Healthcare needs and healthcare satisfaction from the perspective of parents of children with chronic conditions: the DISABKIDS approach towards instrument development.
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| Title: | Healthcare needs and healthcare satisfaction from the perspective of parents of children with chronic conditions: the DISABKIDS approach towards instrument development. |
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| Authors: | Schmidt, S. (AUTHOR), Thyen, U. (AUTHOR), Chaplin, J. (AUTHOR), Mueller‐Godeffroy, E. (AUTHOR), Bullinger, M. (AUTHOR) |
| Source: | Child: Care, Health & Development. May2008, Vol. 34 Issue 3, p355-366. 12p. 1 Color Photograph, 1 Diagram, 2 Charts, 1 Graph. |
| Subjects: | Pediatric research, Juvenile diseases, Chronic diseases in children, Medical care, Child health services, Child care services, Parent-child caregiver relationships, Medical needs assessment, Medical care use, Health planning |
| Abstract: | Aim Increasingly, families' perspectives are taken into account in the appraisal of health services. The objective of this study was to cross-culturally analyse concepts related to healthcare needs, healthcare utilization and the appraisal and satisfaction with care of parents of children with chronic conditions with the aim of developing a cross-cultural measure. Methods Several approaches were employed in the study: (i) a deductive approach integrating existing measurements; and (ii) an inductive approach based on focus groups. Focus groups were conducted in seven countries with mothers and fathers as well as their children with seven different chronic conditions, and qualitatively analysed. Results As a result of an evaluation of the different existing methodological approaches, the basic structural components were identified: healthcare needs, the receipt of services, problems with receiving services as well as the appraisal of and satisfaction with the quality of care. While items referring to existing healthcare services were primarily derived by the work of an expert group, items related to quality of care and satisfaction with services mainly evolved from the focus group work. From the focus groups, 367 statements were extracted, which were further processed in a Q-sort rating by a multinational expert group in order to identify domains and salient items. The draft questionnaire to be pilot tested cross-nationally consisted of 101 items which were reduced on the basis of psychometric findings. Conclusion On the basis of results of focus groups and existing evidence, a comprehensive measure should be employed in paediatric health services research including structural, process and outcome parameters of care from the perspective of parents. [ABSTRACT FROM AUTHOR] |
| Copyright of Child: Care, Health & Development is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| Database: | Psychology and Behavioral Sciences Collection |
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| Header | DbId: pbh DbLabel: Psychology and Behavioral Sciences Collection An: 31600696 AccessLevel: 6 PubType: Academic Journal PubTypeId: academicJournal PreciseRelevancyScore: 0 |
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| Items | – Name: Title Label: Title Group: Ti Data: Healthcare needs and healthcare satisfaction from the perspective of parents of children with chronic conditions: the DISABKIDS approach towards instrument development. – Name: Author Label: Authors Group: Au Data: <searchLink fieldCode="AR" term="%22Schmidt%2C+S%2E%22">Schmidt, S.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Thyen%2C+U%2E%22">Thyen, U.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Chaplin%2C+J%2E%22">Chaplin, J.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Mueller‐Godeffroy%2C+E%2E%22">Mueller‐Godeffroy, E.</searchLink> (AUTHOR)<br /><searchLink fieldCode="AR" term="%22Bullinger%2C+M%2E%22">Bullinger, M.</searchLink> (AUTHOR) – Name: TitleSource Label: Source Group: Src Data: <searchLink fieldCode="JN" term="%22Child%3A+Care%2C+Health+%26+Development%22">Child: Care, Health & Development</searchLink>. May2008, Vol. 34 Issue 3, p355-366. 12p. 1 Color Photograph, 1 Diagram, 2 Charts, 1 Graph. – Name: Subject Label: Subjects Group: Su Data: <searchLink fieldCode="DE" term="%22Pediatric+research%22">Pediatric research</searchLink><br /><searchLink fieldCode="DE" term="%22Juvenile+diseases%22">Juvenile diseases</searchLink><br /><searchLink fieldCode="DE" term="%22Chronic+diseases+in+children%22">Chronic diseases in children</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+care%22">Medical care</searchLink><br /><searchLink fieldCode="DE" term="%22Child+health+services%22">Child health services</searchLink><br /><searchLink fieldCode="DE" term="%22Child+care+services%22">Child care services</searchLink><br /><searchLink fieldCode="DE" term="%22Parent-child+caregiver+relationships%22">Parent-child caregiver relationships</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+needs+assessment%22">Medical needs assessment</searchLink><br /><searchLink fieldCode="DE" term="%22Medical+care+use%22">Medical care use</searchLink><br /><searchLink fieldCode="DE" term="%22Health+planning%22">Health planning</searchLink> – Name: Abstract Label: Abstract Group: Ab Data: Aim Increasingly, families' perspectives are taken into account in the appraisal of health services. The objective of this study was to cross-culturally analyse concepts related to healthcare needs, healthcare utilization and the appraisal and satisfaction with care of parents of children with chronic conditions with the aim of developing a cross-cultural measure. Methods Several approaches were employed in the study: (i) a deductive approach integrating existing measurements; and (ii) an inductive approach based on focus groups. Focus groups were conducted in seven countries with mothers and fathers as well as their children with seven different chronic conditions, and qualitatively analysed. Results As a result of an evaluation of the different existing methodological approaches, the basic structural components were identified: healthcare needs, the receipt of services, problems with receiving services as well as the appraisal of and satisfaction with the quality of care. While items referring to existing healthcare services were primarily derived by the work of an expert group, items related to quality of care and satisfaction with services mainly evolved from the focus group work. From the focus groups, 367 statements were extracted, which were further processed in a Q-sort rating by a multinational expert group in order to identify domains and salient items. The draft questionnaire to be pilot tested cross-nationally consisted of 101 items which were reduced on the basis of psychometric findings. Conclusion On the basis of results of focus groups and existing evidence, a comprehensive measure should be employed in paediatric health services research including structural, process and outcome parameters of care from the perspective of parents. [ABSTRACT FROM AUTHOR] – Name: AbstractSuppliedCopyright Label: Group: Ab Data: <i>Copyright of Child: Care, Health & Development is the property of Wiley-Blackwell and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract.</i> (Copyright applies to all Abstracts.) |
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| RecordInfo | BibRecord: BibEntity: Identifiers: – Type: doi Value: 10.1111/j.1365-2214.2008.00815.x Languages: – Code: eng Text: English PhysicalDescription: Pagination: PageCount: 12 StartPage: 355 Subjects: – SubjectFull: Pediatric research Type: general – SubjectFull: Juvenile diseases Type: general – SubjectFull: Chronic diseases in children Type: general – SubjectFull: Medical care Type: general – SubjectFull: Child health services Type: general – SubjectFull: Child care services Type: general – SubjectFull: Parent-child caregiver relationships Type: general – SubjectFull: Medical needs assessment Type: general – SubjectFull: Medical care use Type: general – SubjectFull: Health planning Type: general Titles: – TitleFull: Healthcare needs and healthcare satisfaction from the perspective of parents of children with chronic conditions: the DISABKIDS approach towards instrument development. Type: main BibRelationships: HasContributorRelationships: – PersonEntity: Name: NameFull: Schmidt, S. – PersonEntity: Name: NameFull: Thyen, U. – PersonEntity: Name: NameFull: Chaplin, J. – PersonEntity: Name: NameFull: Mueller‐Godeffroy, E. – PersonEntity: Name: NameFull: Bullinger, M. IsPartOfRelationships: – BibEntity: Dates: – D: 01 M: 05 Text: May2008 Type: published Y: 2008 Identifiers: – Type: issn-print Value: 03051862 Numbering: – Type: volume Value: 34 – Type: issue Value: 3 Titles: – TitleFull: Child: Care, Health & Development Type: main |
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