Caregiver Satisfaction with Anxiety Treatment for Autistic Youth: A Mixed Methods Examination.

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Title: Caregiver Satisfaction with Anxiety Treatment for Autistic Youth: A Mixed Methods Examination.
Authors: Norris, Lesley A. (AUTHOR), Rabner, Jonathan C. (AUTHOR), Marklin, Marika (AUTHOR), Crane, Margaret E. (AUTHOR), Renschler, Kathrin (AUTHOR), Jenkins, Emma (AUTHOR), Kemp, Joshua (AUTHOR), Storch, Eric A. (AUTHOR), Wood, Jeffrey J. (AUTHOR), Kerns, Connor M. (AUTHOR), Lewin, Adam B. (AUTHOR), Small, Brent J. (AUTHOR), Kendall, Philip C. (AUTHOR)
Source: Journal of Autism & Developmental Disorders. Jul2026, Vol. 56 Issue 7, p2685-2696. 12p.
Subjects: Anxiety treatment, Treatment of autism, Satisfaction, T-test (Statistics), Research funding, Questionnaires, Treatment effectiveness, Anxiety, Parenting, Descriptive statistics, Chi-squared test, Thematic analysis, Research methodology, Asperger's syndrome, Psychology of caregivers, Cognitive therapy, Psychology of parents, Data analysis software, Comorbidity, Children
Abstract: For Cognitive Behavioral Therapy to best meet the specific needs of autistic youth with co-occurring anxiety and to continue to grow as a sustainable treatment option, it is important to incorporate caregiver perspectives and feedback. Data were drawn from a randomized controlled trial and included 148 caregivers of autistic youth (ages 7–13 years, M = 9.89, SD = 1.79; 23% female; 77.7% White) with co-occurring anxiety disorders randomized to one of two active treatment conditions (Coping Cat, n = 72, or Behavioral Interventions for Anxiety in Children with Autism [BIACA], n = 76). A systematic inductive thematic analysis was used to code open-ended parent responses on the Consumer Satisfaction Questionnaire to identify what caregivers of autistic children with co-occurring anxiety liked most and least about their child's treatment. Satisfaction with treatment was high (M = 64.98, SD = 5.48). Caregivers' most-liked treatment features across treatments included (a) tools and coping skills, (b) therapeutic alliance, (c) caregiver support and involvement, (d) personalized treatment, and (e) treatment efficacy. Least-liked features of treatment and family participation included (a) the commute to the clinic, (b) treatment length, (c) commitment required at home, (d) questionnaires, and (e) scheduling. Treatment responders endorsed therapeutic alliance more frequently. Caregivers in BIACA endorsed caregiver support and involvement at higher rates, in addition to commitment required at home. Caregiver responses indicated a preference for more sessions and highlighted the importance of balancing need for caregiver involvement in treatment while reducing caregiver burden. [ABSTRACT FROM AUTHOR]
Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
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  Data: Caregiver Satisfaction with Anxiety Treatment for Autistic Youth: A Mixed Methods Examination.
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  Data: <searchLink fieldCode="AR" term="%22Norris%2C+Lesley+A%2E%22">Norris, Lesley A.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Rabner%2C+Jonathan+C%2E%22">Rabner, Jonathan C.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Marklin%2C+Marika%22">Marklin, Marika</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Crane%2C+Margaret+E%2E%22">Crane, Margaret E.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Renschler%2C+Kathrin%22">Renschler, Kathrin</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Jenkins%2C+Emma%22">Jenkins, Emma</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Kemp%2C+Joshua%22">Kemp, Joshua</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Storch%2C+Eric+A%2E%22">Storch, Eric A.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Wood%2C+Jeffrey+J%2E%22">Wood, Jeffrey J.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Kerns%2C+Connor+M%2E%22">Kerns, Connor M.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Lewin%2C+Adam+B%2E%22">Lewin, Adam B.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Small%2C+Brent+J%2E%22">Small, Brent J.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Kendall%2C+Philip+C%2E%22">Kendall, Philip C.</searchLink> (AUTHOR)
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  Data: <searchLink fieldCode="JN" term="%22Journal+of+Autism+%26+Developmental+Disorders%22">Journal of Autism & Developmental Disorders</searchLink>. Jul2026, Vol. 56 Issue 7, p2685-2696. 12p.
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  Label: Abstract
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  Data: For Cognitive Behavioral Therapy to best meet the specific needs of autistic youth with co-occurring anxiety and to continue to grow as a sustainable treatment option, it is important to incorporate caregiver perspectives and feedback. Data were drawn from a randomized controlled trial and included 148 caregivers of autistic youth (ages 7–13 years, M = 9.89, SD = 1.79; 23% female; 77.7% White) with co-occurring anxiety disorders randomized to one of two active treatment conditions (Coping Cat, n = 72, or Behavioral Interventions for Anxiety in Children with Autism [BIACA], n = 76). A systematic inductive thematic analysis was used to code open-ended parent responses on the Consumer Satisfaction Questionnaire to identify what caregivers of autistic children with co-occurring anxiety liked most and least about their child's treatment. Satisfaction with treatment was high (M = 64.98, SD = 5.48). Caregivers' most-liked treatment features across treatments included (a) tools and coping skills, (b) therapeutic alliance, (c) caregiver support and involvement, (d) personalized treatment, and (e) treatment efficacy. Least-liked features of treatment and family participation included (a) the commute to the clinic, (b) treatment length, (c) commitment required at home, (d) questionnaires, and (e) scheduling. Treatment responders endorsed therapeutic alliance more frequently. Caregivers in BIACA endorsed caregiver support and involvement at higher rates, in addition to commitment required at home. Caregiver responses indicated a preference for more sessions and highlighted the importance of balancing need for caregiver involvement in treatment while reducing caregiver burden. [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
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  Data: <i>Copyright of Journal of Autism & Developmental Disorders is the property of Springer Nature and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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RecordInfo BibRecord:
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    Identifiers:
      – Type: doi
        Value: 10.1007/s10803-025-06725-y
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      – Code: eng
        Text: English
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        PageCount: 12
        StartPage: 2685
    Subjects:
      – SubjectFull: Anxiety treatment
        Type: general
      – SubjectFull: Treatment of autism
        Type: general
      – SubjectFull: Satisfaction
        Type: general
      – SubjectFull: T-test (Statistics)
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      – SubjectFull: Research funding
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      – SubjectFull: Questionnaires
        Type: general
      – SubjectFull: Treatment effectiveness
        Type: general
      – SubjectFull: Anxiety
        Type: general
      – SubjectFull: Parenting
        Type: general
      – SubjectFull: Descriptive statistics
        Type: general
      – SubjectFull: Chi-squared test
        Type: general
      – SubjectFull: Thematic analysis
        Type: general
      – SubjectFull: Research methodology
        Type: general
      – SubjectFull: Asperger's syndrome
        Type: general
      – SubjectFull: Psychology of caregivers
        Type: general
      – SubjectFull: Cognitive therapy
        Type: general
      – SubjectFull: Psychology of parents
        Type: general
      – SubjectFull: Data analysis software
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      – SubjectFull: Comorbidity
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      – SubjectFull: Children
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      – TitleFull: Caregiver Satisfaction with Anxiety Treatment for Autistic Youth: A Mixed Methods Examination.
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              Text: Jul2026
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