View in EDS HTML Full Text PDF Full Text

Qualitative investigation of school experiences in children with osteogenesis imperfecta.

Saved in:
Bibliographic Details
Title: Qualitative investigation of school experiences in children with osteogenesis imperfecta.
Authors: Morales, Julia M. (AUTHOR), Wiese, Andrew D. (AUTHOR), Shepherd, Whitney S. (AUTHOR), Colombo, Gianna M. (AUTHOR), Guo, Selena (AUTHOR), Qian, Justin (AUTHOR), Rork, W. Conor (AUTHOR), Cho, Hannah (AUTHOR), Kostick-Quenet, Kristin M. (AUTHOR), Nguyen, Dianne (AUTHOR), Carter, Erin M. (AUTHOR), Fynan, Michelle L. (AUTHOR), Of the BBDC, Members (AUTHOR), Murali, Chaya N. (AUTHOR), Robinson, Marie-Eve (AUTHOR), Schneider, Sophie C. (AUTHOR), Lee, Brendan (AUTHOR), Sutton, V. Reid (AUTHOR), Storch, Eric A. (AUTHOR)
Source: Children's Health Care. Jul-Sep2026, Vol. 55 Issue 3, p260-287. 28p.
Subjects: Self-evaluation, Psychology of children with disabilities, Academic accommodations, Qualitative research, Attitudes toward illness, Research funding, Parent-child relationships, Questionnaires, Content analysis, Interviewing, Students with disabilities, Emotions, Attitudes toward disabilities, Parent attitudes, Descriptive statistics, Group dynamics, Social perception, Parenting, Thematic analysis, Special education schools, Academic achievement, Research methodology, Social skills, Psychological stress, Parents of children with disabilities, Psychology of caregivers, Student attitudes, Comparative studies, Data analysis software, Sociodemographic factors, Interpersonal relations, Psychosocial factors, Osteogenesis imperfecta, Caregiver attitudes, Physical activity, Activities of daily living, Adolescence, Children
Geographic Terms: Canada, United States
Abstract: Osteogenesis imperfecta (OI) is a rare genetic chronic condition leading to fragile bones and frequent bone fractures with wide-reaching health implications. Current literature suggests that children with chronic diseases face unique challenges at school, yet research regarding educational concerns among those with OI is limited. The present study involved qualitative analysis of semi-structured interviews with 10 children with OI and 12 caregivers of a child with OI. Children and caregivers participated in the interviews individually; they were not dyads of participants. Half of the caregivers who participated had OI themselves. The interviews were coded, and six themes were identified: (1) diverse school accommodations; (2) OI-related factors affecting children's academics; (3) OI-related physical differences regarding physical activities; (4) children's varying social dynamics; (5) variability in children's emotions with OI at school; and (6) psychosocial experiences of caregivers in their child's education. Findings suggest that OI has unique academic, social, physical, and emotional implications for children and their caregivers, and specific accommodations may be necessary to achieve academic success. [ABSTRACT FROM AUTHOR]
Copyright of Children's Health Care is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
Full text is not displayed to guests.
FullText Links:
  – Type: pdflink
Text:
  Availability: 1
Header DbId: pbh
DbLabel: Psychology and Behavioral Sciences Collection
An: 194726004
AccessLevel: 6
PubType: Academic Journal
PubTypeId: academicJournal
PreciseRelevancyScore: 0
IllustrationInfo
Items – Name: Title
  Label: Title
  Group: Ti
  Data: Qualitative investigation of school experiences in children with osteogenesis imperfecta.
– Name: Author
  Label: Authors
  Group: Au
  Data: <searchLink fieldCode="AR" term="%22Morales%2C+Julia+M%2E%22">Morales, Julia M.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Wiese%2C+Andrew+D%2E%22">Wiese, Andrew D.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Shepherd%2C+Whitney+S%2E%22">Shepherd, Whitney S.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Colombo%2C+Gianna+M%2E%22">Colombo, Gianna M.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Guo%2C+Selena%22">Guo, Selena</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Qian%2C+Justin%22">Qian, Justin</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Rork%2C+W%2E+Conor%22">Rork, W. Conor</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Cho%2C+Hannah%22">Cho, Hannah</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Kostick-Quenet%2C+Kristin+M%2E%22">Kostick-Quenet, Kristin M.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Nguyen%2C+Dianne%22">Nguyen, Dianne</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Carter%2C+Erin+M%2E%22">Carter, Erin M.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Fynan%2C+Michelle+L%2E%22">Fynan, Michelle L.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Of+the+BBDC%2C+Members%22">Of the BBDC, Members</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Murali%2C+Chaya+N%2E%22">Murali, Chaya N.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Robinson%2C+Marie-Eve%22">Robinson, Marie-Eve</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Schneider%2C+Sophie+C%2E%22">Schneider, Sophie C.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Lee%2C+Brendan%22">Lee, Brendan</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Sutton%2C+V%2E+Reid%22">Sutton, V. Reid</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Storch%2C+Eric+A%2E%22">Storch, Eric A.</searchLink> (AUTHOR)
– Name: TitleSource
  Label: Source
  Group: Src
  Data: <searchLink fieldCode="JN" term="%22Children's+Health+Care%22">Children's Health Care</searchLink>. Jul-Sep2026, Vol. 55 Issue 3, p260-287. 28p.
– Name: Subject
  Label: Subjects
  Group: Su
  Data: <searchLink fieldCode="DE" term="%22Self-evaluation%22">Self-evaluation</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+children+with+disabilities%22">Psychology of children with disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Academic+accommodations%22">Academic accommodations</searchLink><br /><searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Attitudes+toward+illness%22">Attitudes toward illness</searchLink><br /><searchLink fieldCode="DE" term="%22Research+funding%22">Research funding</searchLink><br /><searchLink fieldCode="DE" term="%22Parent-child+relationships%22">Parent-child relationships</searchLink><br /><searchLink fieldCode="DE" term="%22Questionnaires%22">Questionnaires</searchLink><br /><searchLink fieldCode="DE" term="%22Content+analysis%22">Content analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Interviewing%22">Interviewing</searchLink><br /><searchLink fieldCode="DE" term="%22Students+with+disabilities%22">Students with disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Emotions%22">Emotions</searchLink><br /><searchLink fieldCode="DE" term="%22Attitudes+toward+disabilities%22">Attitudes toward disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Parent+attitudes%22">Parent attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Descriptive+statistics%22">Descriptive statistics</searchLink><br /><searchLink fieldCode="DE" term="%22Group+dynamics%22">Group dynamics</searchLink><br /><searchLink fieldCode="DE" term="%22Social+perception%22">Social perception</searchLink><br /><searchLink fieldCode="DE" term="%22Parenting%22">Parenting</searchLink><br /><searchLink fieldCode="DE" term="%22Thematic+analysis%22">Thematic analysis</searchLink><br /><searchLink fieldCode="DE" term="%22Special+education+schools%22">Special education schools</searchLink><br /><searchLink fieldCode="DE" term="%22Academic+achievement%22">Academic achievement</searchLink><br /><searchLink fieldCode="DE" term="%22Research+methodology%22">Research methodology</searchLink><br /><searchLink fieldCode="DE" term="%22Social+skills%22">Social skills</searchLink><br /><searchLink fieldCode="DE" term="%22Psychological+stress%22">Psychological stress</searchLink><br /><searchLink fieldCode="DE" term="%22Parents+of+children+with+disabilities%22">Parents of children with disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Psychology+of+caregivers%22">Psychology of caregivers</searchLink><br /><searchLink fieldCode="DE" term="%22Student+attitudes%22">Student attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Comparative+studies%22">Comparative studies</searchLink><br /><searchLink fieldCode="DE" term="%22Data+analysis+software%22">Data analysis software</searchLink><br /><searchLink fieldCode="DE" term="%22Sociodemographic+factors%22">Sociodemographic factors</searchLink><br /><searchLink fieldCode="DE" term="%22Interpersonal+relations%22">Interpersonal relations</searchLink><br /><searchLink fieldCode="DE" term="%22Psychosocial+factors%22">Psychosocial factors</searchLink><br /><searchLink fieldCode="DE" term="%22Osteogenesis+imperfecta%22">Osteogenesis imperfecta</searchLink><br /><searchLink fieldCode="DE" term="%22Caregiver+attitudes%22">Caregiver attitudes</searchLink><br /><searchLink fieldCode="DE" term="%22Physical+activity%22">Physical activity</searchLink><br /><searchLink fieldCode="DE" term="%22Activities+of+daily+living%22">Activities of daily living</searchLink><br /><searchLink fieldCode="DE" term="%22Adolescence%22">Adolescence</searchLink><br /><searchLink fieldCode="DE" term="%22Children%22">Children</searchLink>
– Name: SubjectGeographic
  Label: Geographic Terms
  Group: Su
  Data: <searchLink fieldCode="DE" term="%22Canada%22">Canada</searchLink><br /><searchLink fieldCode="DE" term="%22United+States%22">United States</searchLink>
– Name: Abstract
  Label: Abstract
  Group: Ab
  Data: Osteogenesis imperfecta (OI) is a rare genetic chronic condition leading to fragile bones and frequent bone fractures with wide-reaching health implications. Current literature suggests that children with chronic diseases face unique challenges at school, yet research regarding educational concerns among those with OI is limited. The present study involved qualitative analysis of semi-structured interviews with 10 children with OI and 12 caregivers of a child with OI. Children and caregivers participated in the interviews individually; they were not dyads of participants. Half of the caregivers who participated had OI themselves. The interviews were coded, and six themes were identified: (1) diverse school accommodations; (2) OI-related factors affecting children's academics; (3) OI-related physical differences regarding physical activities; (4) children's varying social dynamics; (5) variability in children's emotions with OI at school; and (6) psychosocial experiences of caregivers in their child's education. Findings suggest that OI has unique academic, social, physical, and emotional implications for children and their caregivers, and specific accommodations may be necessary to achieve academic success. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
  Label:
  Group: Ab
  Data: <i>Copyright of Children's Health Care is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
PLink https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=194726004
RecordInfo BibRecord:
  BibEntity:
    Identifiers:
      – Type: doi
        Value: 10.1080/02739615.2024.2403482
    Languages:
      – Code: eng
        Text: English
    PhysicalDescription:
      Pagination:
        PageCount: 28
        StartPage: 260
    Subjects:
      – SubjectFull: Self-evaluation
        Type: general
      – SubjectFull: Psychology of children with disabilities
        Type: general
      – SubjectFull: Academic accommodations
        Type: general
      – SubjectFull: Qualitative research
        Type: general
      – SubjectFull: Attitudes toward illness
        Type: general
      – SubjectFull: Research funding
        Type: general
      – SubjectFull: Parent-child relationships
        Type: general
      – SubjectFull: Questionnaires
        Type: general
      – SubjectFull: Content analysis
        Type: general
      – SubjectFull: Interviewing
        Type: general
      – SubjectFull: Students with disabilities
        Type: general
      – SubjectFull: Emotions
        Type: general
      – SubjectFull: Attitudes toward disabilities
        Type: general
      – SubjectFull: Parent attitudes
        Type: general
      – SubjectFull: Descriptive statistics
        Type: general
      – SubjectFull: Group dynamics
        Type: general
      – SubjectFull: Social perception
        Type: general
      – SubjectFull: Parenting
        Type: general
      – SubjectFull: Thematic analysis
        Type: general
      – SubjectFull: Special education schools
        Type: general
      – SubjectFull: Academic achievement
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Social skills
        Type: general
      – SubjectFull: Psychological stress
        Type: general
      – SubjectFull: Parents of children with disabilities
        Type: general
      – SubjectFull: Psychology of caregivers
        Type: general
      – SubjectFull: Student attitudes
        Type: general
      – SubjectFull: Comparative studies
        Type: general
      – SubjectFull: Data analysis software
        Type: general
      – SubjectFull: Sociodemographic factors
        Type: general
      – SubjectFull: Interpersonal relations
        Type: general
      – SubjectFull: Psychosocial factors
        Type: general
      – SubjectFull: Osteogenesis imperfecta
        Type: general
      – SubjectFull: Caregiver attitudes
        Type: general
      – SubjectFull: Physical activity
        Type: general
      – SubjectFull: Activities of daily living
        Type: general
      – SubjectFull: Adolescence
        Type: general
      – SubjectFull: Children
        Type: general
      – SubjectFull: Canada
        Type: general
      – SubjectFull: United States
        Type: general
    Titles:
      – TitleFull: Qualitative investigation of school experiences in children with osteogenesis imperfecta.
        Type: main
  BibRelationships:
    HasContributorRelationships:
      – PersonEntity:
          Name:
            NameFull: Morales, Julia M.
      – PersonEntity:
          Name:
            NameFull: Wiese, Andrew D.
      – PersonEntity:
          Name:
            NameFull: Shepherd, Whitney S.
      – PersonEntity:
          Name:
            NameFull: Colombo, Gianna M.
      – PersonEntity:
          Name:
            NameFull: Guo, Selena
      – PersonEntity:
          Name:
            NameFull: Qian, Justin
      – PersonEntity:
          Name:
            NameFull: Rork, W. Conor
      – PersonEntity:
          Name:
            NameFull: Cho, Hannah
      – PersonEntity:
          Name:
            NameFull: Kostick-Quenet, Kristin M.
      – PersonEntity:
          Name:
            NameFull: Nguyen, Dianne
      – PersonEntity:
          Name:
            NameFull: Carter, Erin M.
      – PersonEntity:
          Name:
            NameFull: Fynan, Michelle L.
      – PersonEntity:
          Name:
            NameFull: Of the BBDC, Members
      – PersonEntity:
          Name:
            NameFull: Murali, Chaya N.
      – PersonEntity:
          Name:
            NameFull: Robinson, Marie-Eve
      – PersonEntity:
          Name:
            NameFull: Schneider, Sophie C.
      – PersonEntity:
          Name:
            NameFull: Lee, Brendan
      – PersonEntity:
          Name:
            NameFull: Sutton, V. Reid
      – PersonEntity:
          Name:
            NameFull: Storch, Eric A.
    IsPartOfRelationships:
      – BibEntity:
          Dates:
            – D: 01
              M: 07
              Text: Jul-Sep2026
              Type: published
              Y: 2026
          Identifiers:
            – Type: issn-print
              Value: 02739615
          Numbering:
            – Type: volume
              Value: 55
            – Type: issue
              Value: 3
          Titles:
            – TitleFull: Children's Health Care
              Type: main
ResultId 1