ultimately improving long-term outcomes for children and families. [ABSTRACT FROM AUTHOR]
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  Data: <i>Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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    Identifiers:
      – Type: doi
        Value: 10.1007/s10803-024-06699-3
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 14
        StartPage: 2009
    Subjects:
      – SubjectFull: Diagnosis of autism
        Type: general
      – SubjectFull: Age of onset
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: T-test (Statistics)
        Type: general
      – SubjectFull: Data analysis
        Type: general
      – SubjectFull: Questionnaires
        Type: general
      – SubjectFull: Autism
        Type: general
      – SubjectFull: Parent-child relationships
        Type: general
      – SubjectFull: Multiple regression analysis
        Type: general
      – SubjectFull: Parent attitudes
        Type: general
      – SubjectFull: Age distribution
        Type: general
      – SubjectFull: Retrospective studies
        Type: general
      – SubjectFull: Descriptive statistics
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      – SubjectFull: Developmental disabilities
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      – SubjectFull: Child development
        Type: general
      – SubjectFull: Medical records
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      – SubjectFull: Analysis of variance
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      – SubjectFull: Parents of children with disabilities
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      – SubjectFull: Asperger's syndrome
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      – SubjectFull: Psychology of parents
        Type: general
      – SubjectFull: Data analysis software
        Type: general
      – SubjectFull: Psychosocial factors
        Type: general
      – SubjectFull: Sensitivity & specificity (Statistics)
        Type: general
      – SubjectFull: Symptoms
        Type: general
    Titles:
      – TitleFull: Parents' Early Concerns about Their Child with Autism: Relation to Age of Diagnosis.
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              Text: May2026
              Type: published
              Y: 2026
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