Symptoms Affecting Children With Malignancies During the Last Month of Life: A Nationwide Follow-up.
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| Title: | Symptoms Affecting Children With Malignancies During the Last Month of Life: A Nationwide Follow-up. |
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| Authors: | Jalmsell, Li, Kreicbergs, Ulrika, Onelöv, Erik, Steineck, Gunnar, Henter, Jan-Inge |
| Source: | Pediatrics. Apr2006, Vol. 117 Issue 4, p1314-1320. 7p. 3 Charts, 3 Graphs. |
| Subjects: | Symptoms in children, Child care, Pediatric diagnosis, Palliative treatment, Chronic diseases in children |
| Abstract: | OBJECTIVE. In a population-based nationwide survey, we aimed to study symptoms in children with malignancies during the last month of their lives. Understanding which symptoms affect children in the terminal phase of disease is crucial to improve palliative care. METHODS. We attempted to contact all parents in Sweden who had lost a child to cancer during a 6-year period. The parents were asked, through an anonymous postal questionnaire, about symptoms that affected the child's sense of well-being during the last month of life. RESULTS. Information was supplied by 449 (80%) of 561 eligible parents. The symptoms most frequently reported with high or moderate impact in the child's well-being were: physical fatigue (86%), reduced mobility (76%), pain (73%), and decreased appetite (71%), irrespective of the specific malignancy, physical fatigue was the most frequently reported symptom, and pain was among the 3 most frequently reported. Children who died at 9 to 15 years of age were reported to be moderately or severely affected, by a number of symptoms, significantly more often than other children. The gender of the reporting parent had no significant bearing on any of the symptoms reported. CONCLUSIONS. The most frequently reported symptoms in children with malignancies to be aware of and possibly address during the terminal phase are physical fatigue, reduced mobility, pain, and decreased appetite. Children aged 9 to 15 years are reported to be moderately or severely affected by more symptoms than children in other age groups. Mothers and fathers report a similar prevalence of symptoms. [ABSTRACT FROM AUTHOR] |
| Copyright of Pediatrics is the property of American Academy of Pediatrics and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Text: Availability: 0 |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 20545920 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Symptoms Affecting Children With Malignancies During the Last Month of Life: A Nationwide Follow-up. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Jalmsell%2C+Li%22">Jalmsell, Li</searchLink><br /><searchLink fieldCode="AR" term="%22Kreicbergs%2C+Ulrika%22">Kreicbergs, Ulrika</searchLink><br /><searchLink fieldCode="AR" term="%22Onelöv%2C+Erik%22">Onelöv, Erik</searchLink><br /><searchLink fieldCode="AR" term="%22Steineck%2C+Gunnar%22">Steineck, Gunnar</searchLink><br /><searchLink fieldCode="AR" term="%22Henter%2C+Jan-Inge%22">Henter, Jan-Inge</searchLink> – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Pediatrics%22">Pediatrics</searchLink>. Apr2006, Vol. 117 Issue 4, p1314-1320. 7p. 3 Charts, 3 Graphs. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Symptoms+in+children%22">Symptoms in children</searchLink><br /><searchLink fieldCode="DE" term="%22Child+care%22">Child care</searchLink><br /><searchLink fieldCode="DE" term="%22Pediatric+diagnosis%22">Pediatric diagnosis</searchLink><br /><searchLink fieldCode="DE" term="%22Palliative+treatment%22">Palliative treatment</searchLink><br /><searchLink fieldCode="DE" term="%22Chronic+diseases+in+children%22">Chronic diseases in children</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: OBJECTIVE. In a population-based nationwide survey, we aimed to study symptoms in children with malignancies during the last month of their lives. Understanding which symptoms affect children in the terminal phase of disease is crucial to improve palliative care. METHODS. We attempted to contact all parents in Sweden who had lost a child to cancer during a 6-year period. The parents were asked, through an anonymous postal questionnaire, about symptoms that affected the child's sense of well-being during the last month of life. RESULTS. Information was supplied by 449 (80%) of 561 eligible parents. The symptoms most frequently reported with high or moderate impact in the child's well-being were: physical fatigue (86%), reduced mobility (76%), pain (73%), and decreased appetite (71%), irrespective of the specific malignancy, physical fatigue was the most frequently reported symptom, and pain was among the 3 most frequently reported. Children who died at 9 to 15 years of age were reported to be moderately or severely affected, by a number of symptoms, significantly more often than other children. The gender of the reporting parent had no significant bearing on any of the symptoms reported. CONCLUSIONS. The most frequently reported symptoms in children with malignancies to be aware of and possibly address during the terminal phase are physical fatigue, reduced mobility, pain, and decreased appetite. Children aged 9 to 15 years are reported to be moderately or severely affected by more symptoms than children in other age groups. Mothers and fathers report a similar prevalence of symptoms. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Pediatrics is the property of American Academy of Pediatrics and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1542/peds.2005-1479 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 7 StartPage: 1314 Subjects: – SubjectFull: Symptoms in children Type: general – SubjectFull: Child care Type: general – SubjectFull: Pediatric diagnosis Type: general – SubjectFull: Palliative treatment Type: general – SubjectFull: Chronic diseases in children Type: general Titles: – TitleFull: Symptoms Affecting Children With Malignancies During the Last Month of Life: A Nationwide Follow-up. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Jalmsell, Li – PersonEntity: Name: NameFull: Kreicbergs, Ulrika – PersonEntity: Name: NameFull: Onelöv, Erik – PersonEntity: Name: NameFull: Steineck, Gunnar – PersonEntity: Name: NameFull: Henter, Jan-Inge IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 04 Text: Apr2006 Type: published Y: 2006 Identifiers: – Type: issn-print Value: 00314005 Numbering: – Type: volume Value: 117 – Type: issue Value: 4 Titles: – TitleFull: Pediatrics Type: main |
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