Loss and change: experiences of people severely affected by multiple sclerosis.
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| Title: | Loss and change: experiences of people severely affected by multiple sclerosis. |
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| Authors: | Edmonds, Polly, Vivat, Bella, Burman, Rachel, Silber, Eli, Higginson, Irene J. |
| Source: | Palliative Medicine. Mar2007, Vol. 21 Issue 2, p101-107. 7p. |
| Subjects: | Multiple sclerosis, People with disabilities, Psychological adaptation, Palliative treatment, Neurological disorders |
| Abstract: | This study aimed to explore important issues for people severely affected by multiple sclerosis (MS). Individual interviews were conducted with 23 people with MS (PwMS) and 17 informal carers, the data relating to 32 PwMS. Information was obtained about 19 females and 13 males, with a mean age of 55, median time from diagnosis was 14.5 years, and physical disabilities ranged from mild to severe, although fifteen patients had severe disabilities. Twenty-six of the 32 individuals were unable to walk, 24 were catheterised, and 18 had considerably impaired or no upper limb function. Personal issues in relation to loss and change, particularly in terms of losses of or changes in physical abilities, including maintaining mobility, independence, relationships and social role were raised commonly in response to an open-ended question about what issues were important in living with MS. Coping with MS requires individuals to deal with the losses and changes brought about by their illness. Our study suggests that even patients who have had MS for many years and are now severely affected continue to experience loss and change. We recommend that attention be given to emotional support which specifically addresses three main areas of dealing with loss and change for people that are severely affected — physical issues, independence and relationships. Palliative care providers may have expertise in managing loss that could be useful for these patients in partnership with neurological services. [ABSTRACT FROM AUTHOR] |
| Copyright of Palliative Medicine is the property of Sage Publications Inc. and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
| FullText | Links: – Type: pdflink Text: Availability: 0 |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 25228870 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Loss and change: experiences of people severely affected by multiple sclerosis. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Edmonds%2C+Polly%22">Edmonds, Polly</searchLink><br /><searchLink fieldCode="AR" term="%22Vivat%2C+Bella%22">Vivat, Bella</searchLink><br /><searchLink fieldCode="AR" term="%22Burman%2C+Rachel%22">Burman, Rachel</searchLink><br /><searchLink fieldCode="AR" term="%22Silber%2C+Eli%22">Silber, Eli</searchLink><br /><searchLink fieldCode="AR" term="%22Higginson%2C+Irene+J%2E%22">Higginson, Irene J.</searchLink> – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Palliative+Medicine%22">Palliative Medicine</searchLink>. Mar2007, Vol. 21 Issue 2, p101-107. 7p. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Multiple+sclerosis%22">Multiple sclerosis</searchLink><br /><searchLink fieldCode="DE" term="%22People+with+disabilities%22">People with disabilities</searchLink><br /><searchLink fieldCode="DE" term="%22Psychological+adaptation%22">Psychological adaptation</searchLink><br /><searchLink fieldCode="DE" term="%22Palliative+treatment%22">Palliative treatment</searchLink><br /><searchLink fieldCode="DE" term="%22Neurological+disorders%22">Neurological disorders</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: This study aimed to explore important issues for people severely affected by multiple sclerosis (MS). Individual interviews were conducted with 23 people with MS (PwMS) and 17 informal carers, the data relating to 32 PwMS. Information was obtained about 19 females and 13 males, with a mean age of 55, median time from diagnosis was 14.5 years, and physical disabilities ranged from mild to severe, although fifteen patients had severe disabilities. Twenty-six of the 32 individuals were unable to walk, 24 were catheterised, and 18 had considerably impaired or no upper limb function. Personal issues in relation to loss and change, particularly in terms of losses of or changes in physical abilities, including maintaining mobility, independence, relationships and social role were raised commonly in response to an open-ended question about what issues were important in living with MS. Coping with MS requires individuals to deal with the losses and changes brought about by their illness. Our study suggests that even patients who have had MS for many years and are now severely affected continue to experience loss and change. We recommend that attention be given to emotional support which specifically addresses three main areas of dealing with loss and change for people that are severely affected — physical issues, independence and relationships. Palliative care providers may have expertise in managing loss that could be useful for these patients in partnership with neurological services. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Palliative Medicine is the property of Sage Publications Inc. and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
| PLink | https://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=pbh&AN=25228870 |
| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1177/0269216307076333 Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 7 StartPage: 101 Subjects: – SubjectFull: Multiple sclerosis Type: general – SubjectFull: People with disabilities Type: general – SubjectFull: Psychological adaptation Type: general – SubjectFull: Palliative treatment Type: general – SubjectFull: Neurological disorders Type: general Titles: – TitleFull: Loss and change: experiences of people severely affected by multiple sclerosis. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Edmonds, Polly – PersonEntity: Name: NameFull: Vivat, Bella – PersonEntity: Name: NameFull: Burman, Rachel – PersonEntity: Name: NameFull: Silber, Eli – PersonEntity: Name: NameFull: Higginson, Irene J. IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 03 Text: Mar2007 Type: published Y: 2007 Identifiers: – Type: issn-print Value: 02692163 Numbering: – Type: volume Value: 21 – Type: issue Value: 2 Titles: – TitleFull: Palliative Medicine Type: main |
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