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Voluntary Participation and Informed Consent to International Genetic Research.

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Title: Voluntary Participation and Informed Consent to International Genetic Research.
Authors: Marshall, Patricia A., Adebamowo, Clement A., Adeyemo, Adebowale A., Ogundiran, Temidayo O., Vekich, Mirjana, Strenski, Tcri, Zhou, Jie, Prewitt, T. Elaine, Cooper, Richard S., Rotimi, Charles N.
Source: American Journal of Public Health. Nov2006, Vol. 96 Issue 11, p1989-1995. 7p.
Subjects: Informed consent (Medical law), Genetic research, Hypertension genetics, Patient education, Patient participation, Volunteers, Medical research
Abstract: Objectives. We compared voluntary participation and comprehension of informed consent among individuals of African ancestry enrolled in similarly designed genetic studies of hypertension in the United States and Nigeria. Methods. Survey questionnaires were used to evaluate factors associated with voluntariness (the number of people volunteering) and understanding of the study's genetic purpose. A total of 655 individuals (United States: 348; Nigeria: 3071 were interviewed after participation in the genetic studies. Results. Most US respondents (99%), compared with 72% of Nigerian respondents, reported being told the study purpose. Fewer than half of the respondents at both sites reported that the study purpose was to learn about genetic inheritance of hypertension. Most respondents indicated that their participation was voluntary. In the United Slates, 97% reported that they could withdraw, compared with 67% in Nigeria. In Nigeria, nearly half the married women reported asking permission from husbands to enroll in the hypertension study; no respondents sought permission from local elders to participate in the study. Conclusions. Our findings highlight the need for more effective approaches and interventions to improve comprehension of consent for genetic research among ethnically and linguistically diverse populations in all settings. (Am J Public Health. 2006;96:1989-1995. doi:10.2105/AJPH.2005.076232) [ABSTRACT FROM AUTHOR]
Copyright of American Journal of Public Health is the property of American Public Health Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.)
Database: Psychology and Behavioral Sciences Collection
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  Data: Voluntary Participation and Informed Consent to International Genetic Research.
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  Data: <searchLink fieldCode="AR" term="%22Marshall%2C+Patricia+A%2E%22">Marshall, Patricia A.</searchLink><br /><searchLink fieldCode="AR" term="%22Adebamowo%2C+Clement+A%2E%22">Adebamowo, Clement A.</searchLink><br /><searchLink fieldCode="AR" term="%22Adeyemo%2C+Adebowale+A%2E%22">Adeyemo, Adebowale A.</searchLink><br /><searchLink fieldCode="AR" term="%22Ogundiran%2C+Temidayo+O%2E%22">Ogundiran, Temidayo O.</searchLink><br /><searchLink fieldCode="AR" term="%22Vekich%2C+Mirjana%22">Vekich, Mirjana</searchLink><br /><searchLink fieldCode="AR" term="%22Strenski%2C+Tcri%22">Strenski, Tcri</searchLink><br /><searchLink fieldCode="AR" term="%22Zhou%2C+Jie%22">Zhou, Jie</searchLink><br /><searchLink fieldCode="AR" term="%22Prewitt%2C+T%2E+Elaine%22">Prewitt, T. Elaine</searchLink><br /><searchLink fieldCode="AR" term="%22Cooper%2C+Richard+S%2E%22">Cooper, Richard S.</searchLink><br /><searchLink fieldCode="AR" term="%22Rotimi%2C+Charles+N%2E%22">Rotimi, Charles N.</searchLink>
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  Data: <searchLink fieldCode="JN" term="%22American+Journal+of+Public+Health%22">American Journal of Public Health</searchLink>. Nov2006, Vol. 96 Issue 11, p1989-1995. 7p.
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  Data: <searchLink fieldCode="DE" term="%22Informed+consent+%28Medical+law%29%22">Informed consent (Medical law)</searchLink><br /><searchLink fieldCode="DE" term="%22Genetic+research%22">Genetic research</searchLink><br /><searchLink fieldCode="DE" term="%22Hypertension+genetics%22">Hypertension genetics</searchLink><br /><searchLink fieldCode="DE" term="%22Patient+education%22">Patient education</searchLink><br /><searchLink fieldCode="DE" term="%22Patient+participation%22">Patient participation</searchLink><br /><searchLink fieldCode="DE" term="%22Volunteers%22">Volunteers</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+research%22">Medical research</searchLink>
– Name: Abstract
  Label: Abstract
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  Data: Objectives. We compared voluntary participation and comprehension of informed consent among individuals of African ancestry enrolled in similarly designed genetic studies of hypertension in the United States and Nigeria. Methods. Survey questionnaires were used to evaluate factors associated with voluntariness (the number of people volunteering) and understanding of the study's genetic purpose. A total of 655 individuals (United States: 348; Nigeria: 3071 were interviewed after participation in the genetic studies. Results. Most US respondents (99%), compared with 72% of Nigerian respondents, reported being told the study purpose. Fewer than half of the respondents at both sites reported that the study purpose was to learn about genetic inheritance of hypertension. Most respondents indicated that their participation was voluntary. In the United Slates, 97% reported that they could withdraw, compared with 67% in Nigeria. In Nigeria, nearly half the married women reported asking permission from husbands to enroll in the hypertension study; no respondents sought permission from local elders to participate in the study. Conclusions. Our findings highlight the need for more effective approaches and interventions to improve comprehension of consent for genetic research among ethnically and linguistically diverse populations in all settings. (Am J Public Health. 2006;96:1989-1995. doi:10.2105/AJPH.2005.076232) [ABSTRACT FROM AUTHOR]
– Name: AbstractSuppliedCopyright
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  Data: <i>Copyright of American Journal of Public Health is the property of American Public Health Association and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.)
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      – SubjectFull: Genetic research
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      – SubjectFull: Hypertension genetics
        Type: general
      – SubjectFull: Patient education
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      – SubjectFull: Patient participation
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