Co-designing narrative resources for implementation in lower limb amputation rehabilitation.
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| Title: | Co-designing narrative resources for implementation in lower limb amputation rehabilitation. |
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| Authors: | Leggat, Fiona (AUTHOR), Wadey, Ross (AUTHOR), Day, Melissa (AUTHOR), Winter, Stacy (AUTHOR), Sanders, Phoebe (AUTHOR), Smith, Sara (AUTHOR) |
| Source: | Disability & Rehabilitation. Jul2026, Vol. 48 Issue 14, p4480-4495. 16p. |
| Subjects: | Physical therapy, Intellect, Patient education, Support groups, Language & languages, Human services programs, Qualitative research, Field notes (Science), Affinity groups, Health, Digital health, Amputees, Judgment sampling, Psychological adaptation, Information resources, Emotions, Sound recordings, Discussion, Creative ability, Leg amputation, Theory of knowledge, Conceptual structures, Action research, Storytelling, Attitudes of medical personnel, Multimedia systems, Communication, Trust, Adult education workshops, Social support, Interpersonal relations, Patient participation, Rehabilitation |
| Abstract: | Purpose: Narratives help people to make sense of illness and trauma experiences. Exposure to a breadth of narratives is proposed to offer validation, reassurance and support well-being. Previous research constructed five narratives from people with major lower limb amputation (MLLA). However, efforts to bridge the research-practice gap, and meet clinical priorities by translating the narratives into resources, remained. This study aimed to illustrate an immersive co-design process and develop narrative resources for healthcare professionals working within, and people undergoing MLLA rehabilitation. Methods: Commissioned by a National Health Service (NHS) MLLA rehabilitation centre, a 27-month rigorous co-design process was undertaken. An immersive, iterative three-stage process involving multiple end-user groups (e.g. patients, therapists, managers) and co-design activities (e.g. immersion, workshops) was used. Results: Two co-design workstreams were undertaken, one to develop resources for people with MLLA and one for new allied healthcare professionals (AHPs). Outcomes included perceptions of the narratives (e.g. authentic, awareness raising), content and format priorities (e.g. visual, novel), and factors likely to influence implementation and engagement (e.g. readiness, existing knowledge). Conclusions: Two narrative resource packages were co-designed for use in MLLA rehabilitation. The importance of context, and the dilemmas of sharing regressive narratives in clinical practice are discussed. IMPLICATIONS FOR REHABILITATION: People with major lower limb amputation can face substantial psychological and social impacts and lack knowledge of what their future might look like. Sharing multiple narratives of recovery has been shown to help expand people's awareness and normalise different paths to guide their future. Co-design offers a process to develop creative outputs together with different communities, which aim to meet the needs and priorities of patients and healthcare professionals. Narratives of recovery should be shared within rehabilitation settings using creative formats to engage and enhance the knowledge of both patients and healthcare professionals. [ABSTRACT FROM AUTHOR] |
| Copyright of Disability & Rehabilitation is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Text: Availability: 0 |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 194972739 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Co-designing narrative resources for implementation in lower limb amputation rehabilitation. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Leggat%2C+Fiona%22">Leggat, Fiona</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Wadey%2C+Ross%22">Wadey, Ross</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Day%2C+Melissa%22">Day, Melissa</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Winter%2C+Stacy%22">Winter, Stacy</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Sanders%2C+Phoebe%22">Sanders, Phoebe</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Smith%2C+Sara%22">Smith, Sara</searchLink> (AUTHOR) – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Disability+%26+Rehabilitation%22">Disability & Rehabilitation</searchLink>. Jul2026, Vol. 48 Issue 14, p4480-4495. 16p. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Physical+therapy%22">Physical therapy</searchLink><br /><searchLink fieldCode="DE" term="%22Intellect%22">Intellect</searchLink><br /><searchLink fieldCode="DE" term="%22Patient+education%22">Patient education</searchLink><br /><searchLink fieldCode="DE" term="%22Support+groups%22">Support groups</searchLink><br /><searchLink fieldCode="DE" term="%22Language+%26+languages%22">Language & languages</searchLink><br /><searchLink fieldCode="DE" term="%22Human+services+programs%22">Human services programs</searchLink><br /><searchLink fieldCode="DE" term="%22Qualitative+research%22">Qualitative research</searchLink><br /><searchLink fieldCode="DE" term="%22Field+notes+%28Science%29%22">Field notes (Science)</searchLink><br /><searchLink fieldCode="DE" term="%22Affinity+groups%22">Affinity groups</searchLink><br /><searchLink fieldCode="DE" term="%22Health%22">Health</searchLink><br /><searchLink fieldCode="DE" term="%22Digital+health%22">Digital health</searchLink><br /><searchLink fieldCode="DE" term="%22Amputees%22">Amputees</searchLink><br /><searchLink fieldCode="DE" term="%22Judgment+sampling%22">Judgment sampling</searchLink><br /><searchLink fieldCode="DE" term="%22Psychological+adaptation%22">Psychological adaptation</searchLink><br /><searchLink fieldCode="DE" term="%22Information+resources%22">Information resources</searchLink><br /><searchLink fieldCode="DE" term="%22Emotions%22">Emotions</searchLink><br /><searchLink fieldCode="DE" term="%22Sound+recordings%22">Sound recordings</searchLink><br /><searchLink fieldCode="DE" term="%22Discussion%22">Discussion</searchLink><br /><searchLink fieldCode="DE" term="%22Creative+ability%22">Creative ability</searchLink><br /><searchLink fieldCode="DE" term="%22Leg+amputation%22">Leg amputation</searchLink><br /><searchLink fieldCode="DE" term="%22Theory+of+knowledge%22">Theory of knowledge</searchLink><br /><searchLink fieldCode="DE" term="%22Conceptual+structures%22">Conceptual structures</searchLink><br /><searchLink fieldCode="DE" term="%22Action+research%22">Action research</searchLink><br /><searchLink fieldCode="DE" term="%22Storytelling%22">Storytelling</searchLink><br /><searchLink fieldCode="DE" term="%22Attitudes+of+medical+personnel%22">Attitudes of medical personnel</searchLink><br /><searchLink fieldCode="DE" term="%22Multimedia+systems%22">Multimedia systems</searchLink><br /><searchLink fieldCode="DE" term="%22Communication%22">Communication</searchLink><br /><searchLink fieldCode="DE" term="%22Trust%22">Trust</searchLink><br /><searchLink fieldCode="DE" term="%22Adult+education+workshops%22">Adult education workshops</searchLink><br /><searchLink fieldCode="DE" term="%22Social+support%22">Social support</searchLink><br /><searchLink fieldCode="DE" term="%22Interpersonal+relations%22">Interpersonal relations</searchLink><br /><searchLink fieldCode="DE" term="%22Patient+participation%22">Patient participation</searchLink><br /><searchLink fieldCode="DE" term="%22Rehabilitation%22">Rehabilitation</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Purpose: Narratives help people to make sense of illness and trauma experiences. Exposure to a breadth of narratives is proposed to offer validation, reassurance and support well-being. Previous research constructed five narratives from people with major lower limb amputation (MLLA). However, efforts to bridge the research-practice gap, and meet clinical priorities by translating the narratives into resources, remained. This study aimed to illustrate an immersive co-design process and develop narrative resources for healthcare professionals working within, and people undergoing MLLA rehabilitation. Methods: Commissioned by a National Health Service (NHS) MLLA rehabilitation centre, a 27-month rigorous co-design process was undertaken. An immersive, iterative three-stage process involving multiple end-user groups (e.g. patients, therapists, managers) and co-design activities (e.g. immersion, workshops) was used. Results: Two co-design workstreams were undertaken, one to develop resources for people with MLLA and one for new allied healthcare professionals (AHPs). Outcomes included perceptions of the narratives (e.g. authentic, awareness raising), content and format priorities (e.g. visual, novel), and factors likely to influence implementation and engagement (e.g. readiness, existing knowledge). Conclusions: Two narrative resource packages were co-designed for use in MLLA rehabilitation. The importance of context, and the dilemmas of sharing regressive narratives in clinical practice are discussed. IMPLICATIONS FOR REHABILITATION: People with major lower limb amputation can face substantial psychological and social impacts and lack knowledge of what their future might look like. Sharing multiple narratives of recovery has been shown to help expand people's awareness and normalise different paths to guide their future. Co-design offers a process to develop creative outputs together with different communities, which aim to meet the needs and priorities of patients and healthcare professionals. Narratives of recovery should be shared within rehabilitation settings using creative formats to engage and enhance the knowledge of both patients and healthcare professionals. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Disability & Rehabilitation is the property of Taylor & Francis Ltd and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1080/09638288.2025.2600656 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 16 StartPage: 4480 Subjects: – SubjectFull: Physical therapy Type: general – SubjectFull: Intellect Type: general – SubjectFull: Patient education Type: general – SubjectFull: Support groups Type: general – SubjectFull: Language & languages Type: general – SubjectFull: Human services programs Type: general – SubjectFull: Qualitative research Type: general – SubjectFull: Field notes (Science) Type: general – SubjectFull: Affinity groups Type: general – SubjectFull: Health Type: general – SubjectFull: Digital health Type: general – SubjectFull: Amputees Type: general – SubjectFull: Judgment sampling Type: general – SubjectFull: Psychological adaptation Type: general – SubjectFull: Information resources Type: general – SubjectFull: Emotions Type: general – SubjectFull: Sound recordings Type: general – SubjectFull: Discussion Type: general – SubjectFull: Creative ability Type: general – SubjectFull: Leg amputation Type: general – SubjectFull: Theory of knowledge Type: general – SubjectFull: Conceptual structures Type: general – SubjectFull: Action research Type: general – SubjectFull: Storytelling Type: general – SubjectFull: Attitudes of medical personnel Type: general – SubjectFull: Multimedia systems Type: general – SubjectFull: Communication Type: general – SubjectFull: Trust Type: general – SubjectFull: Adult education workshops Type: general – SubjectFull: Social support Type: general – SubjectFull: Interpersonal relations Type: general – SubjectFull: Patient participation Type: general – SubjectFull: Rehabilitation Type: general Titles: – TitleFull: Co-designing narrative resources for implementation in lower limb amputation rehabilitation. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Leggat, Fiona – PersonEntity: Name: NameFull: Wadey, Ross – PersonEntity: Name: NameFull: Day, Melissa – PersonEntity: Name: NameFull: Winter, Stacy – PersonEntity: Name: NameFull: Sanders, Phoebe – PersonEntity: Name: NameFull: Smith, Sara IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 07 Text: Jul2026 Type: published Y: 2026 Identifiers: – Type: issn-print Value: 09638288 Numbering: – Type: volume Value: 48 – Type: issue Value: 14 Titles: – TitleFull: Disability & Rehabilitation Type: main |
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